Cystic Fibrosis Forum (EXP)

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    Whats the best brand of Nebulizer???

    I have eflow and i am very glad i do! I know its kinda expensive and some of its parts should be replaced every now and then (more money) but its a huge time saver. It takes 5-8 minutes for Bramitob and 4 for Pulmozyme! Very very quick!
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    Oral antibiotics

    Melissa I usually feel good after the first week! It also depends on the dose and your situation. Last summer i took 1500mg of Cipro for two weeks. It was a big dose but i didnt feel a huuuge difference and my cough kicked in soon. That happened for two reasons: My PA level was too high and i...
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    Oral antibiotics

    Melissa I usually feel good after the first week! It also depends on the dose and your situation. Last summer i took 1500mg of Cipro for two weeks. It was a big dose but i didnt feel a huuuge difference and my cough kicked in soon. That happened for two reasons: My PA level was too high and i...
  4. B

    Oral antibiotics

    I Was recently in Cipro for two weeks and I think it really helps me with pseudo. I feel so much better and almost no cough!!! I gained some weight and my appettite is great! Unfortunately it wont last for long! I was wondering if your doctors prescribe oral antibiotics. What antibiotics? In...
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    Oral antibiotics

    I Was recently in Cipro for two weeks and I think it really helps me with pseudo. I feel so much better and almost no cough!!! I gained some weight and my appettite is great! Unfortunately it wont last for long! I was wondering if your doctors prescribe oral antibiotics. What antibiotics? In...
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    (good)CF Centers in Central Europe??!?

    UK anyone?
  7. B

    (good)CF Centers in Central Europe??!?

    UK anyone?
  8. B

    Off Label Kalydeco-My follow up Appt.

    Marci Im so happy for you! I hope cases like yous open up the way for everyone! Congrats!
  9. B

    Off Label Kalydeco-My follow up Appt.

    Marci Im so happy for you! I hope cases like yous open up the way for everyone! Congrats!
  10. B

    How old was your child when they first cultured pseudomonas?

    I was around 14 when i started doing IVs regularly (once a year) due to PA. I have been hospitalised once before at the age of 8 due to PA. The put me on Ivs and i didnt culture it again for many years. It helped me go through the phase of puberty and you know all the growing up without having...
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    How old was your child when they first cultured pseudomonas?

    I was around 14 when i started doing IVs regularly (once a year) due to PA. I have been hospitalised once before at the age of 8 due to PA. The put me on Ivs and i didnt culture it again for many years. It helped me go through the phase of puberty and you know all the growing up without having...
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    I've got a cold - Can I still work out?

    I totaly agree with Havoc! Wait till you are off Cipro! It gave bad really bad joint and muscle pains last summer!
  13. B

    I've got a cold - Can I still work out?

    I totaly agree with Havoc! Wait till you are off Cipro! It gave bad really bad joint and muscle pains last summer!
  14. B

    WWYD

    Personally i TOTALLY agree with Incomudrox. You should go for it!
  15. B

    WWYD

    Personally i TOTALLY agree with Incomudrox. You should go for it!
  16. B

    IV's & alcohol

    ?m on Ciproxin right now (oral) and i had a glass of wine last night. Generally speaking I try to refrain from it when im on intibiotics. I think my liver is already having a hard time.
  17. B

    IV's & alcohol

    ?m on Ciproxin right now (oral) and i had a glass of wine last night. Generally speaking I try to refrain from it when im on intibiotics. I think my liver is already having a hard time.
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    Kalydeco off-label: My first 4 days

    Please continue keeping us posted guys!
  19. B

    Kalydeco off-label: My first 4 days

    Please continue keeping us posted guys!
  20. B

    IV treatment

    Gunelle i leave in Grecce and i do IVs exactly the same way as you do! Im a little confused about what port and picc line is , though.... pics would help!
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