Cystic Fibrosis Forum (EXP)

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  1. P

    How to deal w extended family without a FAMILY FEUD ???

    Your BF's Brother-in law and Sister are NURSES!!! You need to understand that they fully understand your situation. They have chosen to ignore your needs in order to accommodate their needs, ie their children. This situation will only get better when the children are much older. Their...
  2. P

    How to deal w extended family without a FAMILY FEUD ???

    Look, you have two choices. One, you can die. If you don't want that, tell BF that you are leaving him. Bill
  3. P

    Just a vent.....

    I would suggest that you contact the author of that article with the intent of educating him/her. Bill
  4. P

    Confused about mixing Colistin

    Call them!
  5. P

    What lung percentage do normal people my age have and how much does that...?

    The average person of your age, height and weight would test at 100%. Everything is factored from that. Bill
  6. P

    Help, Don't Know What to Do

    Never put off calling your CF Doctor, call ASAP. If you can't reach the CF Team, go to the ER in the hospital where your CF Team is located. Bill
  7. P

    Help! Sterilizing

    Top shelf of dishwasher works well. Bill
  8. P

    Source CF Softgels

    Source CF vitamins are on a 6 month back order. At my Clinic appointment today, they gave me samples of AQUADEKs. Bill
  9. P

    Don't know what to do

    Albino15: I was waiting for your Amen Bill
  10. P

    Don't know what to do

    God, please save us from Mothers who, because they have given birth, believe that they know more about CF than the CF Team at the hospital and by their actions bring upon a deterioration of health to their child. I ask this in your name. Bill
  11. P

    Rectal biopsy using biopsy from past colonoscopy?

    Hi Julie: The biopsy required for a CF test is much less invasive than for a colonoscopy. Much, much less sedation. Having said that, do they save the previous test? Bill
  12. P

    Help please GI problems!!!!!

    KXRAY 328: I have sent you a Personal Message. Bill
  13. P

    Another baby

    sdavis227: I stand corrected. You are correct. Bill
  14. P

    Bowel Obstruction Aftermath

    Steven Freedman, MD, PhD, GI-CF Specialist, CF Researcher (you can google him) determined through a trial and error approach that lasted several months, what my correct dose of enzymes should be. I am well beyond the manufacturers SUGGESTED limits for enzymes and have been for many years. I...
  15. P

    Another baby

    Sarah: I don't "need to educate" myself on the subject of PGD any more than you need to educate yourself on the Constitutional rights of free speech. The information that these very nice women have furnished is sufficient for the time being. Additionally, there is no correlation between my...
  16. P

    Another baby

    Hope: Just Google PGD. It really works. Bill
  17. P

    Traveling with a carry-on

    When you travel, what kind of compressor, used to work with your vest, do you bring with you? Bill
  18. P

    Another baby

    Thanks, Autumn. In some things I'm very ignorant. Bill
  19. P

    Another baby

    Jenny: If that is doable, them I would be all for it. There only child is DD F508 Bill
  20. P

    Another baby

    I won't attempt to speak for anyone else but I am shocked that anyone could be so selfish and cruel to intentionally bring a child into this world knowing that there is a 50% chance that child will have CF. Bill
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