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Happy 4th of July to all the USA members and we hope you enjoy your day. Peter and took our walk in Verona Park to celebrate...love the birds! The Independent black crowned night heron...born precocial...and the little baby ducklings needing their mom all adorable. just different styles of...

Hi LL, i know you posted on the main forum. I wonder how you are progressing, if you made any decisions? Are following a path?. know I'm thinking/praying. j

http://www.nih.gov/news/health/jul2014/nhgri-01.htm#.U7LjQmXZqAY.email NIH names new clinical sites in Undiagnosed Diseases Network

http://ir.ptcbio.com/releasedetail.cfm?ReleaseID=856937

This thread has some good advice... http://forum.cysticfibrosis.com/threads/38519-Travel-Advice-Needed?highlight=travel

http://www.forbes.com/sites/matthewherper/2014/06/24/in-a-victory-for-gene-research-drugs-clear-lungs-clogged-by-cystic-fibrosis/ What will the price be?

Keep us informed....we are thinking of you...even some prayers have been whispered....we want to know what you decide....and how you go forward. Lots are watching, hoping for the best and wishing you well! Salt and Light, Jeanne

http://mashable.com/2014/06/17/bionic-pancreas/

Found this thread: http://forum.cysticfibrosis.com/threads/92018-Severe-Pancreatitis?highlight=Auto-Islet+transplant a positive response from a long time member who may have PMed you. I hope so! Imogene

Hi LittleLab, I am thinking about you. I reached out to Printer through email...hoping he could remember a discussion that was on here. I haven't had much luck with the search. I will be working with our new CEO on the Search this summer. http://www.pancreatitiscenter.org/success.aspx is a...

I guess, remembering my dad, Jack Burke is a really important memory for me...especially here as I know I got the gift of computers and programming from him. He was an original, a Senior Method Analyst at Prudential Insurance Company back in the 1950s! I grew up with technology and am always...

http://www.bidmc.org/Research/Departments/Medicine/Divisions/TranslationalResearch/Faculty/StevenD,-d-,FreedmanMDPhD.aspx have you seen this doctor? He is the one printer raves about. Are you close to Denver and national Jewish?

https://www.cayston.com/cayston-access-program/

I noticed this centers news this past MAy....http://www.sciencedaily.com/releases/2014/05/140517085811.htm Looking for other centers....

http://www.cysticfibrosisnews.com/tobramycin-use-examined-in-young-children/?utm_source=All&utm_campaign=CF-June+3%2C+2014+All+but+Canada&utm_medium=email

So glad you had a great birthday Pat....and wow 50! That is wonderful

http://campaign.r20.constantcontact.com/render?ca=fdc0ef70-a3e5-4cb0-aa01-458533de3026&c=ee129cf0-35ca-11e3-802e-d4ae527536d1&ch=ef2da9e0-35ca-11e3-80ec-d4ae527536d1

Thank you Jane. We followed your journey and continue to remember Jesse in so many ways. Peter and I listened to some American Indian music and remembered him, even a ukulele brought back his memory this weekend. I plan to get in touch with Rise and ask her for information about lung...

http://medcitynews.com/2014/05/vinod-khosla-has-more-predictions-about-future-of-healthcare/ Mentioned again here with lots more

http://medcitynews.com/2014/05/vinod-khosla-has-more-predictions-about-future-of-healthcare/