Cystic Fibrosis Forum (EXP)

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  1. S

    CF Parent Advocacy Group

    Hi, I also served as the parent advisor to my son's clinic as well. I think you will find it worthwile. You will definitely learn more about what goes on behind the scene and how all of the caregivers interact with each other. You will see them in a different light afterwards. At least I...
  2. S

    CF Parent Advocacy Group

    Hi, I also served as the parent advisor to my son's clinic as well. I think you will find it worthwile. You will definitely learn more about what goes on behind the scene and how all of the caregivers interact with each other. You will see them in a different light afterwards. At least I...
  3. S

    CF Parent Advocacy Group

    Hi, I also served as the parent advisor to my son's clinic as well. I think you will find it worthwile. You will definitely learn more about what goes on behind the scene and how all of the caregivers interact with each other. You will see them in a different light afterwards. At least I...
  4. S

    Sterilizing PARI cups

    I wash them in hot soapy water, rinse and then put in a microwave safe bowl add water to cover about 1/2 way and then nuke them in the microwave for 7-8 minutes. Then take out and air dry. I have boiled and also used the machines that steralize the baby bottles, but always come back to the...
  5. S

    Sterilizing PARI cups

    I wash them in hot soapy water, rinse and then put in a microwave safe bowl add water to cover about 1/2 way and then nuke them in the microwave for 7-8 minutes. Then take out and air dry. I have boiled and also used the machines that steralize the baby bottles, but always come back to the...
  6. S

    Sterilizing PARI cups

    I wash them in hot soapy water, rinse and then put in a microwave safe bowl add water to cover about 1/2 way and then nuke them in the microwave for 7-8 minutes. Then take out and air dry. I have boiled and also used the machines that steralize the baby bottles, but always come back to the...
  7. S

    Sterilizing PARI cups

    I wash them in hot soapy water, rinse and then put in a microwave safe bowl add water to cover about 1/2 way and then nuke them in the microwave for 7-8 minutes. Then take out and air dry. I have boiled and also used the machines that steralize the baby bottles, but always come back to the...
  8. S

    Sterilizing PARI cups

    I wash them in hot soapy water, rinse and then put in a microwave safe bowl add water to cover about 1/2 way and then nuke them in the microwave for 7-8 minutes. Then take out and air dry. I have boiled and also used the machines that steralize the baby bottles, but always come back to the...
  9. S

    Clinical Trials...

    Our clinic constantly asks us and I keep up with what is going on. My son has been in 4 clinical trials (Denufosol, Aztreonam, and 2 others I can not think of right now off the top of my head). He would have been in the Bronchitol (manitol) study, but his lung function is too high. I usually...
  10. S

    Clinical Trials...

    Our clinic constantly asks us and I keep up with what is going on. My son has been in 4 clinical trials (Denufosol, Aztreonam, and 2 others I can not think of right now off the top of my head). He would have been in the Bronchitol (manitol) study, but his lung function is too high. I usually...
  11. S

    Clinical Trials...

    Our clinic constantly asks us and I keep up with what is going on. My son has been in 4 clinical trials (Denufosol, Aztreonam, and 2 others I can not think of right now off the top of my head). He would have been in the Bronchitol (manitol) study, but his lung function is too high. I usually...
  12. S

    Clinical Trials...

    Our clinic constantly asks us and I keep up with what is going on. My son has been in 4 clinical trials (Denufosol, Aztreonam, and 2 others I can not think of right now off the top of my head). He would have been in the Bronchitol (manitol) study, but his lung function is too high. I usually...
  13. S

    Clinical Trials...

    Our clinic constantly asks us and I keep up with what is going on. My son has been in 4 clinical trials (Denufosol, Aztreonam, and 2 others I can not think of right now off the top of my head). He would have been in the Bronchitol (manitol) study, but his lung function is too high. I usually...
  14. S

    OT - Germy Vacuum Cleaners

    Thanks for the info. I guess the 5 second rule for that cookie that fell on the floor is definitely out of the question now.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">
  15. S

    OT - Germy Vacuum Cleaners

    Thanks for the info. I guess the 5 second rule for that cookie that fell on the floor is definitely out of the question now.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">
  16. S

    OT - Germy Vacuum Cleaners

    Thanks for the info. I guess the 5 second rule for that cookie that fell on the floor is definitely out of the question now.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">
  17. S

    OT - Germy Vacuum Cleaners

    Thanks for the info. I guess the 5 second rule for that cookie that fell on the floor is definitely out of the question now.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">
  18. S

    OT - Germy Vacuum Cleaners

    Thanks for the info. I guess the 5 second rule for that cookie that fell on the floor is definitely out of the question now.<img src="i/expressions/face-icon-small-disgusted.gif" border="0">
  19. S

    vest epiphany

    I just ordered and received a larger size vest for my son as well. He looks so much more comfortable now and the vest is lighter than the old one.
  20. S

    vest epiphany

    I just ordered and received a larger size vest for my son as well. He looks so much more comfortable now and the vest is lighter than the old one.
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