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Jenny: If the Doctor stops your son's cough, please post here so we can all benefit. I've been coughing for 73 ears and I would love to stop. Bill

Where do you live (nearest large city)? Bill

Wait until he does have insurance. I waited 53 years to find my first mutation and another 17 years to find the second one. Bill

Is he being seen at an APPROVED CF CENTER by a CF SPECIALIST?

There may not be relief to be had other than his inhalers. Some of us go through life with a cough. Bill

What does his CYSTIC FIBROSIS SPECIALIST say about the cough? Bill

You need to have your CF Doctor draw blood and send it for a FULL CF SEQUENCING. Bill

OK you had a genetic test that was evidently negative. The initial screening, on a genetic test, is 39 most common mutations. A second test is for 100 mutations. There are almost 2000 known mutations, any 2 will give you CF. You need to go to an APPROVED CF CLINIC and see a CF SPECIALIST...

Yes!!!!!!!!!!!!

I don't have a problem with someone on disability going to PT nor do I have a problem with that person seeing a Personal Trainer. My problem is with weight lifters, basketball players, etc. ps My 22nd Great Grandfather was King William I of Scotland (1143-1214).

Soya: I took the time to look up the Social Security Administration's definition of disability, it is as follows: You cannot do work that you did before. We (SSA) decide that you cannot adjust to other work because of your medical condition, and Your disability has lasted or is expected to...

Soya: It is one thing to go to the gym after work, it is another thing to go to the gym when you (editorial you) claim to be too sick to do any kind of work because of "disability". I say this as someone who played College Varsity Basketball and who worked 5 summers as a lifeguard on an...

I am 73 years of age and I have CF. I understand that there are many CF patients who could not survive without SS Disability and thank God that then can benefit from SS and SSI. I had a friend who was seriously wounded in WWII. He got a sizeable benefit check every month. He said "I would...

There is nothing borderline with a result of DOUBLE DELTA F508. It means that he has two mutations, each being Delta F508. He has Cystic Fibrosis. Bill

Does the water at school taste gross?

Excessive gas can be caused by bacterial overgrowth in the colon. Bill

Jane: Everyday I learn something new. Thanks Bill

Obviously, I am a adult and I see a Doctor who specializes in adult CF patients. While I am in clinic, I see parents with their children on the same floor at the same time going to see their CF Doctor The way that they are treated is the same as I get, check in, go into an exam room, etc. I...

My Clinic is Boston Children's. They DO NOT HAVE A WAITING ROOM. As soon as you check in you are taken to a exam room. In there you will see anyone on the CF Team that you are scheduled/want to see. PFT's, blood. sputum, etc are all taken in this room. You had better bring your own reading...

I was dx at age 47. I have never heard of CF symptoms similar to yours. Having said that, I would do two things. Contact your nearest Approver CF Clinic and request a sweat test and make an appointment with the Neurology Department at the largest Teaching Hospital that you can get to. Bill