Cystic Fibrosis Forum (EXP)

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  1. Y

    3849+10kb C to T and Df508, any other people with these mutations?

    3849+10kb T to C and Df508, any other people with these mutations? did you mean C to T? my dd has these mutations. I am originally from Russia but currently live in France. She is 3 y/o and doing ok but not symptomless, cultured PA twice but not hospitalisations yet (touch wood)
  2. Y

    3849+10kb C to T and Df508, any other people with these mutations?

    3849+10kb T to C and Df508, any other people with these mutations? did you mean C to T? my dd has these mutations. I am originally from Russia but currently live in France. She is 3 y/o and doing ok but not symptomless, cultured PA twice but not hospitalisations yet (touch wood)
  3. Y

    3849+10kb C to T and Df508, any other people with these mutations?

    3849+10kb T to C and Df508, any other people with these mutations? did you mean C to T? my dd has these mutations. I am originally from Russia but currently live in France. She is 3 y/o and doing ok but not symptomless, cultured PA twice but not hospitalisations yet (touch wood)
  4. Y

    Does this happen to anyone else?

    I actually dread the part after the appointment. Waiting for culture results, is it going to be just staph, any bad surprises, it is horrible, when i seel the hospital number ringing, i totally fall apart.
  5. Y

    Does this happen to anyone else?

    I actually dread the part after the appointment. Waiting for culture results, is it going to be just staph, any bad surprises, it is horrible, when i seel the hospital number ringing, i totally fall apart.
  6. Y

    Does this happen to anyone else?

    I actually dread the part after the appointment. Waiting for culture results, is it going to be just staph, any bad surprises, it is horrible, when i seel the hospital number ringing, i totally fall apart.
  7. Y

    How to choose preschool and school

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AleksandraKaczynska</b></i> ymikhale: what does the special needs plan involve?</end quote></div> here it is a form that is filled out by your doctor that states special requirements and arrangements to be made at school for your...
  8. Y

    How to choose preschool and school

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AleksandraKaczynska</b></i> ymikhale: what does the special needs plan involve?</end quote> here it is a form that is filled out by your doctor that states special requirements and arrangements to be made at school for your child...
  9. Y

    How to choose preschool and school

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AleksandraKaczynska</b></i> <br /> <br />ymikhale: what does the special needs plan involve?</end quote> <br /> <br />here it is a form that is filled out by your doctor that states special requirements and arrangements to be made at...
  10. Y

    How to choose preschool and school

    I would try to get a feel for how cooperative the teachers/management are. Will they let you know if any illness is going around? Or if your daughter is coughing, seems tired etc? Here in France we set up a special needs child plan with the school, they are supposed to adhere to it but I am...
  11. Y

    How to choose preschool and school

    I would try to get a feel for how cooperative the teachers/management are. Will they let you know if any illness is going around? Or if your daughter is coughing, seems tired etc? Here in France we set up a special needs child plan with the school, they are supposed to adhere to it but I am...
  12. Y

    How to choose preschool and school

    I would try to get a feel for how cooperative the teachers/management are. Will they let you know if any illness is going around? Or if your daughter is coughing, seems tired etc? Here in France we set up a special needs child plan with the school, they are supposed to adhere to it but I am...
  13. Y

    What do you all do?

    I wear a mask but the thing is sometimes you are contagious even before you have symptoms (just happened last week). I also change towels and use a lot of sanitizer.
  14. Y

    What do you all do?

    I wear a mask but the thing is sometimes you are contagious even before you have symptoms (just happened last week). I also change towels and use a lot of sanitizer.
  15. Y

    What do you all do?

    I wear a mask but the thing is sometimes you are contagious even before you have symptoms (just happened last week). I also change towels and use a lot of sanitizer.
  16. Y

    dumb question

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AleksandraKaczynska</b></i> ymikhale - thanks - thats exactly why I worry...</end quote></div> I worry too. mine has not started pre school yet, we will try next year, but has been catching every bug around this year. After having...
  17. Y

    dumb question

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AleksandraKaczynska</b></i> ymikhale - thanks - thats exactly why I worry...</end quote> I worry too. mine has not started pre school yet, we will try next year, but has been catching every bug around this year. After having back to...
  18. Y

    dumb question

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>AleksandraKaczynska</b></i> <br /> <br />ymikhale - thanks - thats exactly why I worry...</end quote> <br /> <br />I worry too. mine has not started pre school yet, we will try next year, but has been catching every bug around this...
  19. Y

    dumb question

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i> It's not a dumb question. <img src=""> Throat cultures will also sometimes only turn up 'normal flora' since they generally contain no sputum from deep in the lungs; if they got a sample from deeper in the lung...
  20. Y

    dumb question

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>hmw</b></i> It's not a dumb question. <img src=""> Throat cultures will also sometimes only turn up 'normal flora' since they generally contain no sputum from deep in the lungs; if they got a sample from deeper in the lung...
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