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Not sure if anyone has posted this here or not... But there's a new novel with a character who has CF. She was diagnosed at 17. The character is based on a friend the author had in college. I just bought it, but I know the author said that copies were being donated to CF centers and she donated...
Thanks for this info. I am also having a similar problem. I have been experiencing similar symptoms for the past week- chest pain, worse when I cough, hard to breathe in. Also, I have a pulse ox monitor and my oxygen level has been lower than it usually is. I saw my pulmnologist a few days ago...
I live in Austin. I do not know too much about the centers, but I can give you general info on San Antonio as it's close to Austin and I've been there a lot. I don't go to a center, but I do know that the Dell Children's Hospital is brand new and supposed to be very good. San Antonio is very...
I was diagnosed at age 32. My sweat test was normal though. They only found my CF through a genetic test. I had chronic lung infections that lead to bronchiectasis. I am also a more mild case with no real pancreatic problems. I was never misdaignosed with asthma, but my doctors never really...
Thanks everyone. I've been at a work conference so I am sorry I didn't reply. I spoke to my pulmonologist and he also said I'm probably more dehydrated than usual and yes my blood pressure is normally low. I'm also a teacher and I need to remember to drink water during classes. The dizzy feeling...
Yeah, it's never happened to me before and I think this is my third time on it over the last three years. I'll call my doctor. I feel a little better today though. Thanks.
I have a question about prednisone withdrawal... I got the flu last month and was really sick for a long time. So I saw my doctor and he put me on prednisone to get me back on my feet. I've been on it in the past and was fine. I did the same 40 mg for four days and then it tapered down 10mg...
Hello everyone. My name is Bree and I am 37 years old. I was diagnosed at age 30 or so after many years of having various lung infections and eventually a CT scan revealed bronchiectasis. My sweat tests were negative, but genetic testing revealed I have one deltaF508 and one D1152H. Right now...
I think this type of cough is quite common. My doctor gave me tesslon pearls or benzonatate for it. I think mine gets worse with allergies but the meds help. I have a standing script for them and I just take them when I need them. Nothing over the counter worked for me. Well, nothing I could...
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