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I reached out to Representative Eric Swalwell of California: Rep Swalwell! Very sorry to hear your daughter Cricket was in the hospital for arespiratory infection. We are a community with Cystic Fibrosis and we know how hard it is to breathe! We are running a pilot for patients to be paid...

The fight to get Vertex’s cystic fibrosis drug Orkambi available on England’s NHS continues, after pressure groups called on the government to implement a little-known law allowing to set aside patents and provide drugs for the benefit of society at a much cheaper price. A patient-led...

I was interested to learn there is a Blockchain Caucus in the US government. Are your Representatives involved? https://www.congressionalblockchaincaucus.com/ Members:Congressman David Schweikert, Congressman Bill Foster, Congressman Tom Emmer, Congressman Darren Soto, Congressman John Delaney...

I went to the Blockchain Conference at the Beth Israel Deaconess Hospital in Boston last Thursday, January 31. It was an elite group of scientists and I had the opportunity to present our survey results for: Discovery, Research, and Profit. Your voices were HEARD! I will continue to report...

Do you know or have connections with http://www.akita-jet.com/ ? It should be a far better aerosol than our current one (the ones you have as well). The one we have is not able to deal with the 5 aerosols a day. It costs us an arm and a leg to keep it running :s

This in from a Dad in Europe.... Do you know about patients who sleep in an altitude tent? (http://altitudedream.com/en/) It clears the air and delivers more pure oxygen. It's expensive! Would like suggestions.

Wondering if this is available?

A Purdue University drug formulation incorporates two antibiotics to help fight the global crisis of antimicrobial resistance.

Eloxx Pharmaceuticals CEO Bob Ward is cognizant that one day, emerging science could usurp his company's approach to treating genetic diseases. While many biotechs are testing more experimental means of treating some of the 1,800 genetic diseases that impair the body's ability to produce...

Purdue University researchers have developed a new approach to treating the fourth-leading cause of death worldwide – lower respiratory infections. Lung infections, often caused by multi-drug-resistant bacteria, are deadly because the ‘superbugs’ are resistant to all available antibiotics...

https://www.bloomberg.com/news/articles/2018-06-15/deleting-your-online-dna-data-is-brutally-difficult Companies who use your DNA should compensate you for it! This is what is happening with Blockchain technologies. Stay tuned! Salt and Light, Imogene

Aridis is a late-stage biopharmaceutical company focused on discovering and developing innovative anti-infectives, such as targeted immunotherapies using fully human monoclonal antibodies (mAbs) to treat life-threatening infections. “AR-501 has the potential to offer patients more convenient...

Stella Grant (Haley Lu Richardson) is every bit a seventeen-year-old: she’s attached to her laptop and loves her best friends. But unlike most teenagers, she spends much of her time living in a hospital as a cystic fibrosis patient. Her life is full of routines, boundaries and self-control...

I am back from a very successful trip to Glasgow to speak at the ieee.org conference on Blockchain for Clinical Trials. Lots of positive feedback. I brought YOU the Patients and Caregivers. I brought the surveys and all your comments! Who was there? Pharma: Novartis, Roche, Vertex, UCB...

https://pharmaphorum.com/top-stories/vertex-told-to-reveal-cf-drug-price-as-mps-begin/?utm_source=pharmaphorum+Top+Stories&utm_campaign=a6a14f4bdb-EMAIL_CAMPAIGN_2018_11_09_02_59&utm_medium=email&utm_term=0_b64138c678-a6a14f4bdb-439186353

Leaving tomorrow! On a jet plane...carrying all your important surveys! More to come! Data turning to information you can RENT?!!!

My presentation is almost ready! I speak in Glasgow next week! Bockchain for Clinical Trials: https://blockchain.ieee.org/standards/clinicaltrialseurope18 In Europe it is a LAW that people control their own data. Blockchain is the technology to keep the data private and turn it into...

https://pharmaphorum.com/news/vertex-european-approval-cystic-fibrosis/?utm_source=pharmaphorum+Daily+Newsletter&utm_campaign=d338668281-EMAIL_CAMPAIGN_2018_10_31_12_30_COPY_01&utm_medium=email&utm_term=0_a54496134b-d338668281-431716241

I will be on my way to Glasgow! This is the "kickoff": Patients renting their data. This is "in line" with the GDPR which is a "tidal wave" as member Koen Vingerhoets states! I am bringing the data from the recent surveys! "Discovery, Research, and Profit" and " Blockchain for Clinical...

So Grateful! 193 Participants. Closing at 200! And the 175th participant was from Germany. Hopefully, they received a 25 euro card from amazon.de! It was my first time trying... Thanks to all! I have so much of your good words and survey results to bring to Glasgow and beyond. I will share...