Cystic Fibrosis Forum (EXP)

This is a sample guest message. Register a free account today to become a member! Once signed in, you'll be able to participate on this site by adding your own topics and posts, as well as connect with other members through your own private inbox!

Search results

  1. R

    Another angel gets her wings.

    I am so sorry to hear this. Her family is in our prayers. Breathe Easy, Tiffany, and may your lungs help the research!!
  2. R

    CF memorial

    Wow! That looks great! My husband was totally surprised when he saw my daughter's name on the boat!! When my daughter has a chance to see it tomorrow, I'm sure she'll be surprised as well! P.S. - My hubby, Leo, said to tell you he'll be down to do some bass fishing!! lol!
  3. R

    CF memorial

    Wow! That looks great! My husband was totally surprised when he saw my daughter's name on the boat!! When my daughter has a chance to see it tomorrow, I'm sure she'll be surprised as well! P.S. - My hubby, Leo, said to tell you he'll be down to do some bass fishing!! lol!
  4. R

    CF memorial

    Wow! That looks great! My husband was totally surprised when he saw my daughter's name on the boat!! When my daughter has a chance to see it tomorrow, I'm sure she'll be surprised as well! P.S. - My hubby, Leo, said to tell you he'll be down to do some bass fishing!! lol!
  5. R

    CF memorial

    Wow! That looks great! My husband was totally surprised when he saw my daughter's name on the boat!! When my daughter has a chance to see it tomorrow, I'm sure she'll be surprised as well! P.S. - My hubby, Leo, said to tell you he'll be down to do some bass fishing!! lol!
  6. R

    CF memorial

    Wow! That looks great! My husband was totally surprised when he saw my daughter's name on the boat!! When my daughter has a chance to see it tomorrow, I'm sure she'll be surprised as well! <br /> <br />P.S. - My hubby, Leo, said to tell you he'll be down to do some bass fishing!! lol!
  7. R

    Singulair

    Bek takes 4mg every day and weighs 44 lbs. She has been on this since last summer. Her PCP put her on it, and her CF doc hasn't said anything about it.
  8. R

    Singulair

    Bek takes 4mg every day and weighs 44 lbs. She has been on this since last summer. Her PCP put her on it, and her CF doc hasn't said anything about it.
  9. R

    Singulair

    Bek takes 4mg every day and weighs 44 lbs. She has been on this since last summer. Her PCP put her on it, and her CF doc hasn't said anything about it.
  10. R

    Singulair

    Bek takes 4mg every day and weighs 44 lbs. She has been on this since last summer. Her PCP put her on it, and her CF doc hasn't said anything about it.
  11. R

    Singulair

    Bek takes 4mg every day and weighs 44 lbs. She has been on this since last summer. Her PCP put her on it, and her CF doc hasn't said anything about it.
  12. R

    Annual visits are utterly exhausting

    Heather, You are so totally NOT alone! Our normal visit day starts at 6am with getting her meds done, then breakfast and bath before getting dressed to head out the door at 8 or 8:30, depending on appointment time, which is usually at 9:45 or 10am. We usually get back home around 2 or 2:30...
  13. R

    Annual visits are utterly exhausting

    Heather, You are so totally NOT alone! Our normal visit day starts at 6am with getting her meds done, then breakfast and bath before getting dressed to head out the door at 8 or 8:30, depending on appointment time, which is usually at 9:45 or 10am. We usually get back home around 2 or 2:30...
  14. R

    Annual visits are utterly exhausting

    Heather, You are so totally NOT alone! Our normal visit day starts at 6am with getting her meds done, then breakfast and bath before getting dressed to head out the door at 8 or 8:30, depending on appointment time, which is usually at 9:45 or 10am. We usually get back home around 2 or 2:30...
  15. R

    Annual visits are utterly exhausting

    Heather, You are so totally NOT alone! Our normal visit day starts at 6am with getting her meds done, then breakfast and bath before getting dressed to head out the door at 8 or 8:30, depending on appointment time, which is usually at 9:45 or 10am. We usually get back home around 2 or 2:30...
  16. R

    Annual visits are utterly exhausting

    <br />Heather, <br /> <br />You are so totally NOT alone! Our normal visit day starts at 6am with getting her meds done, then breakfast and bath before getting dressed to head out the door at 8 or 8:30, depending on appointment time, which is usually at 9:45 or 10am. We usually get back home...
  17. R

    does anyone do this?

    Bek is on Hyper-Sal 7%, Pulmozyme, & Mucomyst, in addition to albuterol. We're in the off month for the Tobi right now, but her doc is debating whether or not to keep her off of it. He is basically leaving that up to me and whether I want to keep her on it. She does albuterol then mucomyst...
  18. R

    does anyone do this?

    Bek is on Hyper-Sal 7%, Pulmozyme, & Mucomyst, in addition to albuterol. We're in the off month for the Tobi right now, but her doc is debating whether or not to keep her off of it. He is basically leaving that up to me and whether I want to keep her on it. She does albuterol then mucomyst...
  19. R

    does anyone do this?

    Bek is on Hyper-Sal 7%, Pulmozyme, & Mucomyst, in addition to albuterol. We're in the off month for the Tobi right now, but her doc is debating whether or not to keep her off of it. He is basically leaving that up to me and whether I want to keep her on it. She does albuterol then mucomyst...
  20. R

    does anyone do this?

    Bek is on Hyper-Sal 7%, Pulmozyme, & Mucomyst, in addition to albuterol. We're in the off month for the Tobi right now, but her doc is debating whether or not to keep her off of it. He is basically leaving that up to me and whether I want to keep her on it. She does albuterol then mucomyst...
Top