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Welcome to the blogs Treasure You write the story behind the statistics, filling in the sensory details....blogs can give feelings to so much of what is common for CF moms and dads....buried in the details. Thank you! Jeanne

Grammakaky put this in her blog... http://www.bizjournals.com/boston/blog/bioflash/2014/05/vertex-faces-seminal-moment-with-pending-cystic.html?page=all This information, I am sure, is of interest to members of this thread. Thanks, gramma! Imogene

Thanks for posting....we will know soon!

We made the trek to beautiful Kingston Ma, and yesterday and we spent some time with Jane and Bill, remembering their talented and oh so young son: Jesse. Jane has always been generous sharing the triumphs and tribulations of raising two children with CF. We got the experience of Jesse, and...

Peter and I are on our way traveling from New Jersey to Massachusetts. We ask your thoughts and prayers for the family today as they remember Jesse and greet family and friends at the funeral home Josh graduated from college yesterday, so the emotions must be so intense and confused. I know...

They need meds. Lots of exercise. I have some equipment I can send for her. What is the age?

http://www.ted.com/talks/lee_cronin_print_your_own_medicine?utm_source=email&source=email&utm_medium=social&utm_campaign=ios-share#t-168438

http://ir.ptcbio.com/releasedetail.cfm?ReleaseID=848453

Oh Stacey...Please feel better. We are sending light and love to you too! Yes, Cheryl and I will bring your warmth and wishes to the Napolitano family. They know we are with them, they are not alone. This is a clarion call for donors. Jeanne

Thanks Stacey for the link. Jesse is one talented angel...loved watching him grow and now remembering him.

For all of you who remember the stories Jane would tell in her archived blogs here...we cried and laughed and celebrated Jesse's life with Jane through her stories. Jesse died waiting for new lungs this week. Peter and I especially remember meeting the family and taking them on our tour of...

I always think Sarah Kay is inspirational..spoken word poetry it's called. Even if like me, you've seen this 20 times, I offer it as some great thoughts on nurturing, mothering, fathering for daughters and sons...I'm sure that this kind of love isn't gender specific and when I gave this poem in...

For those of us celebrating today... Alleluia, He is Risen! This is a place, where people "dance with fear" everyday! This TedTalk may be interesting to all! Salt and Light, Jeanne http://www.ted.com/talks/chris_hadfield_what_i_learned_from_going_blind_in_space

Thank you to the reporting member and those who gave links.

Let me start by saying how helpful I’ve found the cysticfibrosis.com website. It has provided a place where I can read how others cope with experiences and situations similar to those I go through. Hopefully some of my comments have also been of some use to them. The real purpose of this...

Here at cysticfibrosis.com it happens all the time! http://sethgodin.typepad.com/seths_blog/2014/04/search-vs-discovery.html

http://www.dailymail.co.uk/femail/article-2544576/Jenny-Agutter-reveals-family-tragedy-inspired-story-Call-The-Midwife.html

http://www.people.com/people/mobile/article/0,,20802536,00.html

Thank you for letting us know this sad news. We are thinking of you and wrapping you in love and light as you move forward remembering your brother and the blessing he is in your life! salt and light, imogene

Hi Ray, Do you speak Chinese? Where in China are you traveling. I ask because my son is in Chengdu. There is a big ex pat community there. He runs the Bookworm Restaurant. http://www.chengdubookworm.com/ I'll ask Peter my husband to weigh in. We traveled there last September. I hope you...