Cystic Fibrosis Forum (EXP)

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  1. S

    anyone have experience with a nasojejunal feeding tube for an older kid?

    After a year of trying and failing to increase my daughter's weight, her doctor would like to jumpstart her growth by using a feeding tube running through her nose. But this isn't meant to be a permanent solution, nor does he know how she will tolerate the suppliment so he doesn't want to do the...
  2. S

    anyone have experience with a nasojejunal feeding tube for an older kid?

    After a year of trying and failing to increase my daughter's weight, her doctor would like to jumpstart her growth by using a feeding tube running through her nose. But this isn't meant to be a permanent solution, nor does he know how she will tolerate the suppliment so he doesn't want to do the...
  3. S

    anyone have experience with a nasojejunal feeding tube for an older kid?

    After a year of trying and failing to increase my daughter's weight, her doctor would like to jumpstart her growth by using a feeding tube running through her nose. But this isn't meant to be a permanent solution, nor does he know how she will tolerate the suppliment so he doesn't want to do the...
  4. S

    anyone have experience with a nasojejunal feeding tube for an older kid?

    After a year of trying and failing to increase my daughter's weight, her doctor would like to jumpstart her growth by using a feeding tube running through her nose. But this isn't meant to be a permanent solution, nor does he know how she will tolerate the suppliment so he doesn't want to do the...
  5. S

    CF children in school

    We dealt with exactly that issue last year. My daughter's class had lunch at 10:30, which was WAY too early and she wasn't hungry -- some days she didn't eat anything at all. When we went to the nutritionist's appointment, we found that she had dropped almost two pounds and she was concerned...
  6. S

    CF children in school

    We dealt with exactly that issue last year. My daughter's class had lunch at 10:30, which was WAY too early and she wasn't hungry -- some days she didn't eat anything at all. When we went to the nutritionist's appointment, we found that she had dropped almost two pounds and she was concerned...
  7. S

    CF children in school

    We dealt with exactly that issue last year. My daughter's class had lunch at 10:30, which was WAY too early and she wasn't hungry -- some days she didn't eat anything at all. When we went to the nutritionist's appointment, we found that she had dropped almost two pounds and she was concerned...
  8. S

    CF children in school

    We dealt with exactly that issue last year. My daughter's class had lunch at 10:30, which was WAY too early and she wasn't hungry -- some days she didn't eat anything at all. When we went to the nutritionist's appointment, we found that she had dropped almost two pounds and she was concerned...
  9. S

    CF children in school

    We dealt with exactly that issue last year. My daughter's class had lunch at 10:30, which was WAY too early and she wasn't hungry -- some days she didn't eat anything at all. When we went to the nutritionist's appointment, we found that she had dropped almost two pounds and she was concerned...
  10. S

    Looking for some advice, BTDT stories please

    Been there, done that... Actually, we're still looking for answers. My daughter (8 years old) had two borderline sweat tests and has one mutation. We did the fecal fat test last February and she is "severely pancreatic insufficient". We had an x-ray that showed her lungs were "not clear" but...
  11. S

    Looking for some advice, BTDT stories please

    Been there, done that... Actually, we're still looking for answers. My daughter (8 years old) had two borderline sweat tests and has one mutation. We did the fecal fat test last February and she is "severely pancreatic insufficient". We had an x-ray that showed her lungs were "not clear" but...
  12. S

    Looking for some advice, BTDT stories please

    Been there, done that... Actually, we're still looking for answers. My daughter (8 years old) had two borderline sweat tests and has one mutation. We did the fecal fat test last February and she is "severely pancreatic insufficient". We had an x-ray that showed her lungs were "not clear" but...
  13. S

    Looking for some advice, BTDT stories please

    Been there, done that... Actually, we're still looking for answers. My daughter (8 years old) had two borderline sweat tests and has one mutation. We did the fecal fat test last February and she is "severely pancreatic insufficient". We had an x-ray that showed her lungs were "not clear" but...
  14. S

    Looking for some advice, BTDT stories please

    Been there, done that... Actually, we're still looking for answers. <br /> <br />My daughter (8 years old) had two borderline sweat tests and has one mutation. We did the fecal fat test last February and she is "severely pancreatic insufficient". We had an x-ray that showed her lungs were "not...
  15. S

    Moving to the US from London

    You should probably talk to people who have used both systems. If you talk to a thousand people in the US you'll get a thousand different opinions because it all depends on what type of coverage you have. In London, you are accustomed to one method and that method applies to everyone; here it...
  16. S

    Moving to the US from London

    You should probably talk to people who have used both systems. If you talk to a thousand people in the US you'll get a thousand different opinions because it all depends on what type of coverage you have. In London, you are accustomed to one method and that method applies to everyone; here it...
  17. S

    Moving to the US from London

    You should probably talk to people who have used both systems. If you talk to a thousand people in the US you'll get a thousand different opinions because it all depends on what type of coverage you have. In London, you are accustomed to one method and that method applies to everyone; here it...
  18. S

    Moving to the US from London

    You should probably talk to people who have used both systems. If you talk to a thousand people in the US you'll get a thousand different opinions because it all depends on what type of coverage you have. In London, you are accustomed to one method and that method applies to everyone; here it...
  19. S

    Moving to the US from London

    You should probably talk to people who have used both systems. If you talk to a thousand people in the US you'll get a thousand different opinions because it all depends on what type of coverage you have. In London, you are accustomed to one method and that method applies to everyone; here it...
  20. S

    Weight to length %

    Do you mean the Body Mass Index calculation? There is a handy <a target=_blank class=ftalternatingbarlinklarge href="http://apps.nccd.cdc.gov/dnpabmi/">calculator for BMI</a> on the CDC website. If you want to do it yourself, the calculation is: (lbs/inches²) x 703
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