Cystic Fibrosis Forum (EXP)

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  1. L

    For Adults dx late in life - how do you feel?

    I was diagnosed at 51. With a pancreatic function test results off the scale, my doctor suggested genetic testing for CF which was positive. Having never smoked and although not a tea totaler, I would say I don't drink. Funny thing, I was a junior version of my father who although not a...
  2. L

    Diagnosed as an adult

    These days before I submit to a medical test or such, I ask the doctor if there is anything actionable that can be done based on a test or diagnostic procedure. With a child diagnosed with CF you know at least you are a carrier. I know a lot about genetics and I find that "carriers" may or may...
  3. L

    Diagnosed as an adult

    These days before I submit to a medical test or such, I ask the doctor if there is anything actionable that can be done based on a test or diagnostic procedure. With a child diagnosed with CF you know at least you are a carrier. I know a lot about genetics and I find that "carriers" may or may...
  4. L

    Diagnosed as an adult

    These days before I submit to a medical test or such, I ask the doctor if there is anything actionable that can be done based on a test or diagnostic procedure. With a child diagnosed with CF you know at least you are a carrier. I know a lot about genetics and I find that "carriers" may or may...
  5. L

    Diagnosed as an adult

    These days before I submit to a medical test or such, I ask the doctor if there is anything actionable that can be done based on a test or diagnostic procedure. With a child diagnosed with CF you know at least you are a carrier. I know a lot about genetics and I find that "carriers" may or may...
  6. L

    Late Diagnosis

    I didn't read all the LATE DIAGNOSIS messages but after the latest information, prompted by the new CF drugs, I have been doing a slow burn. I was 51 when an accurate diagnosis was made. My age indicates I was not searching for new lungs at 15. In fact, I do have more mild pulmunary symptoms...
  7. L

    Late Diagnosis

    I didn't read all the LATE DIAGNOSIS messages but after the latest information, prompted by the new CF drugs, I have been doing a slow burn. I was 51 when an accurate diagnosis was made. My age indicates I was not searching for new lungs at 15. In fact, I do have more mild pulmunary symptoms...
  8. L

    Pink Floyd

    To: TVWinchester79. Pink Floyd most likely will find itself in with the likes of Mozart when history judges our music in a few hundred years. "The Wall" came out in December of 1979 (if memory serves) to be awarded the Album of the decade. I won't try to tell you which is better or worse of...
  9. L

    Pink Floyd

    To: TVWinchester79. Pink Floyd most likely will find itself in with the likes of Mozart when history judges our music in a few hundred years. "The Wall" came out in December of 1979 (if memory serves) to be awarded the Album of the decade. I won't try to tell you which is better or worse of...
  10. L

    Anyone culture MRSA

    This is LittleLab4cf and my first writing. I was genetically diagnosed in 2000. Not in my profile but I have s123r, m470 polymorphism and the newly characterized t7t7 varient. I am amongt other phd in genetics. I was able to discuss my genetic testing in detail with the geneticist who...
  11. L

    Anyone culture MRSA

    This is LittleLab4cf and my first writing. I was genetically diagnosed in 2000. Not in my profile but I have s123r, m470 polymorphism and the newly characterized t7t7 varient. I am amongt other phd in genetics. I was able to discuss my genetic testing in detail with the geneticist who...
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