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I live in Atlanta and boy was yesterday rough. I made sure not to go outside much at all because the smoke was so bad. It was so thick, too, that I couldn't believe it was from the wildfires. It seemed like it had to be coming from across the street considering how strong it was.
I've felt...
I live in Atlanta and boy was yesterday rough. I made sure not to go outside much at all because the smoke was so bad. It was so thick, too, that I couldn't believe it was from the wildfires. It seemed like it had to be coming from across the street considering how strong it was.
I've felt...
I live in Atlanta and boy was yesterday rough. I made sure not to go outside much at all because the smoke was so bad. It was so thick, too, that I couldn't believe it was from the wildfires. It seemed like it had to be coming from across the street considering how strong it was.
I've felt...
My doctor has had me doing Hypertonic before Pulmozyme ever since I added HS to my routine, which was probably a year and a half ago.
I never asked the reason for the order, but I've always done HS before Pulmozyme and it seems to work swell!!
I'd be interested to find a study supporting that!
My doctor has had me doing Hypertonic before Pulmozyme ever since I added HS to my routine, which was probably a year and a half ago.
I never asked the reason for the order, but I've always done HS before Pulmozyme and it seems to work swell!!
I'd be interested to find a study supporting that!
My doctor has had me doing Hypertonic before Pulmozyme ever since I added HS to my routine, which was probably a year and a half ago.
I never asked the reason for the order, but I've always done HS before Pulmozyme and it seems to work swell!!
I'd be interested to find a study supporting that!
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>henryb</b></i>
Hi there,
I am a father of two daughters with CF (18 and 21 yo).
We live in Austria, Europe.
My daughters' mutations are DF508 + R1162X (a stop or nonsense mutation).
I am closely watching the PTC124 study as well...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>henryb</b></i>
Hi there,
I am a father of two daughters with CF (18 and 21 yo).
We live in Austria, Europe.
My daughters' mutations are DF508 + R1162X (a stop or nonsense mutation).
I am closely watching the PTC124 study as well...
<div class="FTQUOTE"><begin quote><i>Originally posted by: <b>henryb</b></i>
Hi there,
I am a father of two daughters with CF (18 and 21 yo).
We live in Austria, Europe.
My daughters' mutations are DF508 + R1162X (a stop or nonsense mutation).
I am closely watching the PTC124 study as well...
My lower back hurts more often than not, it seems. I wasn't sure what it could be attributed to, but when I had my first DEXA scan last year, they said that I have osteopenia in my lower back. I don't know if that's the only cause of my back pain, but that could be a potential factor to consider.
My lower back hurts more often than not, it seems. I wasn't sure what it could be attributed to, but when I had my first DEXA scan last year, they said that I have osteopenia in my lower back. I don't know if that's the only cause of my back pain, but that could be a potential factor to consider.
My lower back hurts more often than not, it seems. I wasn't sure what it could be attributed to, but when I had my first DEXA scan last year, they said that I have osteopenia in my lower back. I don't know if that's the only cause of my back pain, but that could be a potential factor to consider.
The first thing I thought of was "Sail to Inhale." Pretty corny, but that's how I am! I'll try to think of some as I go to bed and post in the morning if I come up with anything creative!
The first thing I thought of was "Sail to Inhale." Pretty corny, but that's how I am! I'll try to think of some as I go to bed and post in the morning if I come up with anything creative!
The first thing I thought of was "Sail to Inhale." Pretty corny, but that's how I am! I'll try to think of some as I go to bed and post in the morning if I come up with anything creative!
I read an article maybe about a year ago correlating massaging with increased health for young people w/CF. Ever since I read that article, I've wondered if I could swindle my insurance company into paying for my own masseuse! I've done yoga, but not religiously enough to know if it helped. Good...
I read an article maybe about a year ago correlating massaging with increased health for young people w/CF. Ever since I read that article, I've wondered if I could swindle my insurance company into paying for my own masseuse! I've done yoga, but not religiously enough to know if it helped. Good...
I read an article maybe about a year ago correlating massaging with increased health for young people w/CF. Ever since I read that article, I've wondered if I could swindle my insurance company into paying for my own masseuse! I've done yoga, but not religiously enough to know if it helped. Good...
I agree that I don't think there is a "normal". I have been at the same FEV1 level since I started doing PFTs at this clinic in about 1996. It is frustrating to do so much and not have them go up, but I guess I should be thankful that they're not going down. I'm not sure what would be typical...
I agree that I don't think there is a "normal". I have been at the same FEV1 level since I started doing PFTs at this clinic in about 1996. It is frustrating to do so much and not have them go up, but I guess I should be thankful that they're not going down. I'm not sure what would be typical...
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