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Another brain freeze on my part. So mutation and gene are interchangeable terms in this instance. Duhh! Well, my wife informed me that I have the double F508, which by the way I do not think is the worst one to have. If I were to guess, having two different mutations probably causes the most...

I wish I could do this. If one of you would like to donate a scanner or a digital camera to the ccflewallen foundation, I would be well on my way to picture posting.LOL Really I am just trying to read these threads and reply to as many of them as I can. I would like to post a pic though...

a port? If i knew what a port was I still couldn't help you out because I dont have any way of posting pics. However, I am sure that someone will comply with your request. There is a wealth of knowledge here. Good luck! ccflewallen

Thats pretty cool. What office are you looking into running for? Whatever it is, good luck! I ran for City Council last year in my town and missed it by 18 votes. That was good though because I am not from here, and this is a small town where you pretty much have to be a native to get any...

hmmmmm. so I think we need to start a revolt and demand Cf docs come to our house for our visits or we all stop going and they lose their jobs. Just kidding but this does make you wonder if going to the clinic is worth the risk. Or better yet going to the hospital for any reason that isn't a...

I'm from Morgantown Kentucky, just north of Bowling Green, KY

?Senator? Graham? Is this just a screenname or are you a Senator? If so , let me direct your attention to a thread posted by WinAce on the forum. It's the one that mentions Raleigh, click on that then click to go to the website he speaks of. Could you read his story and tell us what you...

Well, looks like ccflewallen isn't the only one around here causing contriversy lol. I am glad I went straight to the sixth page instead of reading all of them.. Talk about arguements....pheeeeweee!!! There were definitely plenty of venters on this one. My kind of thread. Keep up the good...

Never mind I feel stupid, duuuh maybe it was a CF Camp in Michigan, called Onkoi Benek

I am a former camper. What camp did you go to? I went to Camp Wak-N-Hak in Georgia. It would be awesome to hear from an old fellow camper. I remember many people who went to camp. Dr. Deb was the director. So let me know what camp it was. ccflewallen

Thanks for the replies. I go to Vanderbilt Medical Center in Nashville and that is really the only time I worry about coming in contact with b. cepacia, at least via another CF patient. I wasnt aware of the other places it could be found. My wife is also very "germ conscious". We keep Lysol...

The only mutation I am aware that I have is Delta F508. Does everyone have more than one mutation? You guys know way more about this stuff than I do. Guess I need to read up more. Most recent PFTs were in the 90's but dont remember exactly. No transplants, no tune ups, no cepacia, nine days...

This a great step in trying to see that something is done on WinAces behalf. Another thing, if indeed Mr. O'Reilley or FOX News receives this and acts on it, it could patch up some media wounds if you know what I mean. So many people are now giving the media up the road (deservingly so) that...

Can you get Cepacia any other way than from another person with CF who has Cepacia? I was just wondering because when I was growing up, I went to a camp in Georgia called Camp Wak-N-Hak. After several years Cfers started getting cepacia and they started making us wear masks and all these other...

CRAP!!! I was trying to correct where I said "my favorite School" and change school to sport. Sorry ccflewallen

Oh yeah, this surprises some and encourages others. My favorite in school was track & field. I could run 100 meters in 11sec flat, 200 meters in 23.86 sec, and 400 meters in 53 sec. After that it really goes down hill. Did run half mile in 2 minutes 28 sec. once. Went to State Track & Field...

No golf here but I love to play sports. I am a fanatic to play or watch almost any sport, preferrably mens except tennis I wish Anna Kournikova would come back <img src="i/expressions/face-icon-small-smile.gif" border="0"> Oh and I have a question. How do you come in contact with cepacia...

I dont know either, but it could be stress related. Usually I am never tired, I just go go go. But now that I am married, have two jobs, and going to college at the same time, I am more than unusually tired. I even over slept and was late for the first time ever (for oversleeping anyway). Is...

God doesn't "make" women pregnant and I am sure Jenhum knows that. But when I woman does become pregnant, whether it was planned or not, God can still have a plan for that child. That is of course providing the mother doesn't want a baby and aborts him/her. I am referring of course to women...

I agree with EB24. Blood is scary; especially when it is coming out of your mouth. It is the scariest moment I have had in my life to this point. It was the first time I really thought I was going to die; seriously. ccflewallen