Cystic Fibrosis Forum (EXP)

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  1. D

    Georgia Wildfires

    I live in Atlanta and boy was yesterday rough. I made sure not to go outside much at all because the smoke was so bad. It was so thick, too, that I couldn't believe it was from the wildfires. It seemed like it had to be coming from across the street considering how strong it was. I've felt...
  2. D

    Georgia Wildfires

    I live in Atlanta and boy was yesterday rough. I made sure not to go outside much at all because the smoke was so bad. It was so thick, too, that I couldn't believe it was from the wildfires. It seemed like it had to be coming from across the street considering how strong it was. I've felt...
  3. D

    Georgia Wildfires

    I live in Atlanta and boy was yesterday rough. I made sure not to go outside much at all because the smoke was so bad. It was so thick, too, that I couldn't believe it was from the wildfires. It seemed like it had to be coming from across the street considering how strong it was. I've felt...
  4. D

    Dr. Advised Hypertonic THEN Pulmozyme

    My doctor has had me doing Hypertonic before Pulmozyme ever since I added HS to my routine, which was probably a year and a half ago. I never asked the reason for the order, but I've always done HS before Pulmozyme and it seems to work swell!! I'd be interested to find a study supporting that!
  5. D

    Dr. Advised Hypertonic THEN Pulmozyme

    My doctor has had me doing Hypertonic before Pulmozyme ever since I added HS to my routine, which was probably a year and a half ago. I never asked the reason for the order, but I've always done HS before Pulmozyme and it seems to work swell!! I'd be interested to find a study supporting that!
  6. D

    Dr. Advised Hypertonic THEN Pulmozyme

    My doctor has had me doing Hypertonic before Pulmozyme ever since I added HS to my routine, which was probably a year and a half ago. I never asked the reason for the order, but I've always done HS before Pulmozyme and it seems to work swell!! I'd be interested to find a study supporting that!
  7. D

    PTC124

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>henryb</b></i> Hi there, I am a father of two daughters with CF (18 and 21 yo). We live in Austria, Europe. My daughters' mutations are DF508 + R1162X (a stop or nonsense mutation). I am closely watching the PTC124 study as well...
  8. D

    PTC124

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>henryb</b></i> Hi there, I am a father of two daughters with CF (18 and 21 yo). We live in Austria, Europe. My daughters' mutations are DF508 + R1162X (a stop or nonsense mutation). I am closely watching the PTC124 study as well...
  9. D

    PTC124

    <div class="FTQUOTE"><begin quote><i>Originally posted by: <b>henryb</b></i> Hi there, I am a father of two daughters with CF (18 and 21 yo). We live in Austria, Europe. My daughters' mutations are DF508 + R1162X (a stop or nonsense mutation). I am closely watching the PTC124 study as well...
  10. D

    Those with major lower back pain (and no relief)

    My lower back hurts more often than not, it seems. I wasn't sure what it could be attributed to, but when I had my first DEXA scan last year, they said that I have osteopenia in my lower back. I don't know if that's the only cause of my back pain, but that could be a potential factor to consider.
  11. D

    Those with major lower back pain (and no relief)

    My lower back hurts more often than not, it seems. I wasn't sure what it could be attributed to, but when I had my first DEXA scan last year, they said that I have osteopenia in my lower back. I don't know if that's the only cause of my back pain, but that could be a potential factor to consider.
  12. D

    Those with major lower back pain (and no relief)

    My lower back hurts more often than not, it seems. I wasn't sure what it could be attributed to, but when I had my first DEXA scan last year, they said that I have osteopenia in my lower back. I don't know if that's the only cause of my back pain, but that could be a potential factor to consider.
  13. D

    Get Creative ASAP!

    The first thing I thought of was "Sail to Inhale." Pretty corny, but that's how I am! I'll try to think of some as I go to bed and post in the morning if I come up with anything creative!
  14. D

    Get Creative ASAP!

    The first thing I thought of was "Sail to Inhale." Pretty corny, but that's how I am! I'll try to think of some as I go to bed and post in the morning if I come up with anything creative!
  15. D

    Get Creative ASAP!

    The first thing I thought of was "Sail to Inhale." Pretty corny, but that's how I am! I'll try to think of some as I go to bed and post in the morning if I come up with anything creative!
  16. D

    Acupuncture or other methods of healing?

    I read an article maybe about a year ago correlating massaging with increased health for young people w/CF. Ever since I read that article, I've wondered if I could swindle my insurance company into paying for my own masseuse! I've done yoga, but not religiously enough to know if it helped. Good...
  17. D

    Acupuncture or other methods of healing?

    I read an article maybe about a year ago correlating massaging with increased health for young people w/CF. Ever since I read that article, I've wondered if I could swindle my insurance company into paying for my own masseuse! I've done yoga, but not religiously enough to know if it helped. Good...
  18. D

    Acupuncture or other methods of healing?

    I read an article maybe about a year ago correlating massaging with increased health for young people w/CF. Ever since I read that article, I've wondered if I could swindle my insurance company into paying for my own masseuse! I've done yoga, but not religiously enough to know if it helped. Good...
  19. D

    What is the normal loss of FEV 1 per year?

    I agree that I don't think there is a "normal". I have been at the same FEV1 level since I started doing PFTs at this clinic in about 1996. It is frustrating to do so much and not have them go up, but I guess I should be thankful that they're not going down. I'm not sure what would be typical...
  20. D

    What is the normal loss of FEV 1 per year?

    I agree that I don't think there is a "normal". I have been at the same FEV1 level since I started doing PFTs at this clinic in about 1996. It is frustrating to do so much and not have them go up, but I guess I should be thankful that they're not going down. I'm not sure what would be typical...
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