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LL: Thanks for the explanation. I read it a few times, but still I know I am science challenged! I think in a previous discussion, you did tell me about the importance of biofilms. I believe you said something like after the drugs that change the CFTR (like Vertex/ Kalydeco) do their job...

If and Why you SHOULD care! Bills: H.R. 3306 S 2662 should be on the “tip of your i-phones” Read these summaries of bills which aim to expand telehealth coverage: 1. Bill H.R. 3306 House of Representatives Rep. Harper, Gregg [R-MS-3] (Introduced 10/22/2013) This bill is co-sponsored by...

Hi Joanne: Thank you for sharing and wishing so many the hopefulness of all the new drugs.. I know many will read this and remember you in thoughts and prayers. I'm praying the spirit of Jessica wraps you in light and love. Thanks for reaching your hand out to all of us! Salt and Light, Jeanne

If no one wants it...I'll take it, may be a great model for others too! Hope all is well...love Jesse's fingerprint on the jewel... Jeanne

The Boomer Esiason Foundation’s “Run to Breathe” event took place July 12, through Central Park in New York. The race attracted more than 7,000 participants with the goal to encourage cystic fibrosis patients and families to stay active. Chiesi USA supported this year’s race. Steve Leach...

Welcome Back Steve! I know is at least one member who is a genetic counselor with CF. Maybe she'll "weigh in" too! Salt and Light, Jeanne

Well Autumn, it makes sense you thought of her because that was her science! Environmental. She wrote this in 2007 and it is a perfectly written tutorial: http://www.livinghealthy360.com/index.php/tips-for-improving-indoor-air-quality-to-prevent-allergies-4-56097/ So 7 years ago she recommended...

http://www.youtube.com/watch?v=oKs0yVHCfAk I saw this video (not CF Patients) and was reminded of all the time CFers spend that isn't even identified or quantified. The treatment burden covers more areas than realized by these patients Dr. Sawicki gives a radio broadcast on treatment burdens...

http://nuviun.com/content/news/adheretech-gets-175-million-and-second-patent-readies-nextgen-smart-pill-bottle

There have often been trained scientists here. One I love to remember is: lightnlife, Lauren Beyenhoff's user name. Lauren was a scientist who wrote some great articles for us. One I highlight today was written in May of 2008, when she interviewed Francis Collins, the director of the National...

Such a devastating loss for you foundation, your country, and the HIV AIDS community. They were working on so many different fronts for health and technology. Five daughters! Are they interested in science and medicine?...I hope so. This loss is a global one....thank you for sharing these...

http://nuviun.com/content/news/cleveland-clinic-abu-dhabi-going-fully-digital-as-it-opens-in-2015 Chris Baldwin is in Amsterdam working with Duke at the Amsterdam Institute of Global Health. Hey Chris.... Are there plans for Duke Digital in global? just wondering....

Here at cysticfibrosis.com, we know that scientists matter. They are behind all the treatments taken. I remember the first days of cysticfibrosis.com when people were having trouble with the directions for taking Pulmozyme…we went right to the Genetech Website: www.gene.com and right on the...

http://www.cnbc.com/id/101783126#.

Dear Members and Friends of CysticFibrosis.com, Many of you may already have noticed the presence of Chris Baldwin here at the forums. I met Chris on LinkedIn during the spring of 2013. As many of you know, in my “other life”, I am a “domainer”. I began my career on the web in 1996...

Just found this from Lisa Greene! http://www.cysticfibrosis.com/howtoteachyourtoddlertotakeenzymes.cfm

http://forum.cysticfibrosis.com/threads/54384-a-breathtaking-documentary-about-CF-http-www-youtube-com-watch-v-TegmwdEfTCQ?highlight=Straw this is at least one example. I know there are more on our site good luck with your presentation!

Hi Sierra, I know people will have much better ideas than I have...but sometimes parents spoke of sharing this Bubby video with their toddlers. Aubry may be too young of course. Best wishes in finding a solution~ http://cysticfibrosis.com/cftube/categories.cfm?categoryid=6&idvideo=77

This reminds me that I have several copies of Love and Logic, member Lisa Green's excellent book! PM your address and i'll mail free copies till they run out! OK: I'm out...thanks! I sent some from Amazon...so if you get one from Amazon...a gift to you...

Ataluren Reading through the controversies! http://www.cysticfibrosisnews.com/ataluren-reading-through-the-controversies/?utm_source=All&utm_campaign=CF-July+8%2C+2014&utm_medium=email