Cystic Fibrosis Forum (EXP)

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  1. M

    Tygacil (tigecycline)

    My son was on this for 8 months. There were no real side effects that we saw. It did not destroy the mycobacterium he has though and we stopped it last week.
  2. M

    My 4 year old...help, please

    My doctor refused to test my son when I first brought up cf. Months later when he was still sick, I told the doctor it would make me feel so much better if she'd just order the test, just to rule it out. She said okay but stated that he didn't have the symptoms in her opinion. My neighbor, who...
  3. M

    My 4 year old...help, please

    My doctor refused to test my son when I first brought up cf. Months later when he was still sick, I told the doctor it would make me feel so much better if she'd just order the test, just to rule it out. She said okay but stated that he didn't have the symptoms in her opinion. My neighbor, who...
  4. M

    My 4 year old...help, please

    My doctor refused to test my son when I first brought up cf. Months later when he was still sick, I told the doctor it would make me feel so much better if she'd just order the test, just to rule it out. She said okay but stated that he didn't have the symptoms in her opinion. My neighbor, who...
  5. M

    My 4 year old...help, please

    My doctor refused to test my son when I first brought up cf. Months later when he was still sick, I told the doctor it would make me feel so much better if she'd just order the test, just to rule it out. She said okay but stated that he didn't have the symptoms in her opinion. My neighbor, who...
  6. M

    My 4 year old...help, please

    My doctor refused to test my son when I first brought up cf. Months later when he was still sick, I told the doctor it would make me feel so much better if she'd just order the test, just to rule it out. She said okay but stated that he didn't have the symptoms in her opinion. My neighbor, who...
  7. M

    Questin for those who use Albuterol in an inhaler

    My son takes 4 puffs three times a day. Doctor's orders.
  8. M

    Questin for those who use Albuterol in an inhaler

    My son takes 4 puffs three times a day. Doctor's orders.
  9. M

    Questin for those who use Albuterol in an inhaler

    My son takes 4 puffs three times a day. Doctor's orders.
  10. M

    Questin for those who use Albuterol in an inhaler

    My son takes 4 puffs three times a day. Doctor's orders.
  11. M

    Questin for those who use Albuterol in an inhaler

    My son takes 4 puffs three times a day. Doctor's orders.
  12. M

    IPV machine

    My 15 year old son has had the vest since he was 4. It has never really caused him to cough up anything even though his CT scans show lots of mucus in his airways. Recently, while hospitalized, he tried the IPV machine. Right away he began coughing up stuff. My doctor then ordered a machine for...
  13. M

    IPV machine

    My 15 year old son has had the vest since he was 4. It has never really caused him to cough up anything even though his CT scans show lots of mucus in his airways. Recently, while hospitalized, he tried the IPV machine. Right away he began coughing up stuff. My doctor then ordered a machine for...
  14. M

    IPV machine

    My 15 year old son has had the vest since he was 4. It has never really caused him to cough up anything even though his CT scans show lots of mucus in his airways. Recently, while hospitalized, he tried the IPV machine. Right away he began coughing up stuff. My doctor then ordered a machine for...
  15. M

    IPV machine

    My 15 year old son has had the vest since he was 4. It has never really caused him to cough up anything even though his CT scans show lots of mucus in his airways. Recently, while hospitalized, he tried the IPV machine. Right away he began coughing up stuff. My doctor then ordered a machine for...
  16. M

    IPV machine

    My 15 year old son has had the vest since he was 4. It has never really caused him to cough up anything even though his CT scans show lots of mucus in his airways. Recently, while hospitalized, he tried the IPV machine. Right away he began coughing up stuff. My doctor then ordered a machine for...
  17. M

    Who are you in a nut shell

    who are you in a nut shell My name is Lisa. My son, Brad, has cystic fibrosis. He was diagnosed at five months. He is 15. He's on IV for m. abscessus for 12-18 months. This is his first time having major problems, before this he did IVs about once a year. We live in Hawaii. My husband is a...
  18. M

    Home IV again

    Jane, So far these are the only antibiotics the mycobacterium responds to in the lab. They did a bronch two weeks ago to get another culture. Hoping to find another antibiotic to treat it with.
  19. M

    Home IV again

    Jane, So far these are the only antibiotics the mycobacterium responds to in the lab. They did a bronch two weeks ago to get another culture. Hoping to find another antibiotic to treat it with.
  20. M

    Home IV again

    Jane, So far these are the only antibiotics the mycobacterium responds to in the lab. They did a bronch two weeks ago to get another culture. Hoping to find another antibiotic to treat it with.
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