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Recently DS had an appointment with the local CF doctor and we were waiting for the culture results and I guess even though they're an accreditted CF center, I've always been concerned with the way they handle them.
Anyway, the RT who'd been there FOREVER, has moved on to the local DME, so...
At DS' last appointment, his doctor mentioned having pfts done next month at his next appointment. We've been practicing with bubbles and noisemakers... Anybody else have some tips?
So we dealt with a head cold and fever last week when we had relatives visiting. I spent the early morning hours on Friday listening to DS breath and checking his temp -- worrying about the what-ifs, the future, whether his cold was going to turn into something worse.
So being a little...
A few years ago when we were on vacation in the mountains, ds got a little crabby, decreased his eating and ran a low grade fever. I was concerned it was an ear infection 'cuz that was usually what happened with those symptoms, but I'd given him some tylenol and he was fine the next day. I...
This week on the Today show they've been talking about germs -- yesterday it was how nasty grocery carts are and today it was vacuum cleaners. Showed how the brushes and rollers have bacteria and then the bacteria feeds off of the crumbs etc. they find on the floor.
There was a couple with 3...
Ugh, DS started Tobi yesterday morning, so this afternoon, I decided to check the filters in his pari and devilbiss compressors. I couldn't remember if I changed them out in April or June, so I figured I'd better be safe than sorry.
The devilbiss one looked fine -- pristine? <img...
DS likes salt cookies --- he'll sprinkle salt on chocolate chip cookies and eat them. He also salts applejacks cereal.
Blogged with a photo last week of his ketchup noodles with parm cheese and bananas on top. This past weekend he requested a ketchup banana sandwich shaped like a dog. He ate...
With the talk under the transplant section, I was just wondering if other people have set up trusts, health savings accounts for their children. We have a regular savings account (money market), which we contribute money to on a regular basis, but we want to set it up for DS' future expenses...
Still haven't figured out Indian Jones Lego on the Xbox 360 and we had to go pickup this new one. DS gets to play games while vesting and nebbing. Played one game last night and did okay except DS kept blowing me up because batman was wearing a special suit which creates bombs to blow up...
This morning DS threw a total FIT. He gives us trouble sometimes with his septra tablet because he doesn't swallow it right away and I thought that's what was giving him problems. That and he's not a morning person -- so he tends to be a bit crabby in the morning instead of his normal sunny...
Last week I had to buy a new "electric" toothbrush for DS because "the monkey told him he needed one". When we were at the dentist last month, while I was getting my teeth cleaned, he was watching a DVD on oral health care and had to watch it twice because it had a monkey in it. We were in...
I should've taken a picture before I washed DS's baseball cap last night. It's supposed to be a purple Colorado Rockies had, except it was gradually turning white -- coated with SALT! I was afraid deer were going to chase after him and try to lick his hat <img...
So it's been about two months since we decided to put the kindergarten issue on the back burner and still keep going back and forth. DS turned 5 in June.
Our district is switching to all day kindergarten 8:10-2:30 this fall. And meals are a major concern. Both the daycare director and we...
Tried to go under profile to try and change it to something besides the default one -- tried to use a different one and then tried to upload my own, but apparently that feature isn't available yet.
Assuming those features will be added soon....
MN Family sues PTC Therapeautics because he was excluded from clinical trials.
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">http://www.startribune.com/lif...ation_refer=Lifestyle
</a>
Believe it's...
Our school district is switching to all day kindergarten this year, which means instead of going from 11:30 to 2:15, DS will be attending from 8:15 to 2:20.
Currently I feed him a glass of Carnation instant breakfast right away in the morning after his CPT at about 6:45. He usually sleeps...
Last weekend we took DS to a movie and I wasn't paying attention -- should've given him additional enzymes, as he was pretty much munching on popcorn thru-out the entire show. So the next day the first poo of the morning -- sorry if TMI -- oil slick.
He'd gone a couple of times, had breakfast...
DS pretty much switched all meds from suspensions to pill for in April and hasn't had much of an issue except when he doesn't swallow his septra tablet right away and the coating wears off.
Anyway, he's had 3 vomiting episodes a couple hours after taking his pre-dinner meds and they've all...
DS is up to 7 pancrease MT-4s with meals and still has more stinkers/floaters than sinkers. So at his last appointment, his doctor wrote a script for MT-10s and indicated that we should gradually switch him over until we find what's right for him. We also make more of a conscious effort to...
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