Cystic Fibrosis Forum (EXP)

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  1. A

    anyone dx'd with CF without known mutations?

    Hi! My son was cleared of having CF last spring after Genzyme amplified genetic testing came up finding no mutations. He had a borerline/positive sweat test and failure to thrive which prompted the CF testing last winter. We were very relieved to find out he did not have CF; however, he now...
  2. A

    anyone dx'd with CF without known mutations?

    Hi! My son was cleared of having CF last spring after Genzyme amplified genetic testing came up finding no mutations. He had a borerline/positive sweat test and failure to thrive which prompted the CF testing last winter. We were very relieved to find out he did not have CF; however, he now...
  3. A

    anyone dx'd with CF without known mutations?

    Hi! My son was cleared of having CF last spring after Genzyme amplified genetic testing came up finding no mutations. He had a borerline/positive sweat test and failure to thrive which prompted the CF testing last winter. We were very relieved to find out he did not have CF; however, he now...
  4. A

    anyone dx'd with CF without known mutations?

    Hi! My son was cleared of having CF last spring after Genzyme amplified genetic testing came up finding no mutations. He had a borerline/positive sweat test and failure to thrive which prompted the CF testing last winter. We were very relieved to find out he did not have CF; however, he now...
  5. A

    anyone dx'd with CF without known mutations?

    Hi! My son was cleared of having CF last spring after Genzyme amplified genetic testing came up finding no mutations. He had a borerline/positive sweat test and failure to thrive which prompted the CF testing last winter. We were very relieved to find out he did not have CF; however, he now...
  6. A

    Test results and Nissen surgery

    Thanks for your reply, that makes me feel a lot better. He has been on a prilosec and prevacid, but they did not make a difference with the reflux. He has been on reflux medicine for over 4 years with no improvement. I just want to know we are making the right decision for him.
  7. A

    Test results and Nissen surgery

    Thanks for your reply, that makes me feel a lot better. He has been on a prilosec and prevacid, but they did not make a difference with the reflux. He has been on reflux medicine for over 4 years with no improvement. I just want to know we are making the right decision for him.
  8. A

    Test results and Nissen surgery

    Thanks for your reply, that makes me feel a lot better. He has been on a prilosec and prevacid, but they did not make a difference with the reflux. He has been on reflux medicine for over 4 years with no improvement. I just want to know we are making the right decision for him.
  9. A

    Test results and Nissen surgery

    Thanks for your reply, that makes me feel a lot better. He has been on a prilosec and prevacid, but they did not make a difference with the reflux. He has been on reflux medicine for over 4 years with no improvement. I just want to know we are making the right decision for him.
  10. A

    Test results and Nissen surgery

    Thanks for your reply, that makes me feel a lot better. He has been on a prilosec and prevacid, but they did not make a difference with the reflux. He has been on reflux medicine for over 4 years with no improvement. I just want to know we are making the right decision for him. <br />
  11. A

    Test results and Nissen surgery

    Hi everyone! Just wanted to keep you updated about my son. His upper GI and endoscopy results came back and it showed that he has inflammation in his esophagus consistent with reflux. The biopsy showed basal cells and eosinophil cells and the DR. said that his esophagus was very sensitive to...
  12. A

    Test results and Nissen surgery

    Hi everyone! Just wanted to keep you updated about my son. His upper GI and endoscopy results came back and it showed that he has inflammation in his esophagus consistent with reflux. The biopsy showed basal cells and eosinophil cells and the DR. said that his esophagus was very sensitive to...
  13. A

    Test results and Nissen surgery

    Hi everyone! Just wanted to keep you updated about my son. His upper GI and endoscopy results came back and it showed that he has inflammation in his esophagus consistent with reflux. The biopsy showed basal cells and eosinophil cells and the DR. said that his esophagus was very sensitive to...
  14. A

    Test results and Nissen surgery

    Hi everyone! Just wanted to keep you updated about my son. His upper GI and endoscopy results came back and it showed that he has inflammation in his esophagus consistent with reflux. The biopsy showed basal cells and eosinophil cells and the DR. said that his esophagus was very sensitive to...
  15. A

    Test results and Nissen surgery

    Hi everyone! Just wanted to keep you updated about my son. His upper GI and endoscopy results came back and it showed that he has inflammation in his esophagus consistent with reflux. The biopsy showed basal cells and eosinophil cells and the DR. said that his esophagus was very sensitive to...
  16. A

    Sweat test results - Very Frustrated - Vent

    We also went through limbo diagnosis for many months. My son had a 57 sweat test and his Genzyme amplified genetic test just came back negative, so the cf dr. said no cf, and sent us to a GI specialist. The Cf dr. still wants to follow my son for asthma and allergies though. Best wishes to...
  17. A

    Sweat test results - Very Frustrated - Vent

    We also went through limbo diagnosis for many months. My son had a 57 sweat test and his Genzyme amplified genetic test just came back negative, so the cf dr. said no cf, and sent us to a GI specialist. The Cf dr. still wants to follow my son for asthma and allergies though. Best wishes to...
  18. A

    Sweat test results - Very Frustrated - Vent

    We also went through limbo diagnosis for many months. My son had a 57 sweat test and his Genzyme amplified genetic test just came back negative, so the cf dr. said no cf, and sent us to a GI specialist. The Cf dr. still wants to follow my son for asthma and allergies though. Best wishes to...
  19. A

    Sweat test results - Very Frustrated - Vent

    We also went through limbo diagnosis for many months. My son had a 57 sweat test and his Genzyme amplified genetic test just came back negative, so the cf dr. said no cf, and sent us to a GI specialist. The Cf dr. still wants to follow my son for asthma and allergies though. Best wishes to...
  20. A

    Sweat test results - Very Frustrated - Vent

    We also went through limbo diagnosis for many months. My son had a 57 sweat test and his Genzyme amplified genetic test just came back negative, so the cf dr. said no cf, and sent us to a GI specialist. The Cf dr. still wants to follow my son for asthma and allergies though. Best wishes to...
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