Cystic Fibrosis Forum (EXP)

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  1. T

    Girl with CF on The View

    I am glad to know that some of you still believe in optimism. I have been hearing that my whole life, that a cure would come soon, just because it hasn't come yet, I'm not going to stop hoping that it will. People say these things based on the rate of progress with gene therapy and such, and...
  2. T

    My PFT's are down... any advice?

    yeah used mucomyst years and years ago, I never realized they still prescribed it. No one has prescribed that for me in years. Its just really hard to looson anything up cuz my chest hurts when I cough.. it feels like the pluerisy that i had on the other side, a month ago. I think i'm gonna...
  3. T

    My PFT's are down... any advice?

    yeah used mucomyst years and years ago, I never realized they still prescribed it. No one has prescribed that for me in years. Its just really hard to looson anything up cuz my chest hurts when I cough.. it feels like the pluerisy that i had on the other side, a month ago. I think i'm gonna...
  4. T

    My PFT's are down... any advice?

    yeah used mucomyst years and years ago, I never realized they still prescribed it. No one has prescribed that for me in years. Its just really hard to looson anything up cuz my chest hurts when I cough.. it feels like the pluerisy that i had on the other side, a month ago. I think i'm gonna...
  5. T

    My PFT's are down... any advice?

    Sonia, you pretty much hit the nail on the head.. that is my biggest cause for hesitation, the fear of my bugs becoming resistant to the only iv drugs that are able to treat them. I have like three different bugs and they all have different sensitivities , but they are really only resistant to...
  6. T

    My PFT's are down... any advice?

    Sonia, you pretty much hit the nail on the head.. that is my biggest cause for hesitation, the fear of my bugs becoming resistant to the only iv drugs that are able to treat them. I have like three different bugs and they all have different sensitivities , but they are really only resistant to...
  7. T

    My PFT's are down... any advice?

    Sonia, you pretty much hit the nail on the head.. that is my biggest cause for hesitation, the fear of my bugs becoming resistant to the only iv drugs that are able to treat them. I have like three different bugs and they all have different sensitivities , but they are really only resistant to...
  8. T

    My PFT's are down... any advice?

    I won't go into that danger zone, trust me... When my chest was hurting the last time I went into the hospital, I left to go into the ER at 1 am, because it was hurting so bad i thought I might have a collapsed lung. Turned out to be pluerisy, which is extremely painful... That just went away a...
  9. T

    My PFT's are down... any advice?

    I won't go into that danger zone, trust me... When my chest was hurting the last time I went into the hospital, I left to go into the ER at 1 am, because it was hurting so bad i thought I might have a collapsed lung. Turned out to be pluerisy, which is extremely painful... That just went away a...
  10. T

    My PFT's are down... any advice?

    I won't go into that danger zone, trust me... When my chest was hurting the last time I went into the hospital, I left to go into the ER at 1 am, because it was hurting so bad i thought I might have a collapsed lung. Turned out to be pluerisy, which is extremely painful... That just went away a...
  11. T

    coughing at night

    I really don't know if its a good thing or a bad thing. It happens to me a lot. Do you sleep elevated, drink lots of fluids, and do lots of treatment?
  12. T

    coughing at night

    I really don't know if its a good thing or a bad thing. It happens to me a lot. Do you sleep elevated, drink lots of fluids, and do lots of treatment?
  13. T

    coughing at night

    I really don't know if its a good thing or a bad thing. It happens to me a lot. Do you sleep elevated, drink lots of fluids, and do lots of treatment?
  14. T

    Girl with CF on The View

    aww. yall are making me depressed.. no one thinks a cure is possible in our lifetimes?? That's a downer.
  15. T

    Girl with CF on The View

    aww. yall are making me depressed.. no one thinks a cure is possible in our lifetimes?? That's a downer.
  16. T

    Girl with CF on The View

    aww. yall are making me depressed.. no one thinks a cure is possible in our lifetimes?? That's a downer.
  17. T

    My PFT's are down... any advice?

    Thanks, Debi, prednisone used to work wonders for me, but the last time I begged my doctor to put me on it a couple of months ago, it didn't do anything for me. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I am hoping the Cipro will help, but I'm willing to give it until New...
  18. T

    My PFT's are down... any advice?

    Thanks, Debi, prednisone used to work wonders for me, but the last time I begged my doctor to put me on it a couple of months ago, it didn't do anything for me. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I am hoping the Cipro will help, but I'm willing to give it until New...
  19. T

    My PFT's are down... any advice?

    Thanks, Debi, prednisone used to work wonders for me, but the last time I begged my doctor to put me on it a couple of months ago, it didn't do anything for me. <img src="i/expressions/face-icon-small-sad.gif" border="0"> I am hoping the Cipro will help, but I'm willing to give it until New...
  20. T

    Girl with CF on The View

    I don't watch the view. But no matter what people say, I like Rosie! <img src="i/expressions/face-icon-small-smile.gif" border="0">
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