Cystic Fibrosis Forum (EXP)

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    WOW!! I missed out!!

    Man!! I have been away from this sight for a little while, and I missed the abortion issue and the "CF/Poverty thread, and now they are locked! Oh well, I am not going back to those messages because it will just get locked as well, but I was surprised to see WinAce and Mockingbird get into it...
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    What kind of job do you have?

    I work as a preschool teacher, youth pastor at my church, and part time college student at Western Ky University. Also, I ran for city council in my town last year and lost by 18 votes, and I am going to run next year and I AM GOING TO WIN!!! ccflewallen
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    Coughing up Blood ( unpleasant subject! )

    I have had three episodes of coughing up blood. Each time I went to the hospital and was put on IV antibiotics. My CF doc said that I would need to be life flighted to Vanderbilt if it happened as severe as it did the first time again. I hate the feeling, I hate coughing it up, and I hate...
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    Please, I need some help (2 terminations mentioned inside)

    i would hate to think that it would have been better had i been terminated because i have cf. you only get so many second chances
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    air purifiers

    I have four air purifiers, one of which is one of those IONIC Breeze Quadra deals. The only carpet we have is in the two upstairs guest bedrooms. Everything else is vinyl or hardwood. I think they help, but they are costly and I have found that the more air born stuff you take out of your...
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    Can someone give me some reasons

    To me, everyone needs to find a purpose for life. To simply exist is not good enough for me, whether I have CF or not. I had to realize that it's not all about me and cf and death, etc. I had to find something or somebody else to live for. Anyone who just tries to live for themselves will...
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    Awareness letter and other info COMPLETE

    Sounds great!! Count me in. I'll send out letters or anything else you might need. I went on our local ABC News station and was interviewed a few years back. Might be something we can look into in some locations. If we contact event coordinators from different CF chapters, often they can...
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    chest pain?

    Yeah, now I know what you are talking about. You are just walking along or doing something (or nothing) and all of a sudden you breathe, grab your chest, and say OH THAT HURT!!!. Is that what you are talking about? When it happens to me, thats all I do. I just say "Man thats hurts!" and keep...
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    gene question...

    Hmmm. I think she/ he would have the same pairing if she had CF. This is because if you nor the daddy, has CF, then there is only one way for the baby to have CF. She would have to get the same gene from you and the same gene from the daddy that your first baby received. I think thats right...
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    How many people are........

    WinAce, do you think it's possible you could be overthinking this. If it were difficult or if you had to be smart to believe in God and /or Heaven, we would be introuble. I think God wanted to make easy enough for even a child to believe and understand. Sure, there are things we cannot...
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    New to the board

    Glad to meet you jmpjules99. Your at the right place, I am fairly new myself. There are many people here who can help you as you become educated about CF. Good Luck!
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    "mild" form of the disease

    I dont know how, at 6 months old, they can know whether she has a "mild" case of CF. I had a rough start. They said I wasnt healthy, and I had a blockage when I was born. I was in the hospital for much of my first two years. After that, didnt spend time in a hospital for 21 years. So, you...
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    flutter doo dad

    I have both of these and I dont use either one. They both work fine once you get the hang of them. But, if you do or can get up the energy, I suggest cardio or running five or six days a week. I dont exercise that often (maybe 2-4 times week) but if I did I'd I bet a million I would be more...
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    I'm at my wits end!

    NurseKnob, I agree with Mockingbird. This is the wrong "room" to come for advice on your particular topic. For one, most in here are adults w/ CF who have tried or are still doing the things your daughter is experimenting with. And two, some even think its ok to keep doing it. The fact is...
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    My Bones Hurt!

    I have a lot of back pain, and I dont know what to do about it either. Dont know if its CF related though. I used to lift weights ALOT, and I didnt always use the proper techniques. That could be my problem, but CF might be a contributing factor. Do you get much exercise? The only thing I...
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    mutations

    Maria: My name is Chris. I joined this forum last weekend and have enjoyed it very much. I enjoy reading and knowing how others are doing tht deal with the same issues as I do. I was born with a blockage (that elius something or other), and when I was two years old I was always in the hospital...
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    Having a Really Bad week

    Well, I am certainly no counselor, but here is what I would do. Obviously, there is nothing that your Mom can do right now except deal with such a great loss in her life. I dont know what I would do if something happened to my wife; I dont even want to think about it. If you pray, this would...
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    CF awareness letter

    I was not aware that most CF adult clinics only consisted of a doctor and a nurse. I have only been to one adult clinic which is at Vanderbilt. It is pretty comprehensive, having all of the benefits you listed for a pediatric clinic. I cant remember, but when I lived in or near Atlanta, it...
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    mutations

    Which mutation causes the most problems with the lungs?
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    weird question for a CF forum

    you are probably right purplelungs, it is just disturbing. Yes there are more disturbing things to worry about, but I cant help it. It just "seems" like if there were 20 CFers in a room, maybe 15 or 16 have tried marajuana, rather than just half. Another thing that may or may have had an...
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