Cystic Fibrosis Forum (EXP)

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  1. A

    Update on diagnosis

    I so appreciate your responses. I feel a lot better about him having the scope done for good reason. I just didn't wnt him to go through invasive testing (again!) if it really wasn't going to show anything, but now I realize that it really needs to be done. I just really wonder what he has...
  2. A

    Update on diagnosis

    I so appreciate your responses. I feel a lot better about him having the scope done for good reason. I just didn't wnt him to go through invasive testing (again!) if it really wasn't going to show anything, but now I realize that it really needs to be done. I just really wonder what he has...
  3. A

    Update on diagnosis

    I so appreciate your responses. I feel a lot better about him having the scope done for good reason. I just didn't wnt him to go through invasive testing (again!) if it really wasn't going to show anything, but now I realize that it really needs to be done. I just really wonder what he has...
  4. A

    Update on diagnosis

    I so appreciate your responses. I feel a lot better about him having the scope done for good reason. I just didn't wnt him to go through invasive testing (again!) if it really wasn't going to show anything, but now I realize that it really needs to be done. I just really wonder what he has...
  5. A

    Update on diagnosis

    I so appreciate your responses. I feel a lot better about him having the scope done for good reason. I just didn't wnt him to go through invasive testing (again!) if it really wasn't going to show anything, but now I realize that it really needs to be done. I just really wonder what he has...
  6. A

    Update on diagnosis

    Thanks for your replies! Couple of questions...Can someone still have CF, but be PS <i>and</i> failure to thrive? Can a stool elastase test be wrong if the sample was a constipated sample(it was not his usual bm)? It just seems so obvious to us that he has an absorption problem-he even has to...
  7. A

    Update on diagnosis

    Thanks for your replies! Couple of questions...Can someone still have CF, but be PS <i>and</i> failure to thrive? Can a stool elastase test be wrong if the sample was a constipated sample(it was not his usual bm)? It just seems so obvious to us that he has an absorption problem-he even has to...
  8. A

    Update on diagnosis

    Thanks for your replies! Couple of questions...Can someone still have CF, but be PS <i>and</i> failure to thrive? Can a stool elastase test be wrong if the sample was a constipated sample(it was not his usual bm)? It just seems so obvious to us that he has an absorption problem-he even has to...
  9. A

    Update on diagnosis

    Thanks for your replies! Couple of questions...Can someone still have CF, but be PS <i>and</i> failure to thrive? Can a stool elastase test be wrong if the sample was a constipated sample(it was not his usual bm)? It just seems so obvious to us that he has an absorption problem-he even has to...
  10. A

    Update on diagnosis

    Thanks for your replies! <br /> <br />Couple of questions...Can someone still have CF, but be PS <i>and</i> failure to thrive? Can a stool elastase test be wrong if the sample was a constipated sample(it was not his usual bm)? It just seems so obvious to us that he has an absorption problem-he...
  11. A

    Update on diagnosis

    Hi everyone! Just wanted to let you know the latest on our diagnosis status. My 10 year old son was referred to the CF clinic because of a high borderline sweat test last January- 2 CF clinics, a MRSA culture and another specialist appt. later, his amplified genzyme genetic test came back with...
  12. A

    Update on diagnosis

    Hi everyone! Just wanted to let you know the latest on our diagnosis status. My 10 year old son was referred to the CF clinic because of a high borderline sweat test last January- 2 CF clinics, a MRSA culture and another specialist appt. later, his amplified genzyme genetic test came back with...
  13. A

    Update on diagnosis

    Hi everyone! Just wanted to let you know the latest on our diagnosis status. My 10 year old son was referred to the CF clinic because of a high borderline sweat test last January- 2 CF clinics, a MRSA culture and another specialist appt. later, his amplified genzyme genetic test came back with...
  14. A

    Update on diagnosis

    Hi everyone! Just wanted to let you know the latest on our diagnosis status. My 10 year old son was referred to the CF clinic because of a high borderline sweat test last January- 2 CF clinics, a MRSA culture and another specialist appt. later, his amplified genzyme genetic test came back with...
  15. A

    Update on diagnosis

    Hi everyone! Just wanted to let you know the latest on our diagnosis status. My 10 year old son was referred to the CF clinic because of a high borderline sweat test last January- 2 CF clinics, a MRSA culture and another specialist appt. later, his amplified genzyme genetic test came back with...
  16. A

    Confused and Scared

    Hi there, I just wanted to let you know that we are going through the same thing you are right now. My son is 10 and is 49" and 51 lbs. He was referred for testing for failure to thrive, his sweat test was 57 and we are waiting on the amplified genetic testing by genzyme. He has a lot of...
  17. A

    Confused and Scared

    Hi there, I just wanted to let you know that we are going through the same thing you are right now. My son is 10 and is 49" and 51 lbs. He was referred for testing for failure to thrive, his sweat test was 57 and we are waiting on the amplified genetic testing by genzyme. He has a lot of...
  18. A

    Confused and Scared

    Hi there, I just wanted to let you know that we are going through the same thing you are right now. My son is 10 and is 49" and 51 lbs. He was referred for testing for failure to thrive, his sweat test was 57 and we are waiting on the amplified genetic testing by genzyme. He has a lot of...
  19. A

    Confused and Scared

    Hi there, I just wanted to let you know that we are going through the same thing you are right now. My son is 10 and is 49" and 51 lbs. He was referred for testing for failure to thrive, his sweat test was 57 and we are waiting on the amplified genetic testing by genzyme. He has a lot of...
  20. A

    Confused and Scared

    Hi there, I just wanted to let you know that we are going through the same thing you are right now. My son is 10 and is 49" and 51 lbs. He was referred for testing for failure to thrive, his sweat test was 57 and we are waiting on the amplified genetic testing by genzyme. He has a lot of...
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