Cystic Fibrosis Forum (EXP)

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  1. S

    Update on diagnosis

    My daughter is "failure to thrive" because she lacks growth hormone. She does not have CF, nor does she have digestive issues. So your son can be PS and still be failure to thrive. <br /> <br />Once she started the hormone, she grew immediately, but it took two years before her height and...
  2. S

    Information Hard to Get

    Brenda, I can totally relate to what you are going through. Despite all assurances that my daughter does not present a compelling case for CF, her sweat test came back borderline. I googled borderline CF, atypical CF, pancreatic insuffiency -- you name it, I googled it. I read a ton of...
  3. S

    Information Hard to Get

    Brenda, I can totally relate to what you are going through. Despite all assurances that my daughter does not present a compelling case for CF, her sweat test came back borderline. I googled borderline CF, atypical CF, pancreatic insuffiency -- you name it, I googled it. I read a ton of...
  4. S

    Information Hard to Get

    Brenda, I can totally relate to what you are going through. Despite all assurances that my daughter does not present a compelling case for CF, her sweat test came back borderline. I googled borderline CF, atypical CF, pancreatic insuffiency -- you name it, I googled it. I read a ton of...
  5. S

    Information Hard to Get

    Brenda, I can totally relate to what you are going through. Despite all assurances that my daughter does not present a compelling case for CF, her sweat test came back borderline. I googled borderline CF, atypical CF, pancreatic insuffiency -- you name it, I googled it. I read a ton of...
  6. S

    Information Hard to Get

    Brenda, <br />I can totally relate to what you are going through. Despite all assurances that my daughter does not present a compelling case for CF, her sweat test came back borderline. I googled borderline CF, atypical CF, pancreatic insuffiency -- you name it, I googled it. I read a ton of...
  7. S

    Waiting for Diagnosis

    Valerie, Wow! Two years without a diagnosis!?!? We're going through that right now, but it's only been a few months. My daughter's gastroenterologist sent us for a sweat test just so we can officially rule out CF, but it came back borderline, as did the retest. So we moved on to the genetics...
  8. S

    Waiting for Diagnosis

    Valerie, Wow! Two years without a diagnosis!?!? We're going through that right now, but it's only been a few months. My daughter's gastroenterologist sent us for a sweat test just so we can officially rule out CF, but it came back borderline, as did the retest. So we moved on to the genetics...
  9. S

    Waiting for Diagnosis

    Valerie, Wow! Two years without a diagnosis!?!? We're going through that right now, but it's only been a few months. My daughter's gastroenterologist sent us for a sweat test just so we can officially rule out CF, but it came back borderline, as did the retest. So we moved on to the genetics...
  10. S

    Waiting for Diagnosis

    Valerie, Wow! Two years without a diagnosis!?!? We're going through that right now, but it's only been a few months. My daughter's gastroenterologist sent us for a sweat test just so we can officially rule out CF, but it came back borderline, as did the retest. So we moved on to the genetics...
  11. S

    Waiting for Diagnosis

    Valerie, <br />Wow! Two years without a diagnosis!?!? We're going through that right now, but it's only been a few months. My daughter's gastroenterologist sent us for a sweat test just so we can officially rule out CF, but it came back borderline, as did the retest. So we moved on to the...
  12. S

    Hyperactivity with CF Kids..anyone have this with their kids?

    My daughter was diagnosed with ADHD when she was five because she was so amazingly hyper -- but no one really thought the diagnosis fit. Concerta helped calm her down, but we had to increase the dosage twice. And she continued to get more and more hyper over the next couple of years. She would...
  13. S

    Hyperactivity with CF Kids..anyone have this with their kids?

    My daughter was diagnosed with ADHD when she was five because she was so amazingly hyper -- but no one really thought the diagnosis fit. Concerta helped calm her down, but we had to increase the dosage twice. And she continued to get more and more hyper over the next couple of years. She would...
  14. S

    Hyperactivity with CF Kids..anyone have this with their kids?

    My daughter was diagnosed with ADHD when she was five because she was so amazingly hyper -- but no one really thought the diagnosis fit. Concerta helped calm her down, but we had to increase the dosage twice. And she continued to get more and more hyper over the next couple of years. She would...
  15. S

    Hyperactivity with CF Kids..anyone have this with their kids?

    My daughter was diagnosed with ADHD when she was five because she was so amazingly hyper -- but no one really thought the diagnosis fit. Concerta helped calm her down, but we had to increase the dosage twice. And she continued to get more and more hyper over the next couple of years. She would...
  16. S

    Hyperactivity with CF Kids..anyone have this with their kids?

    My daughter was diagnosed with ADHD when she was five because she was so amazingly hyper -- but no one really thought the diagnosis fit. Concerta helped calm her down, but we had to increase the dosage twice. And she continued to get more and more hyper over the next couple of years. She would...
  17. S

    creon and milk

    I tried coconut milk and oil before getting her back on milk, but she didn't like it at all. Of course, it could be because I tried remembering a smoothie recipe rather than looking it up - I probably screwed up the proportions! I will try again because I'm thinking a pina coloda would be pretty...
  18. S

    creon and milk

    I tried coconut milk and oil before getting her back on milk, but she didn't like it at all. Of course, it could be because I tried remembering a smoothie recipe rather than looking it up - I probably screwed up the proportions! I will try again because I'm thinking a pina coloda would be pretty...
  19. S

    creon and milk

    I tried coconut milk and oil before getting her back on milk, but she didn't like it at all. Of course, it could be because I tried remembering a smoothie recipe rather than looking it up - I probably screwed up the proportions! I will try again because I'm thinking a pina coloda would be pretty...
  20. S

    creon and milk

    I tried coconut milk and oil before getting her back on milk, but she didn't like it at all. Of course, it could be because I tried remembering a smoothie recipe rather than looking it up - I probably screwed up the proportions! I will try again because I'm thinking a pina coloda would be pretty...
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