Cystic Fibrosis Forum (EXP)

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  1. M

    Sweat Test help please

    Make sure your son is very well hydrated. Put a coat on him and let him run around while he has the filter paper on for the sweat collection. Best of luck. My son had 4 sweat tests done that didn't work. He had blood work for the 70 most common mutations which came back negative. I know...
  2. M

    Sweat Test help please

    Make sure your son is very well hydrated. Put a coat on him and let him run around while he has the filter paper on for the sweat collection. Best of luck. My son had 4 sweat tests done that didn't work. He had blood work for the 70 most common mutations which came back negative. I know...
  3. M

    Accuracy of test

    Jennifer-Did your Dr. state that they were doing the Ambry test? My understanding (from this board) is that Ambry tests for 1500 mutations..... I just want to give my support as I'm currently awaiting my sons genetic test results after 3 failed sweats tests. I understand your frustrations and...
  4. M

    Accuracy of test

    Jennifer-Did your Dr. state that they were doing the Ambry test? My understanding (from this board) is that Ambry tests for 1500 mutations..... I just want to give my support as I'm currently awaiting my sons genetic test results after 3 failed sweats tests. I understand your frustrations and...
  5. M

    Accuracy of test

    Jennifer-Did your Dr. state that they were doing the Ambry test? My understanding (from this board) is that Ambry tests for 1500 mutations..... I just want to give my support as I'm currently awaiting my sons genetic test results after 3 failed sweats tests. I understand your frustrations and...
  6. M

    Accuracy of test

    Jennifer-Did your Dr. state that they were doing the Ambry test? My understanding (from this board) is that Ambry tests for 1500 mutations..... I just want to give my support as I'm currently awaiting my sons genetic test results after 3 failed sweats tests. I understand your frustrations and...
  7. M

    Accuracy of test

    Jennifer-Did your Dr. state that they were doing the Ambry test? My understanding (from this board) is that Ambry tests for 1500 mutations..... I just want to give my support as I'm currently awaiting my sons genetic test results after 3 failed sweats tests. I understand your frustrations and...
  8. M

    Accuracy of test

    Jennifer-Did your Dr. state that they were doing the Ambry test? My understanding (from this board) is that Ambry tests for 1500 mutations..... I just want to give my support as I'm currently awaiting my sons genetic test results after 3 failed sweats tests. I understand your frustrations and...
  9. M

    2nd sweat test on daughter-Lab tech.told me 1st test was done wrong?

    From what I understand the newer tests have only one electrode that they attach. My son had 3 tests. The first two only one electrode was placed on each arm, it was actually a little box that looked like a manual wrist BP cuff. The third test had two electrodes placed on each arm. The tech...
  10. M

    2nd sweat test on daughter-Lab tech.told me 1st test was done wrong?

    From what I understand the newer tests have only one electrode that they attach. My son had 3 tests. The first two only one electrode was placed on each arm, it was actually a little box that looked like a manual wrist BP cuff. The third test had two electrodes placed on each arm. The tech...
  11. M

    2nd sweat test on daughter-Lab tech.told me 1st test was done wrong?

    From what I understand the newer tests have only one electrode that they attach. My son had 3 tests. The first two only one electrode was placed on each arm, it was actually a little box that looked like a manual wrist BP cuff. The third test had two electrodes placed on each arm. The tech...
  12. M

    2nd sweat test on daughter-Lab tech.told me 1st test was done wrong?

    From what I understand the newer tests have only one electrode that they attach. My son had 3 tests. The first two only one electrode was placed on each arm, it was actually a little box that looked like a manual wrist BP cuff. The third test had two electrodes placed on each arm. The tech...
  13. M

    2nd sweat test on daughter-Lab tech.told me 1st test was done wrong?

    From what I understand the newer tests have only one electrode that they attach. My son had 3 tests. The first two only one electrode was placed on each arm, it was actually a little box that looked like a manual wrist BP cuff. The third test had two electrodes placed on each arm. The tech...
  14. M

    2nd sweat test on daughter-Lab tech.told me 1st test was done wrong?

    From what I understand the newer tests have only one electrode that they attach. My son had 3 tests. The first two only one electrode was placed on each arm, it was actually a little box that looked like a manual wrist BP cuff. The third test had two electrodes placed on each arm. The tech...
  15. M

    What is going on??

    Well, back from the Ped's office. They thought at first he was having a seizure but he was making eye contact with me through out turning blue/purple and he was more collapsing, not rigid. Now they think maybe he was just holding his breath...... They did say to call 911 if it happens again...
  16. M

    What is going on??

    Well, back from the Ped's office. They thought at first he was having a seizure but he was making eye contact with me through out turning blue/purple and he was more collapsing, not rigid. Now they think maybe he was just holding his breath...... They did say to call 911 if it happens again...
  17. M

    What is going on??

    Well, back from the Ped's office. They thought at first he was having a seizure but he was making eye contact with me through out turning blue/purple and he was more collapsing, not rigid. Now they think maybe he was just holding his breath...... They did say to call 911 if it happens again...
  18. M

    What is going on??

    Well, back from the Ped's office. They thought at first he was having a seizure but he was making eye contact with me through out turning blue/purple and he was more collapsing, not rigid. Now they think maybe he was just holding his breath...... They did say to call 911 if it happens again...
  19. M

    What is going on??

    Well, back from the Ped's office. They thought at first he was having a seizure but he was making eye contact with me through out turning blue/purple and he was more collapsing, not rigid. Now they think maybe he was just holding his breath...... They did say to call 911 if it happens again...
  20. M

    What is going on??

    Well, back from the Ped's office. They thought at first he was having a seizure but he was making eye contact with me through out turning blue/purple and he was more collapsing, not rigid. Now they think maybe he was just holding his breath...... They did say to call 911 if it happens again...
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