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RobbieKay "I am a mom of a cfer who is 22 yrs old his name is Michael. I personal do smoke mm for anziety to help me sleep. Michael has benn on a decline for about a year, and has gotten very thin I have been wondering my self if mm would be a good choice for him to maybe stimulate his appetite...

Sometimes I feel like a living mass spectrometer. The saline shunt from an IV hits like a skunk, but in taste, and that is a minuscule amount of salt. At this point I am outnumbered where the logic of increased amounts of salt for CFers sounds so convincing. The average American is dehydrated...

My apologies. I did consider a weight problem that could lean toward obesity as a problem but neglected to include it specifically. The root problem either way easily could be endocrine, and I should have been clear. A little weight one way or the other isn't usually serious but low body mass...

Wait a minute! Doesn't ibuprofen reduce blood clotting? I'd suspend ibuprofen in trade for Tylenol (acetaminophen). And sorry, but heat at best is half right. If you wish to alternate between hot packs and cold packs it may not do added good except people usually feel better having warmth after...

You have me on what might be happening but I think "things in the air and soil" as one possibility is a good guess. As a Senior member you should be aware of high blood pressure and nose bleeds. If you have deep arteries and veins in your nose as a lot of steroid sniffing CFers like me do...

Great post!! I do my best to support finding a cure for CF. Just in the last decade, enormous advances in the diagnosis and teatment of CF have been placed at our feet. That is worth some support.LL

Cystic Fibrosis Related Diabetes (CFRD) was one of a hundred new terms and acronyms when I was diagnosed at 52. It seems some countries have usurped CFRD to be CF Related Disease? Be it for good or bad my accredited CF clinic was so focused on the pulmonary aspects of CF that my visits were...

At the risk of offending some contributors, what is passing for over the counter anabolic steroids can be far more dangerous than straight doping. Certain precursor agents contained in over the counter (OTC) " "steroids" are altered by the liver, producing an amount of an anabolic steroid. How...

Don't knock 5'10" at 125 pounds! I would like to quote Lyle Alzedo, the Denver Bronco from the days of the "Orange Crush" when Lyle and four of his team mates fell ill from steroid use. His remarks about steroid use are difficult to understand but it was to the effect that when he intended to...

I don't have any solution to your conundrum but I share your anxiety. If you see something you want to put online in a picture it musn't be just a little redness. My suggestion would be to call the pediatrition right now. It could be worthy of a controlled panic at worst so have your daughter...

Dea is at peace and now you need to find peace. My "little sister" died in 2008 and I still delay grieving. LL

This is a guess, but it sounds like you are one the edge of a flare. With the potential of your body being in fight mode, you may be pumping everything from testosterone to adrenaline to fight pain/infection and such. If I had a job interview tomorrow, my anxiety level would be up a notch and I...

I am certainly not addicted to salt. In fact salt makes me sick. I enjoy a properly salted French fry as much as anybody else as long as I just have two or three. When I first tried salt on my food I looked around the table at my family, somewhat astonished that they willingly ruined their...

My sweaty hands weren’t associated with CF since most of my life doctors never thought to test for CF. I wish I had some reason to explain my soaking wet hands then because everybody noticed them, often with less than pleasant reactions. CFers with sweaty hands make lousy criminals as we etch...

Cris, What is the current genetics/clinical presentations that defines CFTR-related metabolic syndrome? How does this compare to a CF diagnosis? I haven't looped around recently to see what the fallout over sick CF carriers vs homozygous CF patients with genetic as well as clinical...

Don’t be too quick to either apply a psychiatric label or allow your psychiatrist to hand you labels based on early impressions. I was born in 1950 when ADHD, autism and a host of other behavioral problems were generally worked out between the parents and teachers. No further resources existed...

I have always been allergic to mornings but recent years have become ridiculous. My lungs are clear and these days so is my head but my abdomen both robs my sleep and delays my rising. I have routine for cleaning out my gut that takes about an hour, starting when I get up. Sometimes getting...

This is just a guess but my CF was labeled “atypical” because like your baby, I am genetically a carrier. In my mutation, s1235r, there is a supporting scientific study confirming that heterozygous or single copy presence of this gene can cause clinical symptoms of CF with GI symptoms being...

If New Jersey is similar to Colorado’s Medical Marijuana Registry (MMR) this is how you go about getting Medical Marijuana (MM). The MMR collects applications and fees for people wanting to use marijuana for medicinal purposes, processes the applications and in return the send MMR cards or “Red...

Raakel, I agree, get an appointment at a Cystic Fibrosis clinic soon. Finland has one of the higher occurances of CF so there should be a dedicated adult CF clinic. As you know, CF is a genetic disease or more accurately a genetic condition that could present clinical symptoms of CF. Genetic...