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Oops. I did mean to say minocycline. My dyslexia betrayed me on that one.

Get thee some benadryl if things haven't gotten worse since stopping minomycin. Penicillin and prontosil once filled our antibiotic arsenal. A history of people reacting to antibiotics started with the first antibiotic. Allergic reactions at best underscores human individuality. This...

Hmmm. CF is a disorder that can make any one cell type to fatally all cell types inherently sticky. Every moist surface or organ that needs protective mucus or produces mucus for certain body systems could be compromised by CF. Mucus busters like Mucinex fit in the CF arsenal but for loosening...

WOW!! I want to know the answer to that one myself. Nothing unremarkable about this tidbit on the report. My first thought is a ruptured pseudo-cyst maybe on the pancreas or a kidney. My abdomen is cluttered with them. They can burn like sin and depending what is trying to function feel like a...

Christmas and other anniversaries now just marking time since..... Our death day is defining as much as the other dates of passage we traditionally celebrate. Large families or orphans all find love and loss. My childhood best friend and first girlfriend lost her 3yr old daughter to meningitis...

Clubbing of the fingers/toes can develop over time or can be present at birth for many reasons. Acquired cardio-pulmonary disease or a congenital heart defect i.e. an inter-septum hole can cause clubbing to develop over time and ties with unresolved hypoxia. Today a hole through the heart...

It’s good to meet you, just wish it were better circumstances….. This is far and above one of the best forums for CF. I emphasize the ‘forum’ bit as this site generally functions as such with a rich knowledge base from people who like you have become unwilling authorities on everything from...

Something that is the same problem in both sexes presents quite differently. Women can harbor mucus in/around the uterus. Men mistakingly diagnosed with low sperm motility in fact have thickened semen. In my case they determined (wrong again) that many sperm had defective tails or flaggella...

Something that is the same problem in both sexes presents quite differently. Women can harbor mucus in/around the uterus. Men mistakingly diagnosed with low sperm motility in fact have thickened semen. In my case they determined (wrong again) that many sperm had defective tails or flaggella...

Travel is hard work. Avoid it if you can. I schlepped my suitcase in flight the equivelent to three round trips to the moon in miles, 12 365 day years in reality spent traveling on business. For the outrageous costs of international travel, I had to make every available hour count. This meant...

Excepting for the fact that gas smells for the benefit of the deaf, most Cfers don't need this problem. For openers it hurts. Sometimes that "hurt" defy's description. The prescribing of Creon or any other enzyme supliment for CF has been most often a black art for a CF specialist or a good Gi...

Oh, that summer in Europe!! It looks like a lot of good advice has already been posted. At a similar age I found myself vagabonding through Europe and Africa taking the better part of a year out. Astonished as I was at what travel must have been forty year before my travels began another forty...

BloggyMom, Bill and Love, Hi, thank you for the note and no I am not alright, just yet. To keep on topic, I hope reading how frustrating it is to be marginalized by other people’s priorities or needs smacks everybody good. Sadly this is more like preaching to the choir at this forum. There...

The main problem is you don't look like you have a terminal chronic wasting disease. An entire culture has grown up without the wind whipping them in the face. Like Peter Sellers in "Being There" so many people have been denied a tactile world where we can feel the warmth of human hands, wrap...

Well, I learned something today. I looked at your forum question and it has been so long since I have had a fecal test, the technology has changed. More or less that is. I tried to get some solid data on your elastase numbers and though I am an insufferable know it all, first doctorate at 18 in...

Well, I certainly can tell you what not to do. Remember Shell Silverstein’s “The Giving Tree”? If you haven’t, don’t worry, I will offer a paraphrase of the story. I have always considered myself to be terribly fortunate. I earned my first doctorate at 18 so I was lucky. I didn’t have to hang...

Go for it girl. You made my day!!!!

Amber, thank you for reminding all of us why we are here. It is often the case when a post(er) receives a personal reply in a post, that things go off the rails. Personal Messages should be civil discourse, but regardless if what is being said, if it doesn't serve to advance the topic of the...

I would have been more diplomatic but Printer's got it. At 62 my CF specialist, though kind and compassionate, never expresses concern. I can't really blame him, I am the pique of health compared to his other patients. Last week when I saw him, I was in the final stages of pleural effusion and...

Delta F508, is the most common CF mutation with 66% of CFers having it. To be sure some DF508 are severe, considering the number of patients the complete range of presentations from the most sick to the least will be observed. Kalydeco is G551D specific to 4% of the CF population. I hope soon we...