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I have never been in the situation of knowing my child had cf while I was pregnant. I didn't find out till my kids were a little older, but had I known that they had cf, I still would have kept them. I don't believe in abortion at all, I believe God put them here for a reason and he has a plan...

I'm going to see Dr. Addrienne Prestidge(sp) She sounds very nice so far.

I am going to see a new cf team on Tuesday, I am already impressed and haven't even met with them yet. The doctor has called me 2 already in the past 2 days to ask questions about the children so she would be ready, and see if she would have to order any test. I have a good feeling about this. I...

thank you they are my babies

I have a photo page of the kids. It is www.65rosesx2.fotopages.com They are the newest photos I have of the kids

ultraseMT12 is what my kids are on.

ultraseMT12 is what my kids are on.

We have 3 cats and a dog. The kids don't have any problems with them. I actually think it's helps them, it teaches them how to be responsible and to take care of someone. Just as they have to take care of themselves. I think pets are wonderful, it helps to make a house a home

Thank you all for your support and kind words, I think I'm going to look into get a new cf team. One that gets back to me a little sooner and values my children and my concerns as a parent. I've let doctors screw with me for too long, I'm going to take the front seat on this issue. My kids mean...

I need to vent, Yesterday I called my cf coordinator to ask her questions about my kids because they were sick. We talked for about 45 mins. I told her what was going on with my kids, they both had really bad colds, constant coughing and gagging, snezzing. They looked miserable. Anyway she said...

My 5yr old weighs 30 pounds and is in the 5th percentile, my 6yr old is 40 pounds and in the 15th%. My 23m old is 30 pounds and in the 50th%

My doctors said not to change my life. Live my life as if cf wasn't there. She said not to let cf run my life. There will be times I keep my kids in more, cold weather etc. But my husband works a lot of hours and things have to be done, grocerys have to be bought bills have to be paid. But most...

Thank you, and your right knowledge is power. A month ago I didn't know anything except my kids were positive for cf.I thought the world as I knew it had come to a halt. I was right it did, but it opened a door to a world were I can make a change and a difference for my childrens sake. Now...

What their telling you is so not true. I just did one with my sons school, he is in kindergarden. They are putting an air purifier in the class room, On the second day he is absent from school a tutor comes to the house for him. A 504 plan is for any child that has special needs. The school by...

You didn't come across to strong, I agree with you. I just think i have to wait a liitle bit and give this all time to set in. I was toldif me daughter didn't have the fundoplication she had when she was 9 months old she would strave to death because she couldn't keep anything done. You would...

I really appreiciate eveyone responses to this. I thought the same thing, get a new doctor, run, get a second opinion. But then I wonder do i really want to do that and explain all this medical history and problems to a whole new team of doctors that will run more test, and draw more blood. My...

A sweat test is simple, first they put a positive and negative electode on the childs arm with a gel disk on it, they stays on for 5 minutes each arm. Then they take it off put a little disk on the arm where the electrode was at, leave it for 15 minutes, it turns blue as it collects sweat. The...

Hello Christy, I know what your feeling, I stay angry. I know what ypur talking about when it comes to eating also. I just say my ped. yesrterday and she said pedisure and icecream blended together mega calories and taste good. When my daughter was a baby she threw up everything, they did...

Yes your response really saddens me. Please explain more.

I wanted to update the school situation. I had a meeting yesterday with about 7 people from Zach's school, Ranging from his teacher to the principal, a social worker, a phsycologist, nurse. In the meeting they said the were going to purcahse an air purifier for the class room and set him up for...