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I second the O2 meter. With easy to use, affordable home meters of various types you might want to add a thermometer to your kit. LL

If you don't find what you are looking for with the suggestions already made, Dr. Jerry Nick is the Adult CF Director at National Jewish Health in Denver Colorado and for certain a 73yr old CFer won't get that medical freak feeling. LL

Juno, Thanks for the timely update. Recently I referred to your bowel conundrum in a post. A week ago I would have been genuinely surprised to hear nothing I suggested, helped. The post topic "colonoscopy" recently discussed was likely your motivation to update the community. If not you might...

In truth, I doubt it. I have tried everything you have and then some in various combinations and I am still fighting an uphill battle. My latest change in bowel motility has drawn me to a CF bowel motility expert/researcher/MD. When I resolved my hard constipation a couple years ago it was...

Sinus problems don't usually start with a need for surgery, like our lungs, scarring from infection cause many of the deformities to be corrected in the sinuses and such. An acquired hole through my nasal septum wasn't from nose candy as a doctor suspected, infection finally opened up a hole...

It is a little like attending church. If you feel better through the experience, why not? Water seems to be necessary for any success with guafinicin. I have tried it from time to time and it makes me nauseas above all so it isn't in my arsenal. When the topic of thinning mucus was posted about...

My bowel motility is severely compromised and it took some time for me to figure out things the doctors were seemingly unconcerned over until a procedure is aborted because of an obstruction. For CFers that suffer from motility issues, and it seems we all do, a standard bowel prep gets about...

Woah did somebody mention Pancrease? I remember when it suddenly vanished and some rumors it is back on the market. True? How does the new Pancrease compare with Creon? LL

This is a bit of trivia I picked up about infant weight. There are more than one weigh/height/age/sex chart that doctors can refer to. An example is formula fed babies have totally different metrics than breast fed. Who'd a thunk? LL

Sorry but those of you who think you know everything are particularly irritating to those of us who in fact do. I know exactly one doctor who can speak from first hand confirmation of food v enzymes and he is hard to get an appointment with. Since I was diagnosed I have asked the enzyme question...

One thing won't work and that is any kind of appliance supposedly to correct slouching shoulders. At sixty three and with one nasty climbing fall from my twenties the fifty two years of malnutrition prior to diagnosis and of course my radio opaque lungs, has left me a little (too) stooped. Yet...

I agree that most likely you are erupting with repressed emotions from multiple traumas or suffering PTSD. The close cousin of PTSD from physical trauma is war induced PTSD and they are very close indeed. I spent two years bringing my older brother out of a moldy jungle he had crawled into for a...

I think it's settled, nobody is really objecting to a pet dog. Take your time selecting a dog. It is possible to find the perfect pet on the first try. Great potential pets are common so don't worry the perfect dog just got adopted from under your nose. There will be another soon. As big hearted...

Emer76, Once again I jumped the gun. My guess is you already know everthing I just posted. Hopefully another CFer is just entering into the GI jamborie will find something new. As a CFer and a mother of two you could really contribute when other CF women are looking at becoming mothers. You...

I am so sorry to hear of your misery. Welcome to the club! Before the barrage of stories hit, mine was similar in terms of my pesky gall bladder. We don’t fit the massive demographic that is typically FFF (Fat, Female, Fifty (the AMA’s term not mine)). I was convinced for years that the intense...

Without a doubt Dr. Steve Freedman can make science out of a generally black art. His science applied to an individual patient can turn GI chaos into something more enjoyable. He speaks pancreas, GI and is fluent in CF. My diet has run the gambit. My garbage gut years ended in my twenties but...

Would he be a candidate for a port? The injection site is under the skin so he won't be risking the exposure of a picc line. The snot locker on kids is always gloopy and CFers often are more so. Before everybody jumps into rebuilding his nasal body seek a second opinion. I certainly needed...

Humor is considered the most intelligent form of expression. Not having CF is so normal. LL

Yep I have one about half the time. I can't guess what causes it excepting that OTC cold medicines do the same thing to me. And like the antihistamines, decongestants and such contract capillaries that warm or cool the nose. LL

The human body's GI tract isn't the fine tuned systems like the circulatory system where a finite set of functions perform expertly. Long before the gut has any say, other influences of food choice and quantity are made for it. This decision may please the gut or possibly poison it, but it...