Cystic Fibrosis Forum (EXP)

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  1. L

    Kidney Failure?

    It was brought up by my TX doc at Columbia. She mentioned that they could have done both at once, but for me, I didn't want to complicate things. I didn't want the surgeon confused at any point. <img src="i/expressions/face-icon-small-smile.gif" border="0">
  2. L

    Kidney Failure?

    I'm not sure of the answer to your question, but I do know that kidney health is paramount to double lung TX'ers. Between the meds being processed, high blood sugar, and often dehydration, the kidneys take a big hit. Constant awareness of this will lead to better kidney health and hopefully...
  3. L

    Kidney Failure?

    I'm not sure of the answer to your question, but I do know that kidney health is paramount to double lung TX'ers. Between the meds being processed, high blood sugar, and often dehydration, the kidneys take a big hit. Constant awareness of this will lead to better kidney health and hopefully...
  4. L

    Kidney Failure?

    I'm not sure of the answer to your question, but I do know that kidney health is paramount to double lung TX'ers. <br /> <br />Between the meds being processed, high blood sugar, and often dehydration, the kidneys take a big hit. <br /> <br />Constant awareness of this will lead to better...
  5. L

    Going to do The Vest for 8 hours straight

    Vesting is a very active process by the patient when done correctly. If you plan on doing a passive 8hrs, it sounds like a waste of time. Walking is better for you anyway. The impact of walking as well as the exercise and getting blood flowing (even if it's a very slow pace) is better than...
  6. L

    Going to do The Vest for 8 hours straight

    Vesting is a very active process by the patient when done correctly. If you plan on doing a passive 8hrs, it sounds like a waste of time. Walking is better for you anyway. The impact of walking as well as the exercise and getting blood flowing (even if it's a very slow pace) is better than...
  7. L

    Going to do The Vest for 8 hours straight

    Vesting is a very active process by the patient when done correctly. If you plan on doing a passive 8hrs, it sounds like a waste of time. Walking is better for you anyway. The impact of walking as well as the exercise and getting blood flowing (even if it's a very slow pace) is better than...
  8. L

    Pregnancy with Lung transplantt

    The meds are probably the reason. They are probably bad for a developing fetus. But I would ask your doc before you rule it out. Good luck!
  9. L

    Pregnancy with Lung transplantt

    The meds are probably the reason. They are probably bad for a developing fetus. But I would ask your doc before you rule it out. Good luck!
  10. L

    Pregnancy with Lung transplantt

    The meds are probably the reason. They are probably bad for a developing fetus. But I would ask your doc before you rule it out. Good luck!
  11. L

    tough topic- portrayed life expectancy

    You see, the thing is, I have CF and I'M STILL ALIVE. Getting a TX was a treatment option. If I didn't do 2 hour breathing treatments for 20 years, I would've died a long time ago. So...the minute any of us take any kind of medicine where medical science intervenes, you should be considered...
  12. L

    tough topic- portrayed life expectancy

    You see, the thing is, I have CF and I'M STILL ALIVE. Getting a TX was a treatment option. If I didn't do 2 hour breathing treatments for 20 years, I would've died a long time ago. So...the minute any of us take any kind of medicine where medical science intervenes, you should be considered...
  13. L

    tough topic- portrayed life expectancy

    You see, the thing is, I have CF and I'M STILL ALIVE. Getting a TX was a treatment option. <br /> <br />If I didn't do 2 hour breathing treatments for 20 years, I would've died a long time ago. So...the minute any of us take any kind of medicine where medical science intervenes, you should be...
  14. L

    tough topic- portrayed life expectancy

    Wow....I just found out that I died almost 2 years ago. I need to sit down and take a breathe. I agree--I wasn't cured by any means. Now my immune system is suppressed which causes problems I never knew existed--and my pancreas stopped working so I'm now a type I diabetic (wasn't pre-TX). But...
  15. L

    tough topic- portrayed life expectancy

    Wow....I just found out that I died almost 2 years ago. I need to sit down and take a breathe. I agree--I wasn't cured by any means. Now my immune system is suppressed which causes problems I never knew existed--and my pancreas stopped working so I'm now a type I diabetic (wasn't pre-TX). But...
  16. L

    tough topic- portrayed life expectancy

    Wow....I just found out that I died almost 2 years ago. I need to sit down and take a breathe. <br /> <br />I agree--I wasn't cured by any means. Now my immune system is suppressed which causes problems I never knew existed--and my pancreas stopped working so I'm now a type I diabetic (wasn't...
  17. L

    tough topic- portrayed life expectancy

    Let's make this topic even more confusing. I had a double lung TX---so, technically I should've died at 31. I'm still around, though--with CF. What does THAT do to the stats?
  18. L

    tough topic- portrayed life expectancy

    Let's make this topic even more confusing. I had a double lung TX---so, technically I should've died at 31. I'm still around, though--with CF. What does THAT do to the stats?
  19. L

    tough topic- portrayed life expectancy

    Let's make this topic even more confusing. <br /> <br />I had a double lung TX---so, technically I should've died at 31. I'm still around, though--with CF. <br /> <br />What does THAT do to the stats?
  20. L

    ANYONE HAVE AN EXTRA VEST...

    I have a FREE vest....practically new. In CT.
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