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VA MOM: When you list in your profile "HIGHEST LEVEL OF EDUCATION" Prefer not to answer. This answer spells so much about you. Your ignorance of the lung donor program is only exceeded by your ignorance of obamacare You are indeed entitled to your own opinion, you however, are not entitled to...

LL When you look at the profile of this author of self inflated wisdom, you will find that he hasn't finished High School. When one is this ignorant of the facts it is easy to be a self proclaimed expert on all subjects known to mankind. Bill

I would suggest that you discuss with your CF Specialist, Bacterial Overgrowth & Stool Build Up in the Colon. These issues are very "curable". Bill

NO!!!!!!!!!!!!!!!

Julieta79: How many mutations was he tested for? Bill

Raakel: I'm male 73 with CF. Your symptoms are classic. I don't know anything about the medical system in Finland but you should not wait. Get yourself into a CF Clinic right away. Bill

Soya: I know exactly what you are talking about. Google Steven D. Freedman, MD, PhD. He is located in Boston. He only sees patients on Friday's. You could fly up on a Thursday and fly back of Saturday or Sunday. This could be a life changing appointment for you. Hopefully, some of Steve's...

I am 73 and I go to the Adult CF Clinic At Boston Children's Hospital. I am not even the oldest person who goes to that Clinic. Things will work out for you and your son. CF is not the same disease that it was, even 10 years ago. Bill

The normal blood test that is given to everyone, DOES NOT work for CF patients. The only test that is effective is the fasting glucose. With your symptoms, you should request it. Bill

My advice is, go to the CF Center, see the CF Doctor. Have him do a history and a complete work up. There are no shortcuts to be taken here.

There is an Adult CF Clinic at the Indiana University Medical Center. Michael Ober, MD, is the Director. (317) 948-3267. Good luck, Bill

I would love that, if it is true. Bill

I was told, by the leading adult CF-GI researcher in the US, that there seems to be no benefit, to the pancreas, from Kalydeco. Bill

Please listen to everyone who posted here. You need to go to an APPROVED CYSTIC FIBROSIS CLINIC and you need to be seen by a CYSTIC FIBROSIS SPECIALIST. Stop wasting your time and money on local Doctors. If you will tell us where you live (nearest large city) we will give you the info on your...

John: Why do you feel that Ambry is better than, say, Genzyme or other outstanding labs? Bill

It is most likely an insurance company issue, they don't want to pay for the delete/duplication. My feeling is, if you can afford to pay for it, do the test. Bill

The world is full of Doctors who can't even spell CF, much less treat a patient with it. All of these issues should be discussed with her CF Specialist. Sleep apneas are common with CF and should also be discussed with the CF Team. And yes, for the past 20 years, with the knowledge of my CF...

Calimom, you nailed this one, perfect answer. Keep up the good work. Bill

Yes Jenny, you will deal with it. I have been a CF patient for 26 years. I have been a patient at the CF Clinic at The Massachusetts General Hospital and most recently at Boston Children's. In 26 years, I have never seen a CF patient who doesn't have a cough. Additionally,. If you didn't...

Yes Jenny, you will deal with it. I have been a CF patient for 26 years. I have been a patient at the CF Clinic at The Massachusetts General Hospital and most recently at Boston Children's. In 26 years, I have never seen a CF patient who doesn't have a cough. Additionally,. If you didn't...