Cystic Fibrosis Forum (EXP)

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  1. R

    CCMC, Connecticut Children's, Hartford Hospital

    I am also in the area and travel to Boston Children's for my care, although Hartford Hosp would be much closer for me. I'd love to hear feedback from an adult who goes there (if there is anyone....?)
  2. R

    CCMC, Connecticut Children's, Hartford Hospital

    I am also in the area and travel to Boston Children's for my care, although Hartford Hosp would be much closer for me. I'd love to hear feedback from an adult who goes there (if there is anyone....?)
  3. R

    Cayston

    I think I'm going to get my first Rx of Cayston for next week. I'm definitely nervous about fitting in the afternoon treatment because I work all day. How long does it generally take to nebulize? I read a couple of you say it just takes 2 minutes - has it ever taken longer than that? I know...
  4. R

    Cayston

    I think I'm going to get my first Rx of Cayston for next week. I'm definitely nervous about fitting in the afternoon treatment because I work all day. How long does it generally take to nebulize? I read a couple of you say it just takes 2 minutes - has it ever taken longer than that? I know...
  5. R

    Cayston

    I think I'm going to get my first Rx of Cayston for next week. I'm definitely nervous about fitting in the afternoon treatment because I work all day. How long does it generally take to nebulize? I read a couple of you say it just takes 2 minutes - has it ever taken longer than that? I know...
  6. R

    Thrush?

    Sounds like thrush, but go to an MD just to make sure. I have thrush all the time due to the Advair I take, so to keep that away I swish and swallow Nystatin daily.
  7. R

    Thrush?

    Sounds like thrush, but go to an MD just to make sure. I have thrush all the time due to the Advair I take, so to keep that away I swish and swallow Nystatin daily.
  8. R

    Thrush?

    Sounds like thrush, but go to an MD just to make sure. I have thrush all the time due to the Advair I take, so to keep that away I swish and swallow Nystatin daily.
  9. R

    I'm trying REALLY hard to not let CF get me down

    Hey, I'm so sorry you're feeling like this. CF is terrible. It's especially terrible when things were going just fine and then BAM, the s*** hits the fan. That is really hard when that happens. I just had a really long stint of feeling great and then I started with an infection a few weeks...
  10. R

    I'm trying REALLY hard to not let CF get me down

    Hey, I'm so sorry you're feeling like this. CF is terrible. It's especially terrible when things were going just fine and then BAM, the s*** hits the fan. That is really hard when that happens. I just had a really long stint of feeling great and then I started with an infection a few weeks...
  11. R

    I'm trying REALLY hard to not let CF get me down

    Hey, <br /> <br />I'm so sorry you're feeling like this. CF is terrible. It's especially terrible when things were going just fine and then BAM, the s*** hits the fan. That is really hard when that happens. I just had a really long stint of feeling great and then I started with an infection a...
  12. R

    What was your experience trying to get pregnant?

    Hi Cindy, I went straight to IUI. The nurse who did my IUI mentioned how thick the cervical mucus was. I got pregnant on try #2 without fertility meds.
  13. R

    What was your experience trying to get pregnant?

    Hi Cindy, I went straight to IUI. The nurse who did my IUI mentioned how thick the cervical mucus was. I got pregnant on try #2 without fertility meds.
  14. R

    What was your experience trying to get pregnant?

    Hi Cindy, <br /> <br />I went straight to IUI. The nurse who did my IUI mentioned how thick the cervical mucus was. I got pregnant on try #2 without fertility meds.
  15. R

    Advair & Pregnancy

    No problems with Advair during pregnancy.
  16. R

    Advair & Pregnancy

    No problems with Advair during pregnancy.
  17. R

    Advair & Pregnancy

    No problems with Advair during pregnancy.
  18. R

    Does being extra salty make one itchy?

    When I'm out in the summer doing yard work and sweating, my face gets very itchy and my skin gets irritated. I know for a fact it's from the salt.
  19. R

    Does being extra salty make one itchy?

    When I'm out in the summer doing yard work and sweating, my face gets very itchy and my skin gets irritated. I know for a fact it's from the salt.
  20. R

    Does being extra salty make one itchy?

    When I'm out in the summer doing yard work and sweating, my face gets very itchy and my skin gets irritated. I know for a fact it's from the salt.
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