Cystic Fibrosis Forum (EXP)

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  1. L

    Any advice on how I can help

    Does the US have anything like respit care??? My 2 year old gets respite care every week for 3 hours a nurse come into look after her and its paid by the gvernment and then they have also given me a "Alowance" to hire someone on my own to come and give me a break. Our respit hours increce when...
  2. L

    Any advice on how I can help

    Does the US have anything like respit care??? My 2 year old gets respite care every week for 3 hours a nurse come into look after her and its paid by the gvernment and then they have also given me a "Alowance" to hire someone on my own to come and give me a break. Our respit hours increce when...
  3. L

    Any advice on how I can help

    Does the US have anything like respit care??? My 2 year old gets respite care every week for 3 hours a nurse come into look after her and its paid by the gvernment and then they have also given me a "Alowance" to hire someone on my own to come and give me a break. Our respit hours increce when...
  4. L

    people who use cf to make money

    I dont know if this will help at all but for a sort term help with money..... My 2 year old was dx with type one Diabeties and we had no insuance and no way of getting her an Insulin pump (7400 plus 400 per month to run it) she was only 14 months old and the insulin injections were not working...
  5. L

    people who use cf to make money

    I dont know if this will help at all but for a sort term help with money..... My 2 year old was dx with type one Diabeties and we had no insuance and no way of getting her an Insulin pump (7400 plus 400 per month to run it) she was only 14 months old and the insulin injections were not working...
  6. L

    people who use cf to make money

    I dont know if this will help at all but for a sort term help with money..... My 2 year old was dx with type one Diabeties and we had no insuance and no way of getting her an Insulin pump (7400 plus 400 per month to run it) she was only 14 months old and the insulin injections were not working...
  7. L

    Dont know where to go from here

    Hi Doreen; Emma hasnt been tested for anything besides Celiacs witch was neg. and then she has Diabeties. I have been looking around and our Nearest CF center is the same place I take Emma. I am getting him sent there ASAP but because they are the best of the best it seams that we will be doing...
  8. L

    Dont know where to go from here

    Hi Doreen; Emma hasnt been tested for anything besides Celiacs witch was neg. and then she has Diabeties. I have been looking around and our Nearest CF center is the same place I take Emma. I am getting him sent there ASAP but because they are the best of the best it seams that we will be doing...
  9. L

    Dont know where to go from here

    Hi Doreen; Emma hasnt been tested for anything besides Celiacs witch was neg. and then she has Diabeties. I have been looking around and our Nearest CF center is the same place I take Emma. I am getting him sent there ASAP but because they are the best of the best it seams that we will be doing...
  10. L

    Welcome Ambry Genetics

    We went to our peds. Doctor yesterday and mentioned that the 39 sweat test was pretty much borber line and she told us NO that there sweat test was normal upto 60?!?! so my question is there diffrent sweat tests with resault would have a noraml range all the way to 60 and that anything over 60...
  11. L

    Liam

    Just a small update on my frustrations! We went to the Peds doctor today to get the rest of my sons test results: She said all his labs for liver and kidney function have came back normal. I mentioned to her that the 39 sweat test is pretty much boarder Line and she told me NO she said it was...
  12. L

    Liam

    Just a small update on my frustrations! We went to the Peds doctor today to get the rest of my sons test results: She said all his labs for liver and kidney function have came back normal. I mentioned to her that the 39 sweat test is pretty much boarder Line and she told me NO she said it was...
  13. L

    Liam

    Just a small update on my frustrations! We went to the Peds doctor today to get the rest of my sons test results: She said all his labs for liver and kidney function have came back normal. I mentioned to her that the 39 sweat test is pretty much boarder Line and she told me NO she said it was...
  14. L

    Dont know where to go from here

    Just a small update on my frustrations! We went to the Peds doctor today to get the rest of my sons test results: She said all his labs for liver and kidney function have came back normal. I mentioned to her that the 39 sweat test is pretty much boarder Line and she told me NO she said it was...
  15. L

    Dont know where to go from here

    Just a small update on my frustrations! We went to the Peds doctor today to get the rest of my sons test results: She said all his labs for liver and kidney function have came back normal. I mentioned to her that the 39 sweat test is pretty much boarder Line and she told me NO she said it was...
  16. L

    Dont know where to go from here

    Just a small update on my frustrations! We went to the Peds doctor today to get the rest of my sons test results: She said all his labs for liver and kidney function have came back normal. I mentioned to her that the 39 sweat test is pretty much boarder Line and she told me NO she said it was...
  17. L

    3 Year old daughter with CF

    I was doing some resurch on the net about pseudomonas and basicaly anyone with a weakened immune system can get this. This is from <a target=_blank class=ftalternatingbarlinklarge href="http://www.merck.com/mmhe/sec17/ch190/ch190o.html ">http://www.merck.com/mmhe/sec1...190/ch190o.html </a>...
  18. L

    3 Year old daughter with CF

    I was doing some resurch on the net about pseudomonas and basicaly anyone with a weakened immune system can get this. This is from <a target=_blank class=ftalternatingbarlinklarge href="http://www.merck.com/mmhe/sec17/ch190/ch190o.html ">http://www.merck.com/mmhe/sec1...190/ch190o.html </a>...
  19. L

    3 Year old daughter with CF

    I was doing some resurch on the net about pseudomonas and basicaly anyone with a weakened immune system can get this. This is from <a target=_blank class=ftalternatingbarlinklarge href="http://www.merck.com/mmhe/sec17/ch190/ch190o.html ">http://www.merck.com/mmhe/sec1...190/ch190o.html </a>...
  20. L

    In need of guidance please!!!!!

    Just wanted to say that my thoughts and prayers are with you. I sent you a private msg hope you get something useful from it. (if you havent used private msg its in the top left corner) Shawna
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