Cystic Fibrosis Forum (EXP)

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    Question about symptom my step-son is having

    No never limit his activities...Its great he is able to do those things and if you limit him he will just resent it. What you may do is maybe just check on him more often. Make him stop for 5 or 10 minutes for frequent drink breaks. He maybe playing so hard and getting hot and not drinking...
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    public apology

    Wow...you know that describes alot of things i have seen on different sites. Some of which i knew were lying....now...hmm Very interesting.
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    Jewlery and CF

    I have a fossil watch thats silver, and the part thats on my wrist is no longer silver looking, its got pits in it and although its not rust it looks brownish and is rough instead of smooth now. I just assume its from the salt eating at the silver. I have had it for years though. Although i used...
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    never had lung problems

    Ditto to what everyone said. Unless they are a medical doctor no one can really say another person does or does not have cf. Even then some medical doctors misdiagnose, for cf its best to be tested by an accredited center specializing in cf. Just ask yourself this, how does someone putting...
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    how do i find out if someone is lying about having cf?

    Just to give a benifit of the doubt. Maybe he is confused on what cf website she goes to, its possible. If she was here and saw this i would think she would reply to this already defending her self. *shrugs* Another thing is not all significant others quit smoking on behalf of the other, for...
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    how do i find out if someone is lying about having cf?

    I say do lots of research yourself on cf. Become really knowledgable, maybe get someone on here to help you. Then drill her. Ask her what all she has been through. Ask her how bad her dad was. How old was he when he died. Most males are sterile if they have cf, now i said most, its not...
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    Movie I heart Huckabees and mention of CF

    well since they only mention cf for maybe 5 minutes the whole movie. but i was still under the impression that all the clones were given some sort of defect and all of them would die in 5 years...so with that we can also assume that they made the cf in the clones the severe gene. think about it...
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    writer seeking help.

    I for got to mention this to. Someone said to get in a pool neck deep and breath through a straw, plug up your nose. And then you might understand what its like to have limited breathing ability. I forgot who said this and have no idea how it works, but i do know of a parent who tried to breath...
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    writer seeking help.

    YOu can also interview my mother and me. Although it would have to be through email with my mom because she isnt on here. I am sure she would love to answer any questions you have. Like Emily and her mom, we have a great relationship too. you can email me at akberrie@hotmail.com
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    Divorce to get help from state

    Right on Ben! I know what your going through.
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    Picc line infection? Need help!

    I havent experienced this but it sounds like what you said a allergic reaction to something. I hope they get it figured out...running fevers like that is no good. Amanda
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    Support Group

    Sorry i wasnt clear. Thanks Emily for clearing it up. Yes I meant CFers cant be in support groups together because they can pass their bacteria back and forth to each others, not spread cf.
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    Support Group

    Support groups arent allowed any more....at least for the cfers themselves. To risky for cross contamination. In fact a internet friend of mine from New York says that her insurance would drop her cf son if he was in contact with another cfer. Especially if he picked up a bug and had contact...
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    please, can anyone relate?

    Since he is never in the hospital I say you need to chill out. Dont worry till there is something to worry about otherwise your going to make yourself sick and when you need to be strong and put together your going to fall apart. If your falling apart now barely able to cope how are you going to...
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    please, can anyone relate?

    Dont listen to the life expectancies. They figure everyone who is older than that number and all those who die before it. Websites say for any cfer its 33...but that number rose from 31 in just a year....With all the new meds coming out, advances and last resort transplants lives are being...
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    CF and Family History

    OH and 40 years ago they knew about cf but it wasnt widely known....doctors even now dont know much about it and brush it off unless you have all symptoms and are really sick. So it doesnt surprise me in the least 40 years ago some doctors didnt do much about it. Even now some doctors are still...
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    CF and Family History

    oopps I didnt meant to do that ^ I am the only one in my family with cf. We know of a handful that have the gene....that would be my parents and two cousins who got tested for the gene. Not really any body else. There are two people we guess about. One on my dads side....like my grandmothers...
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    CF and Family History

    [No message]
  19. P

    Port Placement Options

    Thats all I know too Emily. Mine is under my right boob. I like it there.
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    Jokes Loved Ones Make About CF

    When I am hacking my husband will copy my cough and make it sound more like a cat with a hairball....of course he only does this when he knows its ok. I get the salt lick comment to...when i was younger about 10 or 11 and my brother was 4 or 5 he would literally grab my arm and lick it to get...
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