Cystic Fibrosis Forum (EXP)

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  1. M

    Moving to Hawaii

    Hi. We live on Oahu. My 15 year old son gets care at the cf center at Tripler. There is a center, it is a satellite clinic (affiliated with a big center in TX, forget which one). There are at least 9 cf patients at the clinic, maybe more. My son has been having some serious issues this past...
  2. M

    Aspergillus

    My son was diagnosed with ABPA. At first, he took prednisone and a anti-fungal medicine. The prednisone caused major swelling of his face. Because of that, he was switched to solumedrol through his port three days a month. We've had good results. His pfts are up and he's coughing less.
  3. M

    Aspergillus

    My son was diagnosed with ABPA. At first, he took prednisone and a anti-fungal medicine. The prednisone caused major swelling of his face. Because of that, he was switched to solumedrol through his port three days a month. We've had good results. His pfts are up and he's coughing less.
  4. M

    Aspergillus

    My son was diagnosed with ABPA. At first, he took prednisone and a anti-fungal medicine. The prednisone caused major swelling of his face. Because of that, he was switched to solumedrol through his port three days a month. We've had good results. His pfts are up and he's coughing less.
  5. M

    Aspergillus

    My son was diagnosed with ABPA. At first, he took prednisone and a anti-fungal medicine. The prednisone caused major swelling of his face. Because of that, he was switched to solumedrol through his port three days a month. We've had good results. His pfts are up and he's coughing less.
  6. M

    Aspergillus

    My son was diagnosed with ABPA. At first, he took prednisone and a anti-fungal medicine. The prednisone caused major swelling of his face. Because of that, he was switched to solumedrol through his port three days a month. We've had good results. His pfts are up and he's coughing less.
  7. M

    Is anyone a teacher?

    I am a teacher, but do not have cf. My son does though. My schedule has really been good for taking care of my son, we usually schedule his hospitalizations around my school breaks. Teachers get plenty of sick leave in most states, so that's a bonus. I agree that the first couple years are hard...
  8. M

    Is anyone a teacher?

    I am a teacher, but do not have cf. My son does though. My schedule has really been good for taking care of my son, we usually schedule his hospitalizations around my school breaks. Teachers get plenty of sick leave in most states, so that's a bonus. I agree that the first couple years are hard...
  9. M

    Is anyone a teacher?

    I am a teacher, but do not have cf. My son does though. My schedule has really been good for taking care of my son, we usually schedule his hospitalizations around my school breaks. Teachers get plenty of sick leave in most states, so that's a bonus. I agree that the first couple years are hard...
  10. M

    Is anyone a teacher?

    I am a teacher, but do not have cf. My son does though. My schedule has really been good for taking care of my son, we usually schedule his hospitalizations around my school breaks. Teachers get plenty of sick leave in most states, so that's a bonus. I agree that the first couple years are hard...
  11. M

    Is anyone a teacher?

    I am a teacher, but do not have cf. My son does though. My schedule has really been good for taking care of my son, we usually schedule his hospitalizations around my school breaks. Teachers get plenty of sick leave in most states, so that's a bonus. I agree that the first couple years are hard...
  12. M

    ABPA?

    My son does three days of IV solumedrol (steroid) every month to treat his ABPA. His pfts have come up considerably since we started this.
  13. M

    ABPA?

    My son does three days of IV solumedrol (steroid) every month to treat his ABPA. His pfts have come up considerably since we started this.
  14. M

    ABPA?

    My son does three days of IV solumedrol (steroid) every month to treat his ABPA. His pfts have come up considerably since we started this.
  15. M

    ABPA?

    My son does three days of IV solumedrol (steroid) every month to treat his ABPA. His pfts have come up considerably since we started this.
  16. M

    ABPA?

    My son does three days of IV solumedrol (steroid) every month to treat his ABPA. His pfts have come up considerably since we started this.
  17. M

    Tygacil (tigecycline)

    My son was on this for 8 months. There were no real side effects that we saw. It did not destroy the mycobacterium he has though and we stopped it last week.
  18. M

    Tygacil (tigecycline)

    My son was on this for 8 months. There were no real side effects that we saw. It did not destroy the mycobacterium he has though and we stopped it last week.
  19. M

    Tygacil (tigecycline)

    My son was on this for 8 months. There were no real side effects that we saw. It did not destroy the mycobacterium he has though and we stopped it last week.
  20. M

    Tygacil (tigecycline)

    My son was on this for 8 months. There were no real side effects that we saw. It did not destroy the mycobacterium he has though and we stopped it last week.
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