Cystic Fibrosis Forum (EXP)

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  1. M

    Home IV again

    Jane, So far these are the only antibiotics the mycobacterium responds to in the lab. They did a bronch two weeks ago to get another culture. Hoping to find another antibiotic to treat it with.
  2. M

    Home IV again

    Jane, <br /> So far these are the only antibiotics the mycobacterium responds to in the lab. They did a bronch two weeks ago to get another culture. Hoping to find another antibiotic to treat it with.
  3. M

    Home IV again

    My 15 year old son also has mycobacterium abscessus. He's being treated with tagycil IV and amikacin IV, but for 12-18 months. I see that your son was treated before for 12 weeks; was he initially treated for a longer period of time? We are trying to completely eradicate it, but are having no...
  4. M

    Home IV again

    My 15 year old son also has mycobacterium abscessus. He's being treated with tagycil IV and amikacin IV, but for 12-18 months. I see that your son was treated before for 12 weeks; was he initially treated for a longer period of time? We are trying to completely eradicate it, but are having no...
  5. M

    Home IV again

    My 15 year old son also has mycobacterium abscessus. He's being treated with tagycil IV and amikacin IV, but for 12-18 months. I see that your son was treated before for 12 weeks; was he initially treated for a longer period of time? We are trying to completely eradicate it, but are having no...
  6. M

    Home IV again

    My 15 year old son also has mycobacterium abscessus. He's being treated with tagycil IV and amikacin IV, but for 12-18 months. I see that your son was treated before for 12 weeks; was he initially treated for a longer period of time? We are trying to completely eradicate it, but are having no...
  7. M

    Home IV again

    My 15 year old son also has mycobacterium abscessus. He's being treated with tagycil IV and amikacin IV, but for 12-18 months. I see that your son was treated before for 12 weeks; was he initially treated for a longer period of time? We are trying to completely eradicate it, but are having no...
  8. M

    Four pounds under the weight requirement

    juliepie, I this is off topic, but can you tell me anything about your fight against the m. abscessus? My son has this and went from 85% lung function to 58% in the last six months. We have been treating him for six months with IV amikacin and tagicyl, and with no improvement, only...
  9. M

    Four pounds under the weight requirement

    juliepie, I this is off topic, but can you tell me anything about your fight against the m. abscessus? My son has this and went from 85% lung function to 58% in the last six months. We have been treating him for six months with IV amikacin and tagicyl, and with no improvement, only...
  10. M

    Four pounds under the weight requirement

    juliepie, I this is off topic, but can you tell me anything about your fight against the m. abscessus? My son has this and went from 85% lung function to 58% in the last six months. We have been treating him for six months with IV amikacin and tagicyl, and with no improvement, only...
  11. M

    Four pounds under the weight requirement

    juliepie, I this is off topic, but can you tell me anything about your fight against the m. abscessus? My son has this and went from 85% lung function to 58% in the last six months. We have been treating him for six months with IV amikacin and tagicyl, and with no improvement, only...
  12. M

    Four pounds under the weight requirement

    juliepie, <br /> I this is off topic, but can you tell me anything about your fight against the m. abscessus? My son has this and went from 85% lung function to 58% in the last six months. We have been treating him for six months with IV amikacin and tagicyl, and with no improvement, only...
  13. M

    10 month old Son Diagnosed but has no symthoms?

    I'm sorry you got this difficult news. My son had very few respritory symptoms until he was about 5. He just recently started having serious issues and he is 15. Try to begin chest pt (vest, manual, whatever they recommend) and recommended meds even if he doesn't have the symptoms yet. Do all...
  14. M

    10 month old Son Diagnosed but has no symthoms?

    I'm sorry you got this difficult news. My son had very few respritory symptoms until he was about 5. He just recently started having serious issues and he is 15. Try to begin chest pt (vest, manual, whatever they recommend) and recommended meds even if he doesn't have the symptoms yet. Do all...
  15. M

    10 month old Son Diagnosed but has no symthoms?

    I'm sorry you got this difficult news. My son had very few respritory symptoms until he was about 5. He just recently started having serious issues and he is 15. Try to begin chest pt (vest, manual, whatever they recommend) and recommended meds even if he doesn't have the symptoms yet. Do all...
  16. M

    10 month old Son Diagnosed but has no symthoms?

    I'm sorry you got this difficult news. My son had very few respritory symptoms until he was about 5. He just recently started having serious issues and he is 15. Try to begin chest pt (vest, manual, whatever they recommend) and recommended meds even if he doesn't have the symptoms yet. Do all...
  17. M

    10 month old Son Diagnosed but has no symthoms?

    I'm sorry you got this difficult news. My son had very few respritory symptoms until he was about 5. He just recently started having serious issues and he is 15. Try to begin chest pt (vest, manual, whatever they recommend) and recommended meds even if he doesn't have the symptoms yet. Do all...
  18. M

    in hospital and very depressed

    Hi. Sorry to hear you're feeling so blue. This disease gets everyone down sometimes. My son also has ABPA, pseudomonas and a mycobacterium. I've also been struggling to keep my spirits up, he's actually doing better than me with that. For the ABPA, he's on prednisone and vfend. For the...
  19. M

    in hospital and very depressed

    Hi. Sorry to hear you're feeling so blue. This disease gets everyone down sometimes. My son also has ABPA, pseudomonas and a mycobacterium. I've also been struggling to keep my spirits up, he's actually doing better than me with that. For the ABPA, he's on prednisone and vfend. For the...
  20. M

    in hospital and very depressed

    Hi. Sorry to hear you're feeling so blue. This disease gets everyone down sometimes. My son also has ABPA, pseudomonas and a mycobacterium. I've also been struggling to keep my spirits up, he's actually doing better than me with that. For the ABPA, he's on prednisone and vfend. For the...
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