Cystic Fibrosis Forum (EXP)

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  1. P

    Cayston cough

    Same thing happened to me. Just like the previous post I use a cough suppressant. Just started my Cayston month today<img src="i/expressions/face-icon-small-smile.gif" border="0">
  2. P

    Cayston cough

    Same thing happened to me. Just like the previous post I use a cough suppressant. Just started my Cayston month today<img src="i/expressions/face-icon-small-smile.gif" border="0">
  3. P

    Cayston cough

    Same thing happened to me. Just like the previous post I use a cough suppressant. Just started my Cayston month today<img src="i/expressions/face-icon-small-smile.gif" border="0"> <br /> <br />
  4. P

    Amphotericin

    I used Ampho in inhaled formed for about 6 months. First, few months were great!! I had an allergic reaction the 6th month. I had a very high fever and was admitted to hospital. I did Caspofungin for 5 months via iv and it seemed to help for the APBA. Good luck!!
  5. P

    Amphotericin

    I used Ampho in inhaled formed for about 6 months. First, few months were great!! I had an allergic reaction the 6th month. I had a very high fever and was admitted to hospital. I did Caspofungin for 5 months via iv and it seemed to help for the APBA. Good luck!!
  6. P

    Amphotericin

    I used Ampho in inhaled formed for about 6 months. First, few months were great!! I had an allergic reaction the 6th month. I had a very high fever and was admitted to hospital. <br /> <br />I did Caspofungin for 5 months via iv and it seemed to help for the APBA. <br /> <br />Good luck!!
  7. P

    Brochoscopy

    One more detail, i just was on caspofungin for 6 mnths for the APBA. It didn't work and my IGE and Aspergillus levels increased. The dr mentioned doing a year of caspfungin. I am thinking if 6 mnts did nothing why try a year if were not sure what is in my lungs. I am allergic to all other...
  8. P

    Brochoscopy

    One more detail, i just was on caspofungin for 6 mnths for the APBA. It didn't work and my IGE and Aspergillus levels increased. The dr mentioned doing a year of caspfungin. I am thinking if 6 mnts did nothing why try a year if were not sure what is in my lungs. I am allergic to all other...
  9. P

    Brochoscopy

    One more detail, i just was on caspofungin for 6 mnths for the APBA. It didn't work and my IGE and Aspergillus levels increased. The dr mentioned doing a year of caspfungin. I am thinking if 6 mnts did nothing why try a year if were not sure what is in my lungs. I am allergic to all other...
  10. P

    Brochoscopy

    Happy Thursday!!<br><br>I am scheduled for a brochoscopy next week!  I asked the dr for it and he agreed.  I have been sick for the past year, the dr thinks it is mostly from the aspergillus, but I am not completely sure!!  Two weeks ago, they started me in Cayston and I feel great! Yesterday...
  11. P

    Brochoscopy

    Happy Thursday!!<br><br>I am scheduled for a brochoscopy next week! I asked the dr for it and he agreed. I have been sick for the past year, the dr thinks it is mostly from the aspergillus, but I am not completely sure!! Two weeks ago, they started me in Cayston and I feel great! Yesterday...
  12. P

    Brochoscopy

    Happy Thursday!!<br><br>I am scheduled for a brochoscopy next week! I asked the dr for it and he agreed. I have been sick for the past year, the dr thinks it is mostly from the aspergillus, but I am not completely sure!! Two weeks ago, they started me in Cayston and I feel great! Yesterday...
  13. P

    PICC Lines

    I agree with everyone it is a matter of personal choice!! I continue to teach Yoga, Pilates, and Boot Camp classes with my PICC line, but I limit the weights. Right now I am teaching Silver Sneakers where I do toning with light weights.
  14. P

    PICC Lines

    I agree with everyone it is a matter of personal choice!! I continue to teach Yoga, Pilates, and Boot Camp classes with my PICC line, but I limit the weights. Right now I am teaching Silver Sneakers where I do toning with light weights.
  15. P

    PICC Lines

    I agree with everyone it is a matter of personal choice!! I continue to teach Yoga, Pilates, and Boot Camp classes with my PICC line, but I limit the weights. Right now I am teaching Silver Sneakers where I do toning with light weights.
  16. P

    Up Insulin while on Prednisone

    Thank you Erin!! How are you? How is Cleveland? I think Prednisine is horrible!! I feel like the bad out weighs the good!! I am doing Prednisine 2x per day!! I am always high!!
  17. P

    Up Insulin while on Prednisone

    Thank you Erin!! How are you? How is Cleveland? I think Prednisine is horrible!! I feel like the bad out weighs the good!! I am doing Prednisine 2x per day!! I am always high!!
  18. P

    Up Insulin while on Prednisone

    Thank you Erin!! How are you? How is Cleveland? <br /> <br />I think Prednisine is horrible!! I feel like the bad out weighs the good!! <br /> <br />I am doing Prednisine 2x per day!! I am always high!!
  19. P

    Up Insulin while on Prednisone

    Happy Sunday! I have been on Prednisone for a bit!! My blood sugars go crazy!! Have any of you found a methods of dosing that works for you while on Prednisone? I take 4 additional units when I actually take the Prednisone, but still not 100% working to control sugars!! ANy tricks that...
  20. P

    Up Insulin while on Prednisone

    Happy Sunday! I have been on Prednisone for a bit!! My blood sugars go crazy!! Have any of you found a methods of dosing that works for you while on Prednisone? I take 4 additional units when I actually take the Prednisone, but still not 100% working to control sugars!! ANy tricks that...
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