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I have an older compressor (10yrs) and one just under a year. The noise seems to be the give away what I am doing. CPAP unts are so quiet and frankly more acceptable in every environment. It has a filter with small enough pores to keep unwanted viruses and bacteria out. With the correct medical...

I have an older compressor (10yrs) and one just under a year. The noise seems to be the give away what I am doing. CPAP unts are so quiet and frankly more acceptable in every environment. It has a filter with small enough pores to keep unwanted viruses and bacteria out. With the correct medical...

To: Tracy360, (Cont'd) When I was 8, a playground game went bad and I ended in the hospital with a "bruised" kidney. They didn't hospitalize a patient w/bruised kidney for a week then or now. Rather ignorantly, the doctor popped Xrays up on the viewer, and as my big ears and eyes tuned in, he...

To: Tracy390 Are you sure you didn't write "Streets of heaven"? Considering what you and Amber were doing, it is as if the song was written just for you. Sometimes in a CFer's life a song, philosophical axiom, or a poem pours into that angry void in our souls, like a festered boil, a stranger...

I make a habbit of reading all responses for a given topic before adding my own and this is no exception. For too many years I maintained a laoratory version of a GI tract. In a very nerdy way it was pretty cool. I wcnt so far as to use sausage casing for intestinal models. A friend was deep...

I make a habbit of reading all responses for a given topic before adding my own and this is no exception. For too many years I maintained a laoratory version of a GI tract. In a very nerdy way it was pretty cool. I wcnt so far as to use sausage casing for intestinal models. A friend was deep...

I too had the usual hot showers or sat in the bathroom running just hot water through the shower head. However my first steam mask was an accident. For Mother's Day I got my mom a 'facial sauna' that for all practical purposes was a steam mask. Resembling a blender the base using s ceramic...

I too had the usual hot showers or sat in the bathroom running just hot water through the shower head. However my first steam mask was an accident. For Mother's Day I got my mom a 'facial sauna' that for all practical purposes was a steam mask. Resembling a blender the base using s ceramic...

With thw help of my 25yr old nephew intoxicated by music I now hav all the CF songs. What expression, the accumulation eclectic music oddlu the same theme. Songs old enough I'm embarrased to pull the music from my memory upon reading the title of some one's choice to Polish Black Death metal's...

Music, memoirs and even poety can become a battle cry. I took the time to look up everg song either the music itself or lacking access without it, the lyrics had to do. All spoke to me in some way. For me, Pink Floyds album has a tune "Comfortably Numb" is not so much a song I draw courage from...

Well this is a popular topic. Music, stories and poetry seem to speak to us who by definition is a chronic wasting disease. I relate to all the songs listed that I know, which is most of them. Pink Floyd's "The Wall" has a song I often think of. Comfortably Numb is my tune. Natalie Merchant's...

Our family watched my father lose the battle for his barely 48 year life that ended August 1970. Undiagnosed until autopsy, we watched what amounted to all the things one shouldn't do for CF, all at the family doctors direction. In the end, he mercifly went quickly. I was 20 years old and...

Our family watched my father lose the battle for his barely 48 year life that ended August 1970. Undiagnosed until autopsy, we watched what amounted to all the things one shouldn't do for CF, all at the family doctors direction. In the end, he mercifly went quickly. I was 20 years old and...

Sorry, after all I pontificated on I forgot good old probiotics. Choose your poison here, Activia to dry scoopfuls of culture. You need to titrate this as well depending on your colon health, antibiotics etc. I am a lot more regular when I am well hydrated so I should have put water high on the...

Sorry, after all I pontificated on I forgot good old probiotics. Choose your poison here, Activia to dry scoopfuls of culture. You need to titrate this as well depending on your colon health, antibiotics etc. I am a lot more regular when I am well hydrated so I should have put water high on the...

To anybody with CF knows is transmembrane regulator gene dedects mess with water, salts and whatver passing through the cell membranes. Different mutations effect CFers to a greater or lesser extent. At 62, my mutations are not as severe as a 15 year old waiting on a lung transplant. My...

To anybody with CF knows is transmembrane regulator gene dedects mess with water, salts and whatver passing through the cell membranes. Different mutations effect CFers to a greater or lesser extent. At 62, my mutations are not as severe as a 15 year old waiting on a lung transplant. My...

Hi Sunshine, I have had two sinus surgeries, one cryo-cautery of the nasal turbinates (flaps of ruddy flesh). With both surgeries, they performed nasal septoplasties one to resolve a deviation, the second to fix the first. I am old when it comes to CF patients at 61. When I was an adolescent...

Hi Sunshine, I have had two sinus surgeries, one cryo-cautery of the nasal turbinates (flaps of ruddy flesh). With both surgeries, they performed nasal septoplasties one to resolve a deviation, the second to fix the first. I am old when it comes to CF patients at 61. When I was an adolescent...

I was diagnosed at 51. With a pancreatic function test results off the scale, my doctor suggested genetic testing for CF which was positive. Having never smoked and although not a tea totaler, I would say I don't drink. Funny thing, I was a junior version of my father who although not a...