Cystic Fibrosis Forum (EXP)

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  1. S

    trampoline help with mucus clear out?

    We use one for my son and yes it does seem to break up the mucus a little and is great exercise. It is also great for drying towels/clothes in the sun (to save energy on dryer useage) and for lying on at night and watching the stars. Sean
  2. S

    trampoline help with mucus clear out?

    We use one for my son and yes it does seem to break up the mucus a little and is great exercise. It is also great for drying towels/clothes in the sun (to save energy on dryer useage) and for lying on at night and watching the stars. Sean
  3. S

    trampoline help with mucus clear out?

    We use one for my son and yes it does seem to break up the mucus a little and is great exercise. It is also great for drying towels/clothes in the sun (to save energy on dryer useage) and for lying on at night and watching the stars. Sean
  4. S

    Denufasol vs VX potentiator (VX-770?)

    I would do the Denufosol. My son did it about a year ago. The only draw back is that it is 3x a day (at least it was when he did it) and like was mentioned above, it is much closer to approval. The VX trial does sound promising though and I think in the end if it pans out, more beneficial...
  5. S

    Denufasol vs VX potentiator (VX-770?)

    I would do the Denufosol. My son did it about a year ago. The only draw back is that it is 3x a day (at least it was when he did it) and like was mentioned above, it is much closer to approval. The VX trial does sound promising though and I think in the end if it pans out, more beneficial...
  6. S

    Denufasol vs VX potentiator (VX-770?)

    I would do the Denufosol. My son did it about a year ago. The only draw back is that it is 3x a day (at least it was when he did it) and like was mentioned above, it is much closer to approval. The VX trial does sound promising though and I think in the end if it pans out, more beneficial...
  7. S

    Denufasol vs VX potentiator (VX-770?)

    I would do the Denufosol. My son did it about a year ago. The only draw back is that it is 3x a day (at least it was when he did it) and like was mentioned above, it is much closer to approval. The VX trial does sound promising though and I think in the end if it pans out, more beneficial...
  8. S

    Denufasol vs VX potentiator (VX-770?)

    I would do the Denufosol. My son did it about a year ago. The only draw back is that it is 3x a day (at least it was when he did it) and like was mentioned above, it is much closer to approval. The VX trial does sound promising though and I think in the end if it pans out, more beneficial...
  9. S

    swine flu

    I stand corrected.......... apparently the first cases in Florida have been identified.......... Florida Gov. Charlie Crist says the state has its first two confirmed cases of swine flu. Crist says the cases are in Lee and Broward counties, involving an 11-year-old boy and 17-year-old girl...
  10. S

    swine flu

    I stand corrected.......... apparently the first cases in Florida have been identified.......... Florida Gov. Charlie Crist says the state has its first two confirmed cases of swine flu. Crist says the cases are in Lee and Broward counties, involving an 11-year-old boy and 17-year-old girl...
  11. S

    swine flu

    I stand corrected.......... apparently the first cases in Florida have been identified.......... Florida Gov. Charlie Crist says the state has its first two confirmed cases of swine flu. Crist says the cases are in Lee and Broward counties, involving an 11-year-old boy and 17-year-old girl...
  12. S

    swine flu

    I stand corrected.......... apparently the first cases in Florida have been identified.......... Florida Gov. Charlie Crist says the state has its first two confirmed cases of swine flu. Crist says the cases are in Lee and Broward counties, involving an 11-year-old boy and 17-year-old girl...
  13. S

    swine flu

    I stand corrected.......... apparently the first cases in Florida have been identified.......... Florida Gov. Charlie Crist says the state has its first two confirmed cases of swine flu. Crist says the cases are in Lee and Broward counties, involving an 11-year-old boy and 17-year-old girl...
  14. S

    swine flu

    I like close to Disney and the good news is that there have been no reported cases here yet. I would have thought by now we would have some considering all of the tourists we have. I am keeping my fingers crossed, but I know it is just a matter of time. To keep things in perspective...
  15. S

    swine flu

    I like close to Disney and the good news is that there have been no reported cases here yet. I would have thought by now we would have some considering all of the tourists we have. I am keeping my fingers crossed, but I know it is just a matter of time. To keep things in perspective...
  16. S

    swine flu

    I like close to Disney and the good news is that there have been no reported cases here yet. I would have thought by now we would have some considering all of the tourists we have. I am keeping my fingers crossed, but I know it is just a matter of time. To keep things in perspective...
  17. S

    swine flu

    I like close to Disney and the good news is that there have been no reported cases here yet. I would have thought by now we would have some considering all of the tourists we have. I am keeping my fingers crossed, but I know it is just a matter of time. To keep things in perspective...
  18. S

    swine flu

    I like close to Disney and the good news is that there have been no reported cases here yet. I would have thought by now we would have some considering all of the tourists we have. I am keeping my fingers crossed, but I know it is just a matter of time. To keep things in perspective...
  19. S

    CF Parent Advocacy Group

    Hi, I also served as the parent advisor to my son's clinic as well. I think you will find it worthwile. You will definitely learn more about what goes on behind the scene and how all of the caregivers interact with each other. You will see them in a different light afterwards. At least I...
  20. S

    CF Parent Advocacy Group

    Hi, I also served as the parent advisor to my son's clinic as well. I think you will find it worthwile. You will definitely learn more about what goes on behind the scene and how all of the caregivers interact with each other. You will see them in a different light afterwards. At least I...
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