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Tell your Doctor to refer you to an APPROVED CF CENTER to see an CF SPECIALIST. If he/she refuses, tell him/her that you will find a Primary Physician who will refer you. Your health is more important than this Doctors ego. Bill

A sweat test is not a genetic test. The sweat test that is done at a local hospital is not the same sweat test that is administered at a APPROVED CF CLINIC. You know the drill. take her to the same CF Doctor that your other kids see. Bill

Your son was tested for 39 mutations, there are almost 2000 mutations, any combination of two (2) will cause CF. Forget about that test. The screening sweat that was done at the local hospital is very different than what is done at a CF CLINIC. You should ignore that screening also. You...

Again I will say his OP was dated 12-23-2012 at 11:23 am. If you are not going to research this issue then you just DO NOT KNOW WHAT IS GOING ON. I am not very interested in your opinion under any conditions but if you express it from a basis of ignorance of the history, I am even less...

Jenn: You misunderstand. I don't "feel slighted", I feel that I am under a constant personal attack. You need to read his OP. Bill

You will note that his last remark was how I was like his "CRAZY UNCLE". Bill

I reserve the right to respond to any and all personal attacks that are directed at me. I would refer you to a post by LaChamp dated 12-23-2012 at 11:23 am. It was my first contact with this individual. He has been relentless in his continued personal attacks. I do not suffer fools easily...

If she doesn't take enzymes, she will have stomach aches. Soon she will learn it is best to take enzymes. Even at age 1. Bill

Very true, Champ, if all that you know about CF is from the waist up. Research CF and PANCREATITIS. Between bon-bons. Bill

No Champ, I'm 73 now with a FEV1 or 72%. Still active and not collecting welfare. Bill

Champ: I can see why many things would be an embarrassment to you. Like you I do spend time at my computer. I come here to get and give information. After 72 years I thought it would be good to check out my family tree so I spend time on Ancestry.com. Retirement has been good to me. Unlike...

Moxie: I sent you a personal message. Bill

It is the insurance companies.

Jenny: I stand corrected. He is the Director of the Adult Program but is not listed on the CFF web site. Only Doctors Bernie Mc Williams and Allan Frank are listed as Directors (peads). Thank you, Bill

OK (For example) Massachusetts General Hospital Hospital is an Approved CF Clinic. They have more than 2000 Doctors on staff and another 1000 Doctors who are affiliated with MGH. Only seven Doctors (all on staff) are CF Specialists. You do what is best for you but he is not a CF Specialist...

Children's Hospital of Philadelphia is one of the best CF Clinics in the US. Just be sure to see a CF SPECIALIST. Ronald Rubenstine, MD is the Director of the CF Clinic. The phone is 215-590-3749. Bill

Super: I just looked up the approved cf clinics in Austin Tx and Children's Chest Associates is not one of them. Go to The Cystic Fibrosis Foundation Website and look for Clinic Network and see foe your self. cff.org Dell is listed. Bill

Yea Champ. I can see where it would be difficult for you to control yourself. Bill

Newborn screenings tests for only 39 known mutations. There are almost 2000 known mutations any 2 of which will cause CF. Forget about that screening. Tell your Doctor that you want a referral to an APPROVED CF CLINIC to see a CF SPECIALIST. If she does not agree, tell her that you will find...

Yes there is something that you should be looking for, an APPROVED CF CLINIC an a CF SPECIALIST. Bill