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I had infections at first but now im kinda resistant to that to. Cipro gives me yeast infections!

I think i feel for you guys. Im a loner too. I know many people but i have a few real friends. I dont mind staying in by myself. I enjoy my own company. I find so many people extremely annoying as they keep bugging me with their huge dramas (boyfriend troubles, friend troubles, money problems...

Swimming in the ocean guess its best due to the salt of the water. Its like swimming in hypertonic saline! Im from Greece and swimming in summer months makes a difference in my health every year! It gives me less mucus and more energy. I feel better overall.

Gold i guess... It seems pretty sturdy to me! I never had a problem wearing gold jewellery. I always ruin anything silver though...

I suspect it brings down my PFTs a little. But just temporarily.

I think its normal to feel that way! We all feel overwhelmed at times! I have CF myself and sometimes i find it hard to cope with it exactly because except for my parents i cant talk to anyone about it. They wouldn't understand. Even my parents dont at times. This site is amazing. You can find a...

God im so so so frustrated that i cant be in the study. I would qualify but i dont live near a clinic. There is no mention of when it starts! I hope they do it very very soon. Any clues?

CT is around 10 millisieverts of radiation??????????? Thats too much! :(

Gives me muscle pains very often. Tendonitis and sore neck or sprained ankles these are common side effects. They wear off after the treatment.

Im doing ct scan every other year. One year x-rays one year ct scan.

Try sleeping a lot. makes time pass easier.

Usually i have exhaustion (its partly emotional too), diarrhea, sometimes i get flu-like symptoms and definitely mood swings. I feel kinda worse the first week. The second is usually easier, just the diarrhea remains. But i always look forward to getting the peripheral out of my arm. The...

There are moments that we all kinda lose it. There are moments we all get desperate and depressed. There are moments we all need that little something. We need a word of compassion or some sympathy. Or just someone to commiserate. That works for me. Also crying works for me. I cry like a baby...

Guys when do you take sodium bicarbonate? After Creon and before meal? When its the best timing? Im thinking it would be a good Zantac substitute!

Crying has the same effect on me but i dont recommend it for obvious reasons. Although lately i use crying as a sedative. It makes me feel so relieved afterwards.

Bill if you are reffering to my post, im in the very unfortunate position to tell you that my CF department runs excellently compared to other ones in the country. When i was seeing another doctor (15 years ago) -it was of course in a city 5 hours away than mine- and they made us collect our own...

Here in Greece CF clinics are just departments of hospitals. So in my "clinic' we pretty much have this messy situation @JustaCFmom described. We never get examined on the time of the appointment. I get there at 10 and im always leaving when my doctor does which means 2 or 3pm. The waiting room...

Guys dont forget that Colobreath (colistin in a powder inhaler) is available in some places like the UK and soon in others as well. So dont get frustrated if you cant tolerate something. We now have a lot of meds in our arsenal! (cayston, TIP/Tobi/bramitob, colobreath) I hope inhaled Cipro is...

Im taking Cipro twice a year or more. I never had such thing. Maybe you are just tired or stressed. Try to relax and give yourself sometime to heal.

Seems we have good new guys! They even agreed on a discount on both drugs! See for yourselves! http://www.pharmatimes.com/Article/13-01-25/Forest_and_Novartis_gain_NICE_yes_for_lung_infections.aspx ps Its 56 doses not days!