Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. J

    CF Lungs---

    FEV1 of 30% means that you can blow 30% of the volume that a "normal" person could blow <b>in the first second</b> of blowing. You may have been thinking of FVC (forced vital capacity i.e. <b>total</b> air volume in an entire breath -- not just the first second). I think they care about the...
  2. J

    CF Lungs---

    tictac, I hope you are finding information that is helping to lessen your fear. I'm sure educating yourself is a great place to start as fear is usually related to the unknown. Because there is no cure as of yet and they are always working on new medications, some people find it rewarding to...
  3. J

    Nervous

    Hi Nicole, As mentioned above, many people with CF can relate. I have heard good things about antidepressants from others. I've personally had more success with seeing a therapist (mine is a social worker vs. phychologist or psychiatrist). Sometimes she offers ideas of what to try other...
  4. J

    Work from home to care for the more important things

    Original anonymous poster: How is your daughter doing now? She must be about two years old?
  5. J

    how much hyper

    I also use 3%, 5-10 ml, once or twice daily depending on how much I'm couphing up.
  6. J

    Hypertonic Saline

    My insurance covers it so I'm not familiar with the cost. But I'd guess the CF pharmacy is reasonably priced. (800) 541-4959
  7. J

    Baby with CF

    Holly, I'm curious about the fact that you've cleaned houses in the past. I have a side Q: My wife insists I not only <i>not</i> clean b/c of the chemicals and stirred up stuff from vacuuming or sweeping but usually only does it when I leave. Are there certain products that you believe are...
  8. J

    portacaths

    I love my port as well. I'd agree with the comment made about placement - out of sight. Not a huge deal, but I get stares when I take off my shirt. Mine is in my chest between my nipple and shoulder. Because I don't have much body fat, it's about as visible as a grape wedged under the skin.
Top