Cystic Fibrosis Forum (EXP)

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  1. T

    Girl with CF on The View

    I don't watch the view. But no matter what people say, I like Rosie! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  2. T

    Girl with CF on The View

    I don't watch the view. But no matter what people say, I like Rosie! <img src="i/expressions/face-icon-small-smile.gif" border="0">
  3. T

    My PFT's are down... any advice?

    mine is at 46% right now. Thats really low for me... it has been lower earlier this year though. It just really scares me. And it is hard to do agressive treatments when I've been having chest pain off and on for over a month. (pluerisy, and now i think my lungs are just sore from so much...
  4. T

    My PFT's are down... any advice?

    mine is at 46% right now. Thats really low for me... it has been lower earlier this year though. It just really scares me. And it is hard to do agressive treatments when I've been having chest pain off and on for over a month. (pluerisy, and now i think my lungs are just sore from so much...
  5. T

    My PFT's are down... any advice?

    mine is at 46% right now. Thats really low for me... it has been lower earlier this year though. It just really scares me. And it is hard to do agressive treatments when I've been having chest pain off and on for over a month. (pluerisy, and now i think my lungs are just sore from so much...
  6. T

    My PFT's are down... any advice?

    Thanks Diane, that sounds like some good tips. Lots of people have been telling me to take vitamin c. I should go and buy some. And the whole sneaking excersize, is a good idea too, but even that takes motivation sometimes, lol. I'm a big fan of vicks too. Little by little I'm starting to...
  7. T

    My PFT's are down... any advice?

    Thanks Diane, that sounds like some good tips. Lots of people have been telling me to take vitamin c. I should go and buy some. And the whole sneaking excersize, is a good idea too, but even that takes motivation sometimes, lol. I'm a big fan of vicks too. Little by little I'm starting to...
  8. T

    My PFT's are down... any advice?

    Thanks Diane, that sounds like some good tips. Lots of people have been telling me to take vitamin c. I should go and buy some. And the whole sneaking excersize, is a good idea too, but even that takes motivation sometimes, lol. I'm a big fan of vicks too. Little by little I'm starting to...
  9. T

    My PFT's are down... any advice?

    yeah i had one before, had it for like 3 years, You could barely notice it, I had a pediatric port, in my chest, and it was deep in my tissues. Had to have it removed because I had a blood fungus, so I've been using piccs the past few years.
  10. T

    My PFT's are down... any advice?

    yeah i had one before, had it for like 3 years, You could barely notice it, I had a pediatric port, in my chest, and it was deep in my tissues. Had to have it removed because I had a blood fungus, so I've been using piccs the past few years.
  11. T

    My PFT's are down... any advice?

    yeah i had one before, had it for like 3 years, You could barely notice it, I had a pediatric port, in my chest, and it was deep in my tissues. Had to have it removed because I had a blood fungus, so I've been using piccs the past few years.
  12. T

    My PFT's are down... any advice?

    I just don't want to go through this all again yet, because for me two months is too soon! Its usually at least three or four months apart between the times that I am on iv's ... and the last time they had so much trouble getting the picc line in... I am afraid that they will have to put a...
  13. T

    My PFT's are down... any advice?

    I just don't want to go through this all again yet, because for me two months is too soon! Its usually at least three or four months apart between the times that I am on iv's ... and the last time they had so much trouble getting the picc line in... I am afraid that they will have to put a...
  14. T

    My PFT's are down... any advice?

    I just don't want to go through this all again yet, because for me two months is too soon! Its usually at least three or four months apart between the times that I am on iv's ... and the last time they had so much trouble getting the picc line in... I am afraid that they will have to put a...
  15. T

    My PFT's are down... any advice?

    I dunno, its like if the doc thinks cipro might help, I want to give it a try at least, because I am so sick of the picc lines and scars all over my arms and having to remember all those iv meds by myself. I don't have much help, and I hardly get any time to sleep,I end up missing doses. It's...
  16. T

    My PFT's are down... any advice?

    I dunno, its like if the doc thinks cipro might help, I want to give it a try at least, because I am so sick of the picc lines and scars all over my arms and having to remember all those iv meds by myself. I don't have much help, and I hardly get any time to sleep,I end up missing doses. It's...
  17. T

    My PFT's are down... any advice?

    I dunno, its like if the doc thinks cipro might help, I want to give it a try at least, because I am so sick of the picc lines and scars all over my arms and having to remember all those iv meds by myself. I don't have much help, and I hardly get any time to sleep,I end up missing doses. It's...
  18. T

    My PFT's are down... any advice?

    I'm depressed. I've been coughing really badly lately, and I went to the doctor yesterday. My numbers are down. I feel like I've been doing everything right, three long vest treatments every day, duoneb with each vest treatment, hypertonic saline twice a day, pulmozyme twice a day... And I only...
  19. T

    My PFT's are down... any advice?

    I'm depressed. I've been coughing really badly lately, and I went to the doctor yesterday. My numbers are down. I feel like I've been doing everything right, three long vest treatments every day, duoneb with each vest treatment, hypertonic saline twice a day, pulmozyme twice a day... And I only...
  20. T

    My PFT's are down... any advice?

    I'm depressed. I've been coughing really badly lately, and I went to the doctor yesterday. My numbers are down. I feel like I've been doing everything right, three long vest treatments every day, duoneb with each vest treatment, hypertonic saline twice a day, pulmozyme twice a day... And I only...
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