Cystic Fibrosis Forum (EXP)

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  1. S

    creon and milk

    I tried coconut milk and oil before getting her back on milk, but she didn't like it at all. Of course, it could be because I tried remembering a smoothie recipe rather than looking it up - I probably screwed up the proportions! I will try again because I'm thinking a pina coloda would be pretty...
  2. S

    creon and milk

    We saw the pediatrician today and my daughter has put on a little bit of weight, which initially seemed like great news -- but she's also grown, so she in effect has just stayed even. At least she's not losing! Since putting milk and cream back in her diet, the poor kid is burping like crazy...
  3. S

    creon and milk

    We saw the pediatrician today and my daughter has put on a little bit of weight, which initially seemed like great news -- but she's also grown, so she in effect has just stayed even. At least she's not losing! Since putting milk and cream back in her diet, the poor kid is burping like crazy...
  4. S

    creon and milk

    We saw the pediatrician today and my daughter has put on a little bit of weight, which initially seemed like great news -- but she's also grown, so she in effect has just stayed even. At least she's not losing! Since putting milk and cream back in her diet, the poor kid is burping like crazy...
  5. S

    creon and milk

    We saw the pediatrician today and my daughter has put on a little bit of weight, which initially seemed like great news -- but she's also grown, so she in effect has just stayed even. At least she's not losing! Since putting milk and cream back in her diet, the poor kid is burping like crazy...
  6. S

    creon and milk

    We saw the pediatrician today and my daughter has put on a little bit of weight, which initially seemed like great news -- but she's also grown, so she in effect has just stayed even. At least she's not losing! <br /> <br />Since putting milk and cream back in her diet, the poor kid is burping...
  7. S

    Welcome Ambry Genetics

    Steve, Thank you for getting back to me. We saw the peditrician today and she doesn't have the full report. However, I believe she said they used Quest (?). My daughter has mutation N 5 UTR-152G. Actually, I was asking a more general question (although anything you can tell me specifically...
  8. S

    creon and milk

    Thank you all for your suggestions! My daughter was tested for milk allergies and she doesn't have any, nor did she have any reaction to milk before. So I was just wondering if anyone else had that type of a reaction or if it was just a coincidence. I gave her some cream in a smoothie this...
  9. S

    creon and milk

    Thank you all for your suggestions! My daughter was tested for milk allergies and she doesn't have any, nor did she have any reaction to milk before. So I was just wondering if anyone else had that type of a reaction or if it was just a coincidence. I gave her some cream in a smoothie this...
  10. S

    creon and milk

    Thank you all for your suggestions! My daughter was tested for milk allergies and she doesn't have any, nor did she have any reaction to milk before. So I was just wondering if anyone else had that type of a reaction or if it was just a coincidence. I gave her some cream in a smoothie this...
  11. S

    creon and milk

    Thank you all for your suggestions! My daughter was tested for milk allergies and she doesn't have any, nor did she have any reaction to milk before. So I was just wondering if anyone else had that type of a reaction or if it was just a coincidence. I gave her some cream in a smoothie this...
  12. S

    creon and milk

    Thank you all for your suggestions! <br /> <br />My daughter was tested for milk allergies and she doesn't have any, nor did she have any reaction to milk before. So I was just wondering if anyone else had that type of a reaction or if it was just a coincidence. <br /> <br />I gave her some...
  13. S

    Welcome Ambry Genetics

    My 7-yr-old daughter had two borderline sweat tests and her gastroenterologist ordered the genetics test (pulmonology always orders the test, but my daughter wasn't seeing that doctor at the time.) I was told that two mutations would confirm CF, but no mutations does not rule it out. The test...
  14. S

    creon and milk

    I posted a question in the Nutrition section about taking creon and drinking milk. (My initial question stemmed from a misunderstanding of the literature I was given about creon I thought my daughter couldn't have milk or ice cream at all.) I have a follow-up question and I'm taking the advice...
  15. S

    creon and milk

    I posted a question in the Nutrition section about taking creon and drinking milk. (My initial question stemmed from a misunderstanding of the literature I was given about creon I thought my daughter couldn't have milk or ice cream at all.) I have a follow-up question and I'm taking the advice...
  16. S

    creon and milk

    I posted a question in the Nutrition section about taking creon and drinking milk. (My initial question stemmed from a misunderstanding of the literature I was given about creon I thought my daughter couldn't have milk or ice cream at all.) I have a follow-up question and I'm taking the advice...
  17. S

    creon and milk

    I posted a question in the Nutrition section about taking creon and drinking milk. (My initial question stemmed from a misunderstanding of the literature I was given about creon I thought my daughter couldn't have milk or ice cream at all.) I have a follow-up question and I'm taking the advice...
  18. S

    creon and milk

    I posted a question in the Nutrition section about taking creon and drinking milk. (My initial question stemmed from a misunderstanding of the literature I was given about creon I thought my daughter couldn't have milk or ice cream at all.) I have a follow-up question and I'm taking the advice...
  19. S

    creon and milk

    My 7 yr old daughter was diagnosed with pancreatic insufficiency a few months ago and she now takes creon 10 (3 with meals and 2 with snacks) The pharmacist mentioned that she shouldn't have milk or ice cream with the pills, which wasn't much of a problem since she doesn't particularly care for...
  20. S

    creon and milk

    My 7 yr old daughter was diagnosed with pancreatic insufficiency a few months ago and she now takes creon 10 (3 with meals and 2 with snacks) The pharmacist mentioned that she shouldn't have milk or ice cream with the pills, which wasn't much of a problem since she doesn't particularly care for...
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