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SSI does take your income into consideration. I believe you have to make less than 20,000 a year to qualify. At least that was what I was told when I applied for my children. They where quite mean about the situation. Hope this helps

Can anyone give me a little help learning what I need to help educate the school on cf since i am new to all of this. What does my son need to make things easier for him in school? His school is currently under construction right now. The construction happens to be right next to his classroom...

Maria They did say something about a 504 plan yesterday when I spoke to the school to set up the meeting. Like I said the meeting is Monday. They also said he would be entiltled to a tutor after being out of school for 1 day. Does that sound right? Can I download any info this weekend off the...

Wednesady was good and Bad. They decided to just keep an eye on Jacob he'll be 3 in Febuary. Zachary they put on 2 different breathing treatment medicines 2 times a day. They ran some other test, were waiting for those results. They decided he has asthma also. Gabrielle is on 1 inhaled medicine...

I totally undrstand what your saying. I feel like everyone who has never been in this situation that says I'm so sorry really means that their sorry , but I feel it's more like I'm so sorry but I'm glad it's not mine that have cf. Maybe it's just me but i feel like that is what everyone is...

My daughter was 15 pounds at a yr old. She is now 32 pounds and going to be 5 this month. She was just tested for cf a month ago and was positive. She also had failure to thrive and developmental delay. She did have reflux so severe that they did surgery at 9 months old. She has had a lot of...

Yes I was always been at Loyola My 1st child I had preeclampsia I delivered at 38 weeks. He was ok until he was 4 weeks old and then he stop breathing They had to due surgery to sew his epagaltus open because it keep collasping. He has had tubes in his ears 4 times, his tonsils and adnoids...

Thank you for that info. Yes my daughter had a throat culture done already and the boys will on wednesday. I will look into talking with a social worker to get more info. They said my daughter the 5 yr old was to small to do the lung function test. They did do a chest x-ray though. I am going to...

How do you know if your with a cf center. I see the pulmonary doctor on wednesday it will be the 4th time in 2 months we have met with her. Are their any really key things i should ask her, or find out right know. Gabrielle has been put on breathing treatments and enzymes, and proboitics. They...

Thank you to everyone who has responded. I live in OakLawn and I currently use Loyola hospital. I would very much apprieciate what ever info anyone has. I know with time everything will get easier. Yes I am married and my husband is supportive and upset at the same time. The bad thing is he...

Thank You all for your welcome. I believe that I'm still in the I can't believe this happening state of mind. I'm so mad at the doctors for taking so long to test my daughter. She has been so sick since birth with so many things. I felt as though every time I turned around something else was...

I just found out My daughter has cf She's going to be 5 this month. I just got her potty trained due to the fact she had no bowel control and some times still doesn't. My two son's were also tested because she was positive, and tested positive as well. I hope I don't have as many issues with my...

<img src="i/expressions/brokenheart.gif" border="0"> Hello everyone my name is Jenni, I have 3 children a 6yr old, 4yr old, 2yr old. They all just tested positive for cf. I am really having a difficult time trying to understand and deal with all of this. I was wondering if their is anyone who...