Cystic Fibrosis Forum (EXP)

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  1. L

    When to go on the transplant list

    Dave, you should stop waiting to see what may happen because it won't be pretty. Get listed asap. It won't mean you get a new set of lungs by the end of the week. When you're listed, sit back and take care of yourself. Some wait 2 years! THEN, when the time comes and you get sicker, you'll...
  2. L

    Is there a way to gain strength back and not need oxygen help wolst exercising?

    Oxygen isn't a drug. It's not addictive. It's essential for life. Use plenty of oxygen to facilitate exercise.
  3. L

    Is there a way to gain strength back and not need oxygen help wolst exercising?

    Oxygen isn't a drug. It's not addictive. It's essential for life. Use plenty of oxygen to facilitate exercise.
  4. L

    Bloodsugar got to 347 tonight

    Life after TX is all about blood sugars since the meds make you less sensitive to insulin. The good news is that you'll put on weight <img src="i/expressions/face-icon-small-smile.gif" border="0">
  5. L

    Bloodsugar got to 347 tonight

    Life after TX is all about blood sugars since the meds make you less sensitive to insulin. The good news is that you'll put on weight <img src="i/expressions/face-icon-small-smile.gif" border="0">
  6. L

    Weight Gain

    I agree! Weight gain shakes in addition to your normal eating habits is perfect (esp. for braces). Lifting weights will not only put on the muscle, but also stimulate appetite.
  7. L

    Weight Gain

    I agree! Weight gain shakes in addition to your normal eating habits is perfect (esp. for braces). Lifting weights will not only put on the muscle, but also stimulate appetite.
  8. L

    Heading back to 60+ FEV1 from 26.

    Not necessarily. I disagree with waiting for someone to tell you how to save yourself. At an FEV1 below 30, you're a bad cold away from being in critical condition. Congrats on staying on top of it so far, but take it from me, it's time to get evaluated. This can seem scary, of course, but...
  9. L

    Heading back to 60+ FEV1 from 26.

    Not necessarily. I disagree with waiting for someone to tell you how to save yourself. At an FEV1 below 30, you're a bad cold away from being in critical condition. Congrats on staying on top of it so far, but take it from me, it's time to get evaluated. This can seem scary, of course, but...
  10. L

    Favorite exercises

    Barbell squats is the best. Not only does it promote bone density, it gets you breathing very heavy (provokes coughing), it builds muscle, it's the most functional movement--think post transplant trying to use the toilet <img src="i/expressions/face-icon-small-smile.gif" border="0">
  11. L

    Favorite exercises

    Barbell squats is the best. Not only does it promote bone density, it gets you breathing very heavy (provokes coughing), it builds muscle, it's the most functional movement--think post transplant trying to use the toilet <img src="i/expressions/face-icon-small-smile.gif" border="0">
  12. L

    Are you kidding me?!?!

    Are you paying your 2012 deductible?
  13. L

    Are you kidding me?!?!

    Are you paying your 2012 deductible?
  14. L

    Heading back to 60+ FEV1 from 26.

    With those numbers, are you being evaluated for a lung TX? As it was described to me, exercise doesn't affect FEV1. When mine got below 30, I tried to exercise as much as possible....my FEV1 didn't budge. I wish you luck!
  15. L

    Heading back to 60+ FEV1 from 26.

    With those numbers, are you being evaluated for a lung TX? As it was described to me, exercise doesn't affect FEV1. When mine got below 30, I tried to exercise as much as possible....my FEV1 didn't budge. I wish you luck!
  16. L

    cure for chronic rejection

    I think $$$ is better spent on gene therapy and cloning organs. We can benefit from both!
  17. L

    cure for chronic rejection

    I think $$$ is better spent on gene therapy and cloning organs. We can benefit from both!
  18. L

    cure for chronic rejection

    I think $$$ is better spent on gene therapy and cloning organs. We can benefit from both!
  19. L

    Kidney Failure?

    It was brought up by my TX doc at Columbia. She mentioned that they could have done both at once, but for me, I didn't want to complicate things. I didn't want the surgeon confused at any point. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  20. L

    Kidney Failure?

    It was brought up by my TX doc at Columbia. She mentioned that they could have done both at once, but for me, I didn't want to complicate things. I didn't want the surgeon confused at any point. <img src="i/expressions/face-icon-small-smile.gif" border="0">
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