Cystic Fibrosis Forum (EXP)

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  1. L

    In need of guidance please!!!!!

    Just wanted to say that my thoughts and prayers are with you. I sent you a private msg hope you get something useful from it. (if you havent used private msg its in the top left corner) Shawna
  2. L

    In need of guidance please!!!!!

    Just wanted to say that my thoughts and prayers are with you. I sent you a private msg hope you get something useful from it. (if you havent used private msg its in the top left corner) Shawna
  3. L

    Waiting for Tests

    I know the waiting game all to well! We were lucky the last time my son was admited to hospital they did the sweat test well he was still in hospital but the down fall to that is that it wasnt done at a CF clinic and we still didnt get the answers we needed it was 39 "normal" Hope fully you all...
  4. L

    Waiting for Tests

    I know the waiting game all to well! We were lucky the last time my son was admited to hospital they did the sweat test well he was still in hospital but the down fall to that is that it wasnt done at a CF clinic and we still didnt get the answers we needed it was 39 "normal" Hope fully you all...
  5. L

    Waiting for Tests

    I know the waiting game all to well! We were lucky the last time my son was admited to hospital they did the sweat test well he was still in hospital but the down fall to that is that it wasnt done at a CF clinic and we still didnt get the answers we needed it was 39 "normal" Hope fully you all...
  6. L

    Liam

    Thank you all for you encouragement I will be seeing the peds. doctor here tomorrow and hopefully she will have more of his test results and at that time I will be asking for a gen. work up on him and see what they say. I also have gotten him another referral to a different paediatrician who...
  7. L

    Liam

    Thank you all for you encouragement I will be seeing the peds. doctor here tomorrow and hopefully she will have more of his test results and at that time I will be asking for a gen. work up on him and see what they say. I also have gotten him another referral to a different paediatrician who...
  8. L

    Liam

    Thank you all for you encouragement I will be seeing the peds. doctor here tomorrow and hopefully she will have more of his test results and at that time I will be asking for a gen. work up on him and see what they say. I also have gotten him another referral to a different paediatrician who...
  9. L

    Liam

    Thank you all for you input. Im just sick of Doctors saying it normal and that the end of that. I wasnt sure if a 39 was a good normal or if it was still high enough to look at the genics of my son. Im just getting tired of my son being so sick! I didnt want to start demanding test where I was...
  10. L

    Liam

    Thank you all for you input. Im just sick of Doctors saying it normal and that the end of that. I wasnt sure if a 39 was a good normal or if it was still high enough to look at the genics of my son. Im just getting tired of my son being so sick! I didnt want to start demanding test where I was...
  11. L

    Liam

    Thank you all for you input. Im just sick of Doctors saying it normal and that the end of that. I wasnt sure if a 39 was a good normal or if it was still high enough to look at the genics of my son. Im just getting tired of my son being so sick! I didnt want to start demanding test where I was...
  12. L

    Welcome Ambry Genetics

    My son was born on Aug. 31 06 and since then has been in and out of hospital with Bronchiolitis and "bronculaar pneumonia". He's been sick since the day he was born. At 5 days old the "cold" started by 7 weeks he was in hospital with it. He was discharged still with "bronchiolitis" but was told...
  13. L

    Liam

    My son was born on Aug. 31 06 and since then has been in and out of hospital with Bronchiolitis and "bronculaar pneumonia". He's been sick since the day he was born. At 5 days old the "cold" started by 7 weeks he was in hospital with it. He was discharged still with "bronchiolitis" but was told...
  14. L

    Liam

    My son was born on Aug. 31 06 and since then has been in and out of hospital with Bronchiolitis and "bronculaar pneumonia". He's been sick since the day he was born. At 5 days old the "cold" started by 7 weeks he was in hospital with it. He was discharged still with "bronchiolitis" but was told...
  15. L

    Liam

    My son was born on Aug. 31 06 and since then has been in and out of hospital with Bronchiolitis and "bronculaar pneumonia". He's been sick since the day he was born. At 5 days old the "cold" started by 7 weeks he was in hospital with it. He was discharged still with "bronchiolitis" but was told...
  16. L

    Dont know where to go from here

    Thank you Heather for your insight. I wasn't sure if a 39 was borderline or a for sure no he doesn't have it. What type of genetic testing should I be asking for?? We live in a small town and they don't seem to know much about anything here. We travel 2.5 hours to get to the nearest children's...
  17. L

    Dont know where to go from here

    Thank you Heather for your insight. I wasn't sure if a 39 was borderline or a for sure no he doesn't have it. What type of genetic testing should I be asking for?? We live in a small town and they don't seem to know much about anything here. We travel 2.5 hours to get to the nearest children's...
  18. L

    Dont know where to go from here

    Thank you Heather for your insight. I wasn't sure if a 39 was borderline or a for sure no he doesn't have it. What type of genetic testing should I be asking for?? We live in a small town and they don't seem to know much about anything here. We travel 2.5 hours to get to the nearest children's...
  19. L

    Dont know where to go from here

    Oh and did I mention that his hands and feet are always like ice and yet hes always sweating!!!!
  20. L

    Dont know where to go from here

    Oh and did I mention that his hands and feet are always like ice and yet hes always sweating!!!!
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