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We got our written report from my 4 year old daughter's birthday visit at the CF clinic. Everything checked out well on her radiographs and bloodwork except they said her vitamin K level was a little low and we need to start a supplement 3 times a week. Is this common?? Are there any foods we...

We got our written report from my 4 year old daughter's birthday visit at the CF clinic. Everything checked out well on her radiographs and bloodwork except they said her vitamin K level was a little low and we need to start a supplement 3 times a week. Is this common?? Are there any foods we...

We got our written report from my 4 year old daughter's birthday visit at the CF clinic. Everything checked out well on her radiographs and bloodwork except they said her vitamin K level was a little low and we need to start a supplement 3 times a week. Is this common?? Are there any foods we...

My daughter had a rectal exam with the gastroenterologist before she was diagnosed with CF. They have never checked that at the CF clinic.

My daughter had a rectal exam with the gastroenterologist before she was diagnosed with CF. They have never checked that at the CF clinic.

My daughter had a rectal exam with the gastroenterologist before she was diagnosed with CF. They have never checked that at the CF clinic.

I am worried about it making her tired so I think we will just give it once a day before dinner for a while. I figure if I could get her appetite up at at least 1 meal I can get extra calories in her.

I am worried about it making her tired so I think we will just give it once a day before dinner for a while. I figure if I could get her appetite up at at least 1 meal I can get extra calories in her.

I am worried about it making her tired so I think we will just give it once a day before dinner for a while. I figure if I could get her appetite up at at least 1 meal I can get extra calories in her.

We are getting ready to start periactin in my 4 year old daughter to try to get a few lbs on her. Has anyone used it?? Did it work?? When you stopped giving it, did your child lose the weight??

We are getting ready to start periactin in my 4 year old daughter to try to get a few lbs on her. Has anyone used it?? Did it work?? When you stopped giving it, did your child lose the weight??

We are getting ready to start periactin in my 4 year old daughter to try to get a few lbs on her. Has anyone used it?? Did it work?? When you stopped giving it, did your child lose the weight?? <br />

My daughter is starting preschool next week. Can anyone give me a link to a handout I can give to her teachers explaining CF?? I have gone over the enzymes with them but I'd like them to understand everything.

My daughter is starting preschool next week. Can anyone give me a link to a handout I can give to her teachers explaining CF?? I have gone over the enzymes with them but I'd like them to understand everything.

My daughter is starting preschool next week. Can anyone give me a link to a handout I can give to her teachers explaining CF?? I have gone over the enzymes with them but I'd like them to understand everything.

This happened to my daughter a few weeks ago. She went 5 days. I did eventually give her the suppository because 3 days of miralax wasn't doing anything. Once she went, the mirslax made her lose some control which has never happened before. Since then, if she doesn't go 1 days, I start the...

This happened to my daughter a few weeks ago. She went 5 days. I did eventually give her the suppository because 3 days of miralax wasn't doing anything. Once she went, the mirslax made her lose some control which has never happened before. Since then, if she doesn't go 1 days, I start the...

This happened to my daughter a few weeks ago. She went 5 days. I did eventually give her the suppository because 3 days of miralax wasn't doing anything. Once she went, the mirslax made her lose some control which has never happened before. Since then, if she doesn't go 1 days, I start the...

We are thinking about buying an air purifier for my 3 year CFers room. She doesn't have any pulmonary symptoms yet and just does the vest 20 minutes a day for lung health. We do albuterol nebs when she has a cold. Do the air purifiers actually help improve lung health?? I know stuff like...

We are thinking about buying an air purifier for my 3 year CFers room. She doesn't have any pulmonary symptoms yet and just does the vest 20 minutes a day for lung health. We do albuterol nebs when she has a cold. Do the air purifiers actually help improve lung health?? I know stuff like...