Cystic Fibrosis Forum (EXP)

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  1. P

    Amphotericin b

    Happy Friday! I have had APBA for over 3 years and did all the steroids and anti-fungals. The steroids really messed with my blood sugar levels and are just a nightmare. I have had an allergic reaction to all the oral anti-fungals. I just started xolair last week. Today I just started...
  2. P

    Amphotericin b

    Happy Friday! <br /> <br />I have had APBA for over 3 years and did all the steroids and anti-fungals. The steroids really messed with my blood sugar levels and are just a nightmare. I have had an allergic reaction to all the oral anti-fungals. <br /> <br />I just started xolair last week...
  3. P

    Organizing a 5K

    Happy Wednesday!! I am organizing a Turkey Trot 5K to benefit CF. Woohoo<img src="i/expressions/face-icon-small-smile.gif" border="0"> My question to all of you have you ever reached out to a drug company that has CF related meds for a event donation or sponsorship. Pepsi
  4. P

    Organizing a 5K

    Happy Wednesday!! I am organizing a Turkey Trot 5K to benefit CF. Woohoo<img src="i/expressions/face-icon-small-smile.gif" border="0"> My question to all of you have you ever reached out to a drug company that has CF related meds for a event donation or sponsorship. Pepsi
  5. P

    Organizing a 5K

    Happy Wednesday!! <br /> <br />I am organizing a Turkey Trot 5K to benefit CF. Woohoo<img src="i/expressions/face-icon-small-smile.gif" border="0"> <br /> <br />My question to all of you have you ever reached out to a drug company that has CF related meds for a event donation or sponsorship...
  6. P

    Sun's Soma, Fungal Lung Formula

    Has anyone tried this? I have ABPA and I am in searching for something to help.
  7. P

    Sun's Soma, Fungal Lung Formula

    Has anyone tried this? I have ABPA and I am in searching for something to help.
  8. P

    Sun's Soma, Fungal Lung Formula

    Has anyone tried this? I have ABPA and I am in searching for something to help.
  9. P

    Any CF'ers with breast implants?

    Sorry it was the Miraculous for the two cups sizes<img src="i/expressions/face-icon-small-smile.gif" border="0">
  10. P

    Any CF'ers with breast implants?

    Sorry it was the Miraculous for the two cups sizes<img src="i/expressions/face-icon-small-smile.gif" border="0">
  11. P

    Any CF'ers with breast implants?

    Sorry it was the Miraculous for the two cups sizes<img src="i/expressions/face-icon-small-smile.gif" border="0">
  12. P

    Any CF'ers with breast implants?

    I have debated them myself. There is a thread about it. I bought the Victoria's Secret Incredible Bra and it is AMAZING!! It really gives you two full cups sizes!! It may be a nice gift while you debate the implants!
  13. P

    Any CF'ers with breast implants?

    I have debated them myself. There is a thread about it. I bought the Victoria's Secret Incredible Bra and it is AMAZING!! It really gives you two full cups sizes!! It may be a nice gift while you debate the implants!
  14. P

    Any CF'ers with breast implants?

    I have debated them myself. There is a thread about it. <br /> <br />I bought the Victoria's Secret Incredible Bra and it is AMAZING!! It really gives you two full cups sizes!! It may be a nice gift while you debate the implants!
  15. P

    Eclipse Balls In Pittsburgh

    Thank you!! I just moved from Akron. Thank you for the idea. The home infusion at UPMC in Pittsburgh does not use the balls!
  16. P

    Eclipse Balls In Pittsburgh

    Thank you!! I just moved from Akron. Thank you for the idea. The home infusion at UPMC in Pittsburgh does not use the balls!
  17. P

    Eclipse Balls In Pittsburgh

    Thank you!! I just moved from Akron. Thank you for the idea. The home infusion at UPMC in Pittsburgh does not use the balls!
  18. P

    Eclipse Balls In Pittsburgh

    Happy Thursday!! I am new to Pittsburgh. I want to use the Eclipse Balls, but I can not find a company that uses them. I so frustrated. Today, it put me over the edge when they brought me this old antiquated machine and I have to be hooked up for two hours when I have done the same medicine...
  19. P

    Eclipse Balls In Pittsburgh

    Happy Thursday!! I am new to Pittsburgh. I want to use the Eclipse Balls, but I can not find a company that uses them. I so frustrated. Today, it put me over the edge when they brought me this old antiquated machine and I have to be hooked up for two hours when I have done the same medicine...
  20. P

    Eclipse Balls In Pittsburgh

    Happy Thursday!! <br /> <br />I am new to Pittsburgh. I want to use the Eclipse Balls, but I can not find a company that uses them. I so frustrated. Today, it put me over the edge when they brought me this old antiquated machine and I have to be hooked up for two hours when I have done the...
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