Search results

I've been waiting to get the results back from DS' well child appointment a couple of weeks ago. He's never, ever had a good chest Xray from the local clinic. In the past the reports have mentioned infiltration -- thus the reasons his CF doctor had ordered a ct scan with contrast last fall...

Everyone here knows that Max likes ketchup on practically everything. Last week he was dipping bananas in ketchup, prefers it on his pasta, ketchup sandwiches.. But the other night for a snack he chose a glazed donut, apple jacks cereal and cheese in a can (easy cheese). He proceeded to have...

Eek! Last night on our walk, DS mentioned that he wants to have his birthday party at Chuck E. Cheese and invite his friends from preschool. He's got it all figured out <img src="i/expressions/face-icon-small-smile.gif" border="0"> Went to one last winter and that's ALL he talks about. I'm...

<a target=_blank class=ftalternatingbarlinklarge href="http://health.usnews.com/articles/health/healthday/2008/05/09/steno-superbug-genome-shows-extreme--drug.html ">http://health.usnews.com/artic...ws-extreme--drug.html </a> Interesting article. Do a lot of clinics choose NOT to treat this...

<a target=_blank class=ftalternatingbarlinklarge href="http://ap.google.com/article/ALeqM5gknmDn0yg7qwdmMrIPiEw1AMBuxAD9094MV81">http://ap.google.com/article/A...rIPiEw1AMBuxAD9094MV81</a>

<a target=_blank class=ftalternatingbarlinklarge href="http://ap.google.com/article/ALeqM5g9PKo1Dr67gVSZWb-B4tOfMvmgDwD908DCC01">http://ap.google.com/article/A...b-B4tOfMvmgDwD908DCC01</a>

DH and I have known, felt that DS is ready for kindergarten. Not just bragging, weird parents here, but we KNOW he's a sharp cookie. He'll be 5 the beginning of June. I know of other people who've held back their kids or are planning to and just don't believe it's the right decision for him...

Leaving tomorrow morning for the big city for DS' appointment. Got snacks packed, meds organized, the "list" of things not to forget... Always a little apprehensive... Ever since easter after his head cold he's had sinus congestion and we've been trying to do nasal rinses in the evenings...

DH's aunt by marriage recently had MRSA Pneumonia, almost died. Anyway, she was told she'll probably have it in her lungs, but "she's not contagious". My FIL wants to visit his brother -- they recently built a new home; however, my MIL has concerns with visiting due to his wife -- she's...

Cystic Fibrosis Foundation Announces Positive Early Results for Phase 2 Clinical Trial of VX-770 - an Oral Compound to Treat CF -- Emerging Data Shows Encouraging Response in CF Patients --Results Validate Investment in Venture Philanthropy Business Model Bethesda, MD, March 27, 2008 - The...

<a target=_blank class=ftalternatingbarlinklarge href="http://www.bexleytimes.co.uk/content/bexley/times/news/story.aspx?brand=BXYOnline&category=news&tBrand=northlondon24&tCategory=newsbxy&itemid=WeED12%20Mar%202008%2016%3A37%3A20%3A557">http://www.bexleytimes.co.uk/c...8%2016%3A37%3A20%3A557</a>

So Monday night I'm sitting at a meeting and a colleague comes in and sits next to me, tells another person that he's got the chills, his muscles are aching... But this is someone whose always sick -- "bottle flu" <img src="i/expressions/face-icon-small-smile.gif" border="0"> So I just kinda...

DH noticed last night there was a hole in one of the tubes to DS' 104 Vest. And the other showed signs of wear. I suppose like anything, they don't last forever. We've had the vest for almost a year and a half. Yikes. Did a patch job with duct tape....

I know this has been brought up before... DS will start all day kindergarten next fall. Wondering if/what documents I should have put into place regarding his enzymes, etc. I looked on our state's education website and the info on IEP's looks to be about 400 pages long and tends to lean more...

Got this from a coworker who also works at a local bar and grill. Nasty! He said we don't want to know what those in the food service business do with those lemons. I DO hope he was kidding. <img src="i/expressions/face-icon-small-disgusted.gif" border="0"> <a target=_blank...

Someone on another site was asking about travelling with the vest and got several suggestions; however, one person mentioned that when flying with liquid drugs, you're still limited to 3 ounces, which must be kept in a quart ziploc bag. I guess I thought medications were considered exempt from...

I don't have CF, I just started doing sinus rinses and use distilled water; however, with DS I'm a little concerned with pseudo, etc. which can live in tap water and distilled water. So I boil distilled water for 10 minutes and let it cools. What do others use? Should I be using sterile...

DS started Aqua Adeks drops this past summer. He actually didn't mind the nasty flavor/smell and didn't have issues with niacin flush. I liked how it didn't stain his teeth that nasty brownish color that the regular adeks did. Then the pharmacy was unable to get them after a couple of months...

I'm not a fan of hand lotion, nor do I like using chapstick or flavored lip gloss. Lately DS has been licking his lower lip and below and it tends to get a little chapped -- raw and crusty. And when I tell him not to do it, he says it feels better "see mommy, I'm FIXING it". I've tried...

A couple nights ago DS's two year old Devilbiss started growling -- sounded like the fan was getting stuck. It's been a year and a half since his last one lost time and started doing the same thing. Sigh. I bought a new pari this fall because our original one never did work correctly -- 20-25...