Cystic Fibrosis Forum (EXP)

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  1. R

    Dr can't figure out what's wrong. I'm an enigma

    I'm new to the site, and relatively new to CF. I am 46, diagnosed at 38. I've had an aspergillus diagnosis, so I'm interested in this topic. I don't speak the language, tho. What are ABPA and NAC? I've been given Vfend oral for the aspergillus.
  2. R

    Dr can't figure out what's wrong. I'm an enigma

    I'm new to the site, and relatively new to CF. I am 46, diagnosed at 38. I've had an aspergillus diagnosis, so I'm interested in this topic. I don't speak the language, tho. What are ABPA and NAC? I've been given Vfend oral for the aspergillus.
  3. R

    port surgery questions

    Has anyone had a port anywhere other than upper chest? I would really like it to be more hidden. Not that I wear low cut shirts, but some clothes do show my upper chest.
  4. R

    port surgery questions

    Has anyone had a port anywhere other than upper chest? I would really like it to be more hidden. Not that I wear low cut shirts, but some clothes do show my upper chest.
  5. R

    port surgery questions

    Has anyone had a port anywhere other than upper chest? I would really like it to be more hidden. Not that I wear low cut shirts, but some clothes do show my upper chest.
  6. R

    CFers over 40

    I'm 46, diagnosed at 38. I'm sorry to say, I don't know what my FEV is. I have no pancreatic involvement only lifelong history of lung problems. Right middle lobe removed at 6 yrs of age. Multiple sweat tests as a child. All negative. 1st positive at 22, but Dr's didn't know what to make...
  7. R

    CFers over 40

    I'm 46, diagnosed at 38. I'm sorry to say, I don't know what my FEV is. I have no pancreatic involvement only lifelong history of lung problems. Right middle lobe removed at 6 yrs of age. Multiple sweat tests as a child. All negative. 1st positive at 22, but Dr's didn't know what to make...
  8. R

    CFers over 40

    I'm 46, diagnosed at 38. I'm sorry to say, I don't know what my FEV is. I have no pancreatic involvement only lifelong history of lung problems. Right middle lobe removed at 6 yrs of age. Multiple sweat tests as a child. All negative. 1st positive at 22, but Dr's didn't know what to make...
  9. R

    Who are you in a nut shell

    My name is Rhonda. I'm a wife and mother of 2 beautiful teenaged daughters. I'm 46. Conservative Christian. Diagnosed at 38 after asking God for a miracle to heal my lungs. It was a miracle, b/c I'd been fighting chronic lung infections my entire life without a diagnosis. I have a mild case...
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