Cystic Fibrosis Forum (EXP)

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  1. R

    Scandishakes

    Harriet, <br /> <br />She get 5 creon 12's with her shakes, just like she does any other meal or snack. We don't eat dinner until 7pm because her home health nurse is here until that time. We don't want to eat in front of her, and she has her dinner waiting for her when she gets home. Bek...
  2. R

    c.diff

    I have dealt with c. diff numerous times since I work in a nursing home. Thankfully, my daughter has never had it. Yes, once you've smelled it, there is never a doubt if it happens again. There really is no description for the smell. I've also noticed there is a distict color to it. For the...
  3. R

    c.diff

    I have dealt with c. diff numerous times since I work in a nursing home. Thankfully, my daughter has never had it. Yes, once you've smelled it, there is never a doubt if it happens again. There really is no description for the smell. I've also noticed there is a distict color to it. For the...
  4. R

    c.diff

    I have dealt with c. diff numerous times since I work in a nursing home. Thankfully, my daughter has never had it. Yes, once you've smelled it, there is never a doubt if it happens again. There really is no description for the smell. I've also noticed there is a distict color to it. For the...
  5. R

    c.diff

    I have dealt with c. diff numerous times since I work in a nursing home. Thankfully, my daughter has never had it. Yes, once you've smelled it, there is never a doubt if it happens again. There really is no description for the smell. I've also noticed there is a distict color to it. For the...
  6. R

    c.diff

    I have dealt with c. diff numerous times since I work in a nursing home. Thankfully, my daughter has never had it. <br /> <br />Yes, once you've smelled it, there is never a doubt if it happens again. There really is no description for the smell. I've also noticed there is a distict color to it...
  7. R

    Scandishakes

    My daughter loves them, but she isn't gaining weight by drinking them. Since she got out of the hospital on 1/25/10, she has only put on about a pound and she drinks one every afternoon around 4 when she gets home from school.
  8. R

    Scandishakes

    My daughter loves them, but she isn't gaining weight by drinking them. Since she got out of the hospital on 1/25/10, she has only put on about a pound and she drinks one every afternoon around 4 when she gets home from school.
  9. R

    Scandishakes

    My daughter loves them, but she isn't gaining weight by drinking them. Since she got out of the hospital on 1/25/10, she has only put on about a pound and she drinks one every afternoon around 4 when she gets home from school.
  10. R

    Scandishakes

    My daughter loves them, but she isn't gaining weight by drinking them. Since she got out of the hospital on 1/25/10, she has only put on about a pound and she drinks one every afternoon around 4 when she gets home from school.
  11. R

    Scandishakes

    My daughter loves them, but she isn't gaining weight by drinking them. Since she got out of the hospital on 1/25/10, she has only put on about a pound and she drinks one every afternoon around 4 when she gets home from school.
  12. R

    Can anyone translate doctor speak?

    It was either the end of 2006, or the beginning of 2007, when Bek cultured mucoid and non-mucoid pseudo. She was put on tobi and was doing it every single day for about a year and a half. They finally ordered it 28 on/off, and while she was in the hospital this last time, it was determined to...
  13. R

    Can anyone translate doctor speak?

    It was either the end of 2006, or the beginning of 2007, when Bek cultured mucoid and non-mucoid pseudo. She was put on tobi and was doing it every single day for about a year and a half. They finally ordered it 28 on/off, and while she was in the hospital this last time, it was determined to...
  14. R

    Can anyone translate doctor speak?

    It was either the end of 2006, or the beginning of 2007, when Bek cultured mucoid and non-mucoid pseudo. She was put on tobi and was doing it every single day for about a year and a half. They finally ordered it 28 on/off, and while she was in the hospital this last time, it was determined to...
  15. R

    Can anyone translate doctor speak?

    It was either the end of 2006, or the beginning of 2007, when Bek cultured mucoid and non-mucoid pseudo. She was put on tobi and was doing it every single day for about a year and a half. They finally ordered it 28 on/off, and while she was in the hospital this last time, it was determined to...
  16. R

    Can anyone translate doctor speak?

    It was either the end of 2006, or the beginning of 2007, when Bek cultured mucoid and non-mucoid pseudo. She was put on tobi and was doing it every single day for about a year and a half. They finally ordered it 28 on/off, and while she was in the hospital this last time, it was determined to...
  17. R

    Another angel gets her wings.

    I am so sorry to hear this. Her family is in our prayers. Breathe Easy, Tiffany, and may your lungs help the research!!
  18. R

    Another angel gets her wings.

    I am so sorry to hear this. Her family is in our prayers. Breathe Easy, Tiffany, and may your lungs help the research!!
  19. R

    Another angel gets her wings.

    I am so sorry to hear this. Her family is in our prayers. Breathe Easy, Tiffany, and may your lungs help the research!!
  20. R

    Another angel gets her wings.

    I am so sorry to hear this. Her family is in our prayers. Breathe Easy, Tiffany, and may your lungs help the research!!
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